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Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

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Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#81
Short answer is no.

But I have had complete temporary relief for a few days at a time that coincided with other signs of healing in my body, which hints at what could bring about permanent abatement.

I’ve had mild tinnitus since I was about 12-13yrs old (I’m in my 40s now).

It’s never been especially debilitating; it doesn’t impair my hearing or diminish quality of life, it’s just always there in the background.

Since about the same age I’ve had signs of inflammation in the digestive system/respiratory system and other mild/moderate symptoms that research suggests are related to microbiome issues - EBV, CMV, etc. at its worst it’s been like chronic fatigue or fibromyalgia, though not always and not these days.

I’ve tried a lot of things over the years to try and resolve these issues - diet/nutrition, detoxing, cleansing, infrared, occasionally more extreme things I won’t mention here. On a few precious occasions everything seemed to click into place and I just felt a really pleasant, energized feeling through my body, the signs of inflammation went away, my digestion improved and the tinnitus abated and my hearing was completely clear.

Every time however, the baseline symptoms, including the the tinnitus, returned within a few days and remain to this day (though probably at a milder level than a few years ago).

I don’t have any definitive takeaways from all this, but it suggests to me that if there’s a way to fully resolve chronic inflammation and microbiome issues (which are quite common), it may bring about a complete abatement of tinnitus.

(You can Google for CMV tinnitus/EBV tinnitus to find research papers and articles/discussions on correlations between these conditions).

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#82
I’ve had tinnitus for about one year now. There is no permanent relief or treatment. Lots of snake oil.

My hearing was tested by an Audiologist and my hearing was normal.

The “sound” I observe is high pitched. Using a tone generator I matched it to around 16,500 Hz. Interestingly, if I play that tone I get temporary relief on the order of 2-10 minutes.

As far as I understand my tinnitus is the result of something going wonky with the signal processing in the brain.

If you’re suffering from tinnitus for the first time it’s important to remain calm. There is defiantly an amplifying effect from the psychological aspect of tinnitus. Eventually the body will “habituate” if it does not go away. It took me around 3-6 months to be able to ignore it. During the day I rarely hear it. At night a little more. Playing sounds at a low volume on a Bluetooth speaker helps. For example on Spotify an artist called “TMSOFT” has good stuff. In the day I’ll listen to jazz or lofi.

It’s important to protect your ears. iPhone has a hearing protection feature for headphones and I have it on the lowest setting. I would avoid in-ear headphones. Use hearing protection at concerts.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#83
post #75

I'm just speculating here. If somehow we could determine the exact waveform of the ringing, wouldn't be possible to just play the reverse waveform and cancel it out? Like how active noise cancelling headphones are doing.

I have tinnitus which is within the frequency range I can hear, what I've found using headphones and a web tone generator is that I can establish a 'beat' frequency but I can't cancel it out entirely. That leads me to suspect that the frequency and phase of the tinnitus isn't consistent enough to cancel without actively tracking it, and how do you do that?

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#84
I developed T after a series of encounters with benzodiazepines to lessen my nerves when I was coping with burnout. I didn't know I had burnout, I didn't know what was happening to me, I just wanted it to stop. My tinnitus became unbearable in the weeks after a psychiatrist took me of an benzo and put me on an atypical antipsychotic medication. I always blamed the new medication as the cause of my symptoms (of which T was one) when in reality it was the cessation of the benzo.

After 5 years of Tinnitus-hell I was put on yet another benzo and my symptoms were _gone_. It lasted only a number of months, though and when I stopped taking the new benzo ... it all came back.

I came to the diagnosis of benzo-dependency myself and found a psychiatrist who agreed to assist in a 6-month withdrawal with a gradual taper. After each step my tinnitus came back a bit for a few days and then dropped again. After a number of iterations it became what is known as "baseline", i.e. a background tinnitus I can live with.

In recent months I started taking Magnesium supplements in the form of citrates and Taurine. I then found this on reddit: https://www.reddit.com/r/tinnitus/comments/znyuyj/partial_su... The top comment by kenzocarj is my current working model for dealing with Tinnitus. I'd like to try L-Theanine but it's illegal in my country - you can buy it in a form that has added glutamine which worsens my T. I'm now drinking matcha tea as a source of L-Theanine.

Hope this helps.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#85
post #75

I'm just speculating here. If somehow we could determine the exact waveform of the ringing, wouldn't be possible to just play the reverse waveform and cancel it out? Like how active noise cancelling headphones are doing.

Tinnitus isn’t sound in the “vibrating molecules of air” sense—it’s a neurological phenomenon. Anything’s possible—but our perception of sound is not obligated to play by the same rules as physical sound does, and ANC relies on those rules.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#86
Still have it. However:

I worried about my tinnitus for so long. It drove me nuts at the beginning. Then one day I stopped worrying. I can't even tell you why, or when exactly that happened, just that it happened.

I remember reading all the comments saying "you'll get used to it", and then lying awake at night and thinking "I'll NEVER get used to it". It felt like I would have to accept a huge handicap. I really didn't understand how people could just say it doesn't bother them anymore. Really, that loud sound doesn't bother you?

And here I am today. I don't even think about it on most days. And most importantly, it does not feel like a handicap at all. It's mostly just gone. Still there and clearly audible when I think about it, but otherwise gone. Zero impact on my regular life, on my music listening or music making behaviour.

I also have a pretty strong hayfever allergy. Many people told me I'd get used to that, too, and I have to disagree: no, I don't get used to it, I'm 35 years old and it drives me nuts every single year. But the tinnitus is different. I have it for over 15 years now, and it just became irrelevant.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#88

At least for me, ignoring it seems to work as well as ignoring eye floaters seems to. They're there, but I can filter them out to the point where I forget that they're there. That's it. It's not permanent, but I can forget it's there.

As someone having both tinnitus and eye floaters, this rings (pun intended) so true.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#89
post #2

Yes, mine is not solved in theory but is solved in practice. The ringing is still there if I listen for it, but it’s effectively unnoticeable and I’m now unbothered by it. The solution that worked for my was basically “acceptance and commitment therapy” - I think I learned it from a book written by a Dr Russell or something like that. Would recommend, am very glad I did it. It seems kind of kooky though, it’s almost…

I've had it for as long as I can remember soI don't know what life is without.

I've had some curiousity from time to time, but that's the extent of it.

I truly believe acceptance is the best cure when no cure exists in this case, but it's also the most difficult method in all aspects of life.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#90

I developed T after a series of encounters with benzodiazepines to lessen my nerves when I was coping with burnout. I didn't know I had burnout, I didn't know what was happening to me, I just wanted it to stop. My tinnitus became unbearable in the weeks after a psychiatrist took me of an benzo and put me on an atypical antipsychotic medication. I always blamed the new medication as the cause of my symptoms (of which…

What affect did magnesium have on your tinnitus? What about the L-Theanine?
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