The top comment here is very reasonable, but I still think the application of HIPAA has been a giant mess, reflecting a disdain toward patients similar to everything else in the US healthcare system. I've ranted on here plenty about how often I've dealt with incorrect bills, and HIPAA plays into that as well. My private information can be shared to "traveling doctors", it can be shared with woefully incompetent contr…
Unfortunatly that leaves a lot of leeway. The major EMR vendors are all aggregating patient data in cloud services and taking it across borders to where there is no transparency for what is being done with it. The regulations were written with a 90's understanding of technology.
A more appropriate regulation today would be to create a category of legally privileged PHI that is strictly inadmissable in legal proceedings and with heavy fines for unauthorized use and disclosure. However, I don't see privacy legislation getting any better as the people inside govt and academia absolutely hate privacy as a concept because they are the specific targets of limiting their discretion about whose data they can snoop. We're in an era of institutional capture by people without ideals or principles, and it's probably unwise to expect altruistic public interest policy like 90's-style privacy legislation from any of them anytime soon.