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Ask HN: Is there a webapp to input/store your blood test results?

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Re: Ask HN: Is there a webapp to input/store your blood test results?

#22

Something basic wouldn’t be that hard to put together

Its not hard to put together something basic, a personal electronic health Record is actually super easy. The adoption is the problem. Here is why:

1. People are far more likely to store and curate their vacation pictures than healthcare data. There is a behavioral aspect to this. There isn't a lot of 'feel good' attached to storing a good HDL/LDL reading. Quite the opposite when it's bad.

2. Most countries develop their own version of a EHR, sometimes controlled by patients. Success rates vary but they remain a very useful tool for managing chronic conditions and patient peri-operative journeys. Once governments (local or national level) take over, there is very little incentive for anyone to develop.

3. There have been many attempts to create a patient-led EHR by companies but it is difficult to get off the ground and sustain due to data ownership, security, sharing and commercial complexities.

4. Storing the data itself is trivial. FHIR covers this well and within haematology at least, the support for standardization is strong. LOINC, SNOMED and UCUM are well established. Just be careful to store the initial units and reference ranges.

5. My personal take is that personal EHRs will take off once a good open source p2p toolkit implements superb encryption-led access control across workflows with top institutions comes into play. This is unlikely because of how EMRs lock up provider data.

Re: Ask HN: Is there a webapp to input/store your blood test results?

#23
If you're looking for a well-integrated web app product that isn't something you can run locally on your computer, Picnic Health [1] is really good at this. They import all your medical records from the providers who use electronic health record systems with APIs and collect your medical records from the providers that don't use those systems or aren't as technologically savvy. They digitize everything and put it in a timeline format. Their service is not cheap though.

[1]: https://picnichealth.com/

Re: Ask HN: Is there a webapp to input/store your blood test results?

#24

Wellnessfx.com is ok and free.

Thanks for sharing, trying it out now. Not knocking it - as a non American I got a kick out of seeing imperial units being used out in the open :laugh: EDIT: Oh, cannot sign up without a US address.

i'm non-US and somehow managed to sign up for their dashboard only. There's a sign up button on the login screen that leads you to here: https://www.wellnessfx.com/registration/new

Re: Ask HN: Is there a webapp to input/store your blood test results?

#25
post #16

After noticing Apple Health doesn't let you track this data at all (very strange decision on their part) I contemplated building an app... But Excel is easier and serves the same function. Conditional highlighting, charts, trends, it's all there.

Apple Health tracks the data. It just doesn't provide graphs except for the most common variables. I'm not really sure why no one makes a graphing app that works off HealthKit data

Re: Ask HN: Is there a webapp to input/store your blood test results?

#26
post #23

If you're looking for a well-integrated web app product that isn't something you can run locally on your computer, Picnic Health [1] is really good at this. They import all your medical records from the providers who use electronic health record systems with APIs and collect your medical records from the providers that don't use those systems or aren't as technologically savvy. They digitize everything and put it in…

Came here to say this I love this service.

Re: Ask HN: Is there a webapp to input/store your blood test results?

#27
post #23

If you're looking for a well-integrated web app product that isn't something you can run locally on your computer, Picnic Health [1] is really good at this. They import all your medical records from the providers who use electronic health record systems with APIs and collect your medical records from the providers that don't use those systems or aren't as technologically savvy. They digitize everything and put it in…

This looks fantastic. Thanks for sharing! Great demo here: https://demo.picnichealth.com/records

Re: Ask HN: Is there a webapