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Chronic fatigue syndrome may have a post-viral infection origin

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Re: Chronic fatigue syndrome may have a post-viral infection origin

#311

Post by talldatethrow »

symlinkk wrote: post #303
talldatethrow wrote: post #201

Earlier quoted context omitted.

I dated a med school student for all of medschool and some rotations. Thus I have countless doctor friends now from those years. Everytime I bring up the reality of what most doctors are like, I get downvoted on HN for some reason. The doctor I dated for years never drank water. She loved diet coke. She ate mcdonalds constantly but avoided the bun. She was skinny though. I had to teach her how to pump gas because her…

She must not have been that bad if you dated her for years.

She was an ok girlfriend. She's not the intellectual caring doctor people imagine when discussing advice from doctors.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#312

Post by talldatethrow »

qwytw wrote: post #294
talldatethrow wrote: post #270

Earlier quoted context omitted.

Because without doing so I can't eat 1000-1500 calories of vegetables. I think this is worth doing once every few years at least for 90 days.

By juice do you mean do you mean you just blend those vegetables more or less whole or actual (pressed/etc.) juice? Because if second that sounds like a terrible idea. If first you might have a good point as long you make sure to get the necessary nutrients etc.

No, not blending. Even blended I don't think you could consume 10 lbs of vegetables a day.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#313

Post by agos »

martindbp wrote: post #301
_yb2s wrote: post #161

Earlier quoted context omitted.

How does this theory line up with the my experience, which seems to be similar to a lot of people with CFS: I had high energy levels until I suddenly got sick, and had a mild fever for about a day. After that I had the sort of fatigue one feels when having the flu, except it lasted for about 8 months, and then gradually lifted. After that my energy levels totally recovered and stayed normal for over a decade. All tes…

I've had constant brain fog / fatigue for the last 6 months after a brief stomach flu. Got a tip to try the sauna for 3 days a week, which apparently doubles human growth hormone production. After two weeks of this I've finally had 5 days in a row where I don't feel tired. I still need to sleep more than usual, but before I could sleep 10 hours and still feel very tired, now I feel great after 9 hours. The person who…

as far as low risk/low cost treatment options to try go, sauna sounds pretty great

Re: Chronic fatigue syndrome may have a post-viral infection origin

#314

Post by jassyr »

doingtheiroming wrote: post #252
jassyr wrote: post #156

Earlier quoted context omitted.

>I sometimes wonder why we're all not more annoyed that we get sent to specialists for the parts of our body . . . . at no point, is there a department of immunology that takes over or even contributes. As a person with Multiple Sclerosis seeing a neurologist I have been wondering this very thing since my diagnosis. I am on a B-cell depleting drug. It feels silly talking to my neurologist about my B cells. Lots of te…

I'm sure you're awayre that lots of evidence now that MS and many other AI diseases are caused / induced by acute or chronic viral infections: https://med.stanford.edu/news/all-news/2022/01/epstein-barr-... It really feels at this point that not by connecting these diseases together and treating them as a class, we're missing the woods for the trees. Sadly, all of the economic incentives are to keep treating them sep…

There is very convincing research that Epstein Barr Virus causes Multiple Sclerosis, and the current treatment I am on for MS destroys the B-Cells the latent virus lives in. I think you're spot on, infections are probably the cause of most of these auto-immune diseases.

In MS we're getting closer to finding the cause and ultimately the cure. It does take a while for research to get funneled to the right person with the right specialty and right funding -- sometimes years, decades.

I'm not sure tying the diseases together would be a winning strategy...? My MS could be caused by the EBV living in B-Cells and a genetic or environmental (or both) trigger. Your UC may be caused by a certain bacteria living in your gut triggering a T-Cell response by a different genetic or environmental element.

And yeah, the doctors don't want to hear my pet theories. hah. I have done my own labs, brought them in, and the doctor just gives me a condescending look like - why are you even trying? I guess they don't know how desperate most of us are for answers.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#315

Post by martindbp »

agos wrote: post #313
martindbp wrote: post #301

Earlier quoted context omitted.

I've had constant brain fog / fatigue for the last 6 months after a brief stomach flu. Got a tip to try the sauna for 3 days a week, which apparently doubles human growth hormone production. After two weeks of this I've finally had 5 days in a row where I don't feel tired. I still need to sleep more than usual, but before I could sleep 10 hours and still feel very tired, now I feel great after 9 hours. The person who…

as far as low risk/low cost treatment options to try go, sauna sounds pretty great

Yes, gyms tend to have them here, but we're a very sauna dense country

Re: Chronic fatigue syndrome may have a post-viral infection origin

#316

Post by growingkittens »

DrThunder wrote: post #306
growingkittens wrote: post #120

Earlier quoted context omitted.

