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The burden of Long Covid “so large as to be unfathomable”

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Re: The burden of Long Covid “so large as to be unfathomable”

#81
post #8

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COVID was feared to mutate into something dangerous and that's why we took it so seriously. The Spanish Flu started out similarly innocuously and then turned into something terrible. That's what we were trying to (and succeeded at being able to) avoid.

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Re: The burden of Long Covid “so large as to be unfathomable”

#83

There is a lack of hard scientific evidence definitively proving this. However you may know in your bones that this is real, from lived experience or from people you know. Please keep that in mind when you dismiss other things that lack definitive scientific evidence. We as humans seem to pick and choose which currently unverified things to believe and which to dismiss.

come again? Long Covid has been documented in numerous top scientific journals. My understanding from my scientist friends is quite the opposite. It is well established.

The cause is not well established at all, similarly to CFS/ME. Also similar to CFS, the research has become very politicized and subject to media scrutiny and researchers do not feel comfortable exploring certain research questions around the CFS-likeness of many long covid cases.

Re: The burden of Long Covid “so large as to be unfathomable”

#84
> Different patients experience different symptoms from a diverse set of symptoms associated with long Covid, which could mean potential treatments might only relate to a particular sub-group and "one drug or antiviral treatment might be asking too much".

Between the different impacts on different people and the difficulties diagnosing, long Covid could represent an enormous blessing in terms of our scientific understanding of the human body as well as treatments. When your models are shattered, you have to build new ones that explain all the data better.

Re: The burden of Long Covid “so large as to be unfathomable”

#85
post #23

Hasn't there been lots of evidence in the past year suggesting that Covid was created in a lab? If we were to go down this path: 1. Covid created in a lab (not proven, but high enough probability to be considered a reasonable option): https://oversight.house.gov/release/covid-origins-hearing-wr... 2. If Covid was created in a lab, this de-facto means that Covid has potential as a biological weapon. I don't see how th…

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Re: The burden of Long Covid “so large as to be unfathomable”

#86

Earlier quoted context omitted.

What risk do you perceive from being vaccinated that makes it at least as risky as covid and long covid? You feel like shit for a day, true.

The risk from being vaccinated against covid isn't "you feel like shit for a day". That's not a worry for most people. Is injecting a person with mRNA that makes them produce a particularly nasty spike protein zero risk? No. Is this spike protein one of those? Does it end up where it shouldn't? In 2023 that information is not available. Not true or false, but simply unavailable.

> zero risk?

That wasn't the question. The question was whether it's more risky than COVID.

Re: The burden of Long Covid “so large as to be unfathomable”

#87
I am sceptic to long covid since I dont believe in big pharma good intentions. Years have passed since one pharma company knowingly sold infected drugs to 3rd world countries [1], but the nature of human didn't change. Big companies are run by people with black triad personality traits and who are incredibly greedy

[1] https://www.theguardian.com/world/2003/may/23/aids.suzannego...

Re: The burden of Long Covid “so large as to be unfathomable”

#88

I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…

>I really think medical science gets many things wrong and knows only a small piece of puzzle

That's certainly true, but medical science is well aware of the incredible benefits of physical exercise and the power of placebo.

Re: The burden of Long Covid “so large as to be unfathomable”

#89

There's a popular opinion I've seen on HN that "long Covid" isn't a real phenomenon but it's pretty easy to reject that out of hand. There have been several studies, including a recent quadruple blinded one (where participants, care providers, investigators and outcomes assessors are all blinded to treatment/control groups) that show some interventions have statistically significant benefits to treating it; https://w…

Unfortunately, COVID has been irrevocably politicized to the point where mere mention of it produces a 100+ comment thread, so any topic that is even remotely related to COVID already has the battle lines drawn and each "side" stands ready to fight over it. It doesn't seem possible to have a un-politically-charged conversation about the reality of Long COVID because it is still not possible to have an uncharged conversation about COVID.

Re: The burden of Long Covid “so large as to be unfathomable”

#90

I spent two years in bed, sometimes sleeping 16 hours a day and feeling like passing out just from walking 100m. All my tests were fine, all doctors thought it's just "anxiety" and basically ignored me until I had what looked like a stroke when they started taking it slightly more seriously. However, given all the tests were OK I went in circles from one doctor to another when I had better days, or being completely b…

I can relate about physical exercise—I had debilitating long covid symptoms for about six months with no end in sight. Could not work out, had to plan climbing stairs around my schedule so I'd have 20 minutes after to recover. Until I was forced to go on a business trip to Europe for two weeks where I was walking 20-30,000 steps a day and carrying luggage everywhere. Afterwards I felt 80-90% better, it was crazy. Still no way to know if that was just coincidence or not, but I keep seeing anecdotal stories about physical activity being key.
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