Earlier quoted context omitted.
pfas are estrogenic. And yes, it explains a few things.
What does it explain?
It explains nothing, anything in this thread will be pure conjecture unless there are peer reviewed studies that indicate otherwise.
Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
81–90 of 155 posts
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#82This is really cool. Just being able to take blood tests in general to get a better sense of what might be going on can be so informative.
Imagine the kind of data Quest Diagnostics is sitting on.
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#83This is interesting, and I suppose has a use of "data over time" but I fail to see how this testing is of any actionable value for the average person. So you're exposed, and PFAS is in EVERYTHING.... so ... what should I do? Nothing realistically. Unless I find an obvious source like my water, there isn't much I can do besides replacing my cooking pans. I can replace my pans without this test. It's a little like thos…
>so ... what should I do?
>replace my pans
>Get a reverse osmosis filter. Replace your cookware with something that doesn't contain PFAS. Don't use storage containers for food with PFAS. Check your water bottles.
Oh, so all of that would be a good start for anyone and everyone.
The test can help to determine if something, like blood donation, might be a reasonable course of action for a specific person.
This is a great test and a worthwhile addition to our understanding of how prevalent these substances are within the the body.
Any reduction of PFAS in the blood would be beneficial as they are endocrine disruptors.
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#84Earlier quoted context omitted.
I think for certain high risk populations, specifically pregnant women or women planning on becoming pregnant, it makes sense. Based on the new clinical recommendations, my 10.86 ng/mL level puts me at elevated risk for preeclampsia (if I were a women/pregnant). Knowing that could mean my BP during pregnancy is more closely monitored, with a BP cuff for example.
> I think for certain high risk populations, specifically pregnant women or women planning on becoming pregnant, it makes sense. Does it though? What will a pregnant woman do based on her results? Will having PFAS affect someone’s decision about becoming pregnant? Pregnant women are going to monitor BP anyway. And the intervention is $100 for a BP cuff so that’s cheaper than the test. So we’re better off just recomme…
Since this is an out of pocket test not covered by medicaid/medicare, I don't know if the value based care argument is that relevant. I know what you're saying though.
The value we provide: If people want to know, they can now know.
I also think not making the test accessible also has downsides.
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#85This is interesting, and I suppose has a use of "data over time" but I fail to see how this testing is of any actionable value for the average person. So you're exposed, and PFAS is in EVERYTHING.... so ... what should I do? Nothing realistically. Unless I find an obvious source like my water, there isn't much I can do besides replacing my cooking pans. I can replace my pans without this test. It's a little like thos…
There's tons of things you can do. What you should not bother doing is replacing your cooking pans because PFAS does not come from that. (Nor does it come from food storage containers or water bottles.) The first thing to do is avoid paper dishes, no paper straws or any other kind of compostable dishware. The are frequently sprayed with PFAS to make them waterproof, and unless you are buying them yourself and checkin…
Those waterproof jackets from REI that magically shed water droplets... for 9 months until the coating wears off and your jacket is just soggy
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#86"There's some research out of Australia indicating blood donation/phlebotomy is effective at removing it" Kind of a "no shit" answer, and not a real solution - you're just transferring it to someone else. Probably some moral conundrum in there about how you are worried enough to get rid of your PFAS but are giving it to someone else.
I guess you'd also be giving someone extended life though right, so I guess that's for them to decide
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#87This is interesting, and I suppose has a use of "data over time" but I fail to see how this testing is of any actionable value for the average person. So you're exposed, and PFAS is in EVERYTHING.... so ... what should I do? Nothing realistically. Unless I find an obvious source like my water, there isn't much I can do besides replacing my cooking pans. I can replace my pans without this test. It's a little like thos…
[deleted]
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#88"There's some research out of Australia indicating blood donation/phlebotomy is effective at removing it" Kind of a "no shit" answer, and not a real solution - you're just transferring it to someone else. Probably some moral conundrum in there about how you are worried enough to get rid of your PFAS but are giving it to someone else.
I'm figuring this out in real time just like everyone else.
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#89Here's the test on NMS: https://www.nmslabs.com/tests/3427SP
NMS does not list consumers as their customers, and none of their customers make medical decisions based on their lab work.
NMS claims CLIA certification. This is the older law where labs self-certify compliance. Congress left CLIA in place alongside FDA IVD regulations to protect small pharmacists, but obviously Quest Diagnostics and LabCorp run fleets through that loophole, and most labwork is CLIA-certified, not FDA-approved.
Paying to test for highly-prevalent, possibly-toxic, pervasively-feared, under-studied chemicals is an ideal recipe for fleecing people with no real benefit.
Perhaps worse, if people get burned because it is corrupt, it puts people off trusting good providers. This is not just "Hey I made an app/web-site to track your period! How cool is that?" Some chemicals may be toxic, but so is fear.
So yes, it's super important to enable people to concretely understand their risks, protect themselves, and advocate for health policies. All the more reason to do it right.
So I hope you know what you're doing. Somehow the website needs to convey the organization behind it, and why that organization can be trusted to do this right, and not to mislead people.
Re: Show HN: PFAS.report – Measure the forever chemicals in your blood via Quest
#90Earlier quoted context omitted.
We're working on it
Would you consider adding a "let me know when this is available in my area" notification signup (assuming you anticipate some delay between areas of availability)?
We have a wait list!