Let's do some thinking: collectively, we don't know enough about CFS or the human brain to make definitive statements like 'a large number are faking it.' You've confused your emotions for logic.

Yes please do some thinking. There's a condition called Factitious disorder and then there's also anxiety based hypochondria bud. You're making an objectively FALSE statement. There is ZERO possibility that there's no person in the world faking CFS. Thanks for the laugh. It's hilarious that you tried to accuse me of an emotional argument. You can drop the strawman bullshit as well. I never gave a number on how many p…

Nowhere does my comment state that no one is faking. You've simply left reality in favor of a fantasy.

This is what I said:

> collectively, we don't know enough about CFS or the human brain to make definitive statements like 'a large number are faking it.'

This is what it means:

We don't know enough to quantify the ratio of fakers.

'A large number are faking it' is a type of quantification: a ratio. In this case, a descriptive ratio that uses the words "large number" instead of literal numbers.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#317

Post by thenerdhead »

Fluorescence wrote: post #310
thenerdhead wrote: post #302

Earlier quoted context omitted.

Sorry I don’t have time right now. Perhaps I misremembered, but thought he said he would often sleep off illness in the car when the driver would take him to and from gigs when he was a teen. I trust you looked.

He talks about working two jobs but this was during Family Ties & Back to the Future, 6 years before his symptoms. He describes sleeping in the car but no mention of illness. At best it's "can't be good can it?" and "confused about which set I was on" but no mention of sickness. Were this to be a cause, and I don't there is any evidence to suggest it is but I feel the doc wishes to insinuate so, it would be a stress/…

Here's two studies. Thanks for the feedback. I choose to bemoan those who deny it completely and will continue to do so. Not those who keep an open mind.

https://pubmed.ncbi.nlm.nih.gov/22753266/

https://jamanetwork.com/journals/jamaneurology/fullarticle/2...

Re: Chronic fatigue syndrome may have a post-viral infection origin

#318

Post by thenerdhead »

freilanzer wrote: post #297
hirako2000 wrote: post #131

Earlier quoted context omitted.

Why is it such an issue that people deny it? Viruses can cause organ tissue damages, that's enough for me to believe a virus can cause all sort of "syndromes" I'm not on the denier side but harass me with fear, threats, and free movement mandates and I will deny that syndromes even exist.

Because I've been running from doctor to doctor for years without results - because they won't test for anything other than the regular stuff, like blood tests, heart issues, etc. My boss doesn't believe me since CFS or burnout couldn't possibly exist, you just need to focus on your work more. Everytime I say I can't go out since I'm too tired I get made fun of or have eyes rolled at me. It's like denying someone has…

You should read Howard Bloom's advice on CFS. He basically says you have to become your own doctor and use medical professionals as your council.

https://forums.phoenixrising.me/attachments/howard-bloom-cfs...

Re: Chronic fatigue syndrome may have a post-viral infection origin

#319

Post by RoyTyrell »

t0bia_s wrote: post #290
RoyTyrell wrote: post #176

Earlier quoted context omitted.

My girlfriend's sister suffers from Long Covid for going on 2yrs now. Some of the problems she had early on is that most doctors wrote her off as either lying or anxiety. More than one ER doc said there's no way that Covid could ever cause lasting symptoms other than lung damage, which she didn't have, so it's likely just anxiety. There was one DO she saw, during an admit for tachycardia, who said that he believed th…

Is she vaccinated with mRNA?

She is now, but was infected with the virus before she got the vaccine. The vaccine was available but unfortunately she was hesitant about getting it due to all of the noise online and in the news. She was vaccinated about 4mo after being infected and had already been experiencing Long Covid symptoms.

Re: Chronic fatigue syndrome may have a post-viral infection origin

#320

Post by Llamamoe »

lindsaywaterman wrote: post #212
Llamamoe wrote: post #190

Earlier quoted context omitted.

You're on the nose. Dismissing mystery symptoms like this is doctor 101. As it happens we do have research on ME/CFS causes and biomarkers such as gut dysbiosis toxins[1], deficient SCFA production[2], elevated rates of enterovirus[3] and herpesvirus[4](particularly EBV, HHV-6 and -7) infections. Coincidentally, every single of those things is associated with dementia in old age. Absolutely everything points at the o…

I just want to clarify that I absolutely agree that there are a multitude of pathophysiologoc changes in cfsers, including mitochondrial dysfunction, hrv changes, ongoing viral reactivations, deranged cytokines etc. I think the difference in our opinions is just that I my opinion, these physiological changes are downstream of cns dynamics in the lateral frontal pole, pituitary gland, amygdala, and cerebral cortex. At…

I'm not convinced. The human brain is an organ like any other- evolution had vested interest in keeping its function adaptive, and to this extent even social stress induced depression and vulnerability are adaptive responses. Most severe chronic illness - mental or otherwise - isn't.
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