Live data from Hacker News

Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

news.ycombinator.com

1–10 of 402 posts

Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#1
As far as I can tell, there's no universally accepted "cure" for tinnitus, but there are a number of "therapies" out there, some of which seem to prey upon people looking for relief but some of which seem plausible.

I'm wondering if any subscribers here have had tinnitus and experience permanent relief from the ringing? Not just reduction, but actual permanent relief that never comes back even when doing things that previously worsened the tinnitus.

If you can't tell, I'm trying to establish an "existence proof" here, if no one has ever gotten permanent relief then it seems like it might not be worth bothering with the "symptom reduction" therapies since they would most likely lead to focusing on the symptoms more intensely.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#2
Yes, mine is not solved in theory but is solved in practice. The ringing is still there if I listen for it, but it’s effectively unnoticeable and I’m now unbothered by it.

The solution that worked for my was basically “acceptance and commitment therapy” - I think I learned it from a book written by a Dr Russell or something like that.

Would recommend, am very glad I did it. It seems kind of kooky though, it’s almost like you pretend the tinnitus is a part of you and you have a conversation with it and welcome it and all that kinda stuff over time, and then eventually it just kinda stops being bothersome. Doesn’t really make sense, but worked well.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#3
It's impossible to cure.

The 'ringing' sound people hear isn't actually a sound. It is how the brain processes signals produced by damaged Stereocilia.

If the 'ringing' is constant it means the cilia are permanently damaged. While it would, in theory, be possible to use surgery on the ear and some sort of lazer to completely remove all damaged cilia to avoid them outputting a damaged signal, this procedure would be incredibly invasive and risky. I don't believe it's ever been done and i would find it hard to believe any Otolaryngologist willing to try.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#4
I've been dealing with tinnitus for about a year now. The only thing I've found that helps is Ginko Biloba. I'm buying that at a "Dollar General" store so the source is iffy and so is the effectiveness, but it certainly does help.

My wife has a friend who told her just a few days ago that her husband has had some success toning his done by chewing Bay leaves. I've not tried that yet, but I will soon.

From what I've read there is still no "cure". But those two things may contain a clue that's worth looking for.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#5
In my case it has 2 modes. Super loud and very attenuated. I still have no idea what triggers it, I thought it was loud noises, caffeine, tiredness etc, but seems like its not a 100% rule. I have been super tired and done all those things and suddenly its super attenuated. So it's super random. Im sure for certain people there must be something that helps reduce it, maybe something related to the nervous system. I honestly don’t mind it anymore as long as I can hear. You can learn to tune it out for sure

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#6
i think there is research being done on cilia regeneration: https://news.mit.edu/2022/frequency-therapeutics-hearing-reg...

obviously time to get approved/confirm it works - etc lies ahead.

other than that - i had taken up drums and was paranoid of tinnitus, i could hear ringing etc. once i got audiologist confirmation my hearing was 20/20 guess what? It went away. Anxiety levels can affect it...obviously it was mild for me - chronic sufferers wont get away with "dont worry about it and it will go away".

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#7
One month was the worst point. It gets better from there until it's unnoticeable unless in a silent room. You will be surprised how the brain is able to both cancel out and then rebalance the sound input to normal (should your tinnitus be one-sided). Same goes for "cracks" that you might hear if the sounds are too loud -- they also go away in time.

I might as well note that anecdotally, barotrauma makes the tinnitus better temporarily. Maybe there is an explanation -- traumatic tinnitus can be at least alleviated by going into an overpressurization chamber immediately after the traumatic event. It seems like even after the fact, a pressure difference has temporary effect. For example, my tinnitus feels better after ascend on flights, even though in this case it's underpressure.

The best motivational video that I still think of after 10 years is this: https://youtu.be/eOU0JhkHY3w

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#9
I'm a physician with lifelong bilateral tinnitus. Multiple pitches, quite loud, and acutely worse on the right side for the last 1.5 years or so (with some slight hearing loss).

I've spent a lot of time on PubMed, but so far I've not found anything that helps mine, even partially or temporarily. I've consulted with close friends that have significant expertise is relevant fields, which has not been fruitful.

Thankfully it's just part of existence as I've always known it, and so it's usually not too difficult, but can really be maddening when trying to fall asleep.

Re: Ask HN: Has anyone gotten complete, permanent relief from tinnitus?

#10

i think there is research being done on cilia regeneration: https://news.mit.edu/2022/frequency-therapeutics-hearing-reg... obviously time to get approved/confirm it works - etc lies ahead. other than that - i had taken up drums and was paranoid of tinnitus, i could hear ringing etc. once i got audiologist confirmation my hearing was 20/20 guess what? It went away. Anxiety levels can affect it...obviously it was mild…

Sadly their main candidate didn't pass early trials. $FREQ
Post reply on HN