Chronic fatigue syndrome may have a post-viral infection origin

Post by nradov » Mon, Sep 11, 2023, 5:11 PM UTC

smearth wrote: post #96

lindsaywaterman wrote: post #81

Earlier quoted context omitted.

Thanks for these - don't have an opinion on either but will look into. Broadly, I think immune dysfunction is a feature of most cfs so there is often a positive EBV test, or HSV test. I suspect this is more "downstream" than causative of CFS. However, it may be that there is a biomarker in the mitochondrial function, bone marrow etc...I hope one is found!

Why is the medical profession obsessed with biomarkers but not the next optimal step in patient treatment plans? Root cause analysis of dysfunction in complex dynamic systems is a waste of energy. Someone has the biomarker but they are a heroin addict which confers them a protective mechanism. What then? If you have 5 heroin addicts with similar symptoms you can just experiment with likely beneficial next treatment s…

Post by sgtnoodle » Mon, Sep 11, 2023, 5:12 PM UTC

doingtheiroming wrote: post #70

tauberian77 wrote: post #57

Earlier quoted context omitted.

In my case, the CFS like syndrome was all in my head in the worst fashion possible. After COVID, I developed a cross reactive species of antibody targeting my hippocampus and the opioid receptors in my brain. I have been bedridden since I was 17. I also manifested severe orthostatic intolerance and peripheral neuropathy that put me in the lowest 1 percent of neurite density. I was diagnosed at Mass General Hospital a…

Auto Immune Disorder (IBD in my case) sufferer here. I sometimes wonder why we're all not more annoyed that we get sent to specialists for the parts of our body (GI in my case) where the immune system is causing most damage at a given moment who will ask questions about other symptoms that we now have a good idea are likely the result of the same inflammation (depression, joint pain, peripheral neuropathy, CFS, etc.…

Post by nso » Mon, Sep 11, 2023, 5:18 PM UTC

jassyr wrote: post #156

doingtheiroming wrote: post #70

Earlier quoted context omitted.

Auto Immune Disorder (IBD in my case) sufferer here. I sometimes wonder why we're all not more annoyed that we get sent to specialists for the parts of our body (GI in my case) where the immune system is causing most damage at a given moment who will ask questions about other symptoms that we now have a good idea are likely the result of the same inflammation (depression, joint pain, peripheral neuropathy, CFS, etc.…

>I sometimes wonder why we're all not more annoyed that we get sent to specialists for the parts of our body . . . . at no point, is there a department of immunology that takes over or even contributes. As a person with Multiple Sclerosis seeing a neurologist I have been wondering this very thing since my diagnosis. I am on a B-cell depleting drug. It feels silly talking to my neurologist about my B cells. Lots of te…

Post by spondylosaurus » Mon, Sep 11, 2023, 5:20 PM UTC

brightrhino wrote: post #152

spondylosaurus wrote: post #134

Earlier quoted context omitted.

What of the fact that my father and I both get painless clicking when we open our jaws too wide? Unless I'm having an arthritis flare, it doesn't hurt at all, but every dentist I've ever seen has pointed it out with curiosity. That certainly seems like a mechanical issue. My immediate reaction here is that casting (my) TMJ pain as a matter of emotional avoidance feels a tad dismissive, tbh. Particularly when the pain…

Could it be that some TMJ pain has one cause and some TMJ pain has a different cause?

Post by nradov » Mon, Sep 11, 2023, 5:21 PM UTC

xbmcuser wrote: post #15

I did not get covid but did get the vaccines + 2 boosters. I have been feeling tired etc for the last 6+ months turns out because of the work at home etc and my lifestyle I was not getting enough sunlight and had very low vitamin D levels. I am not white so need to spend longer time in sunlight according to my doctor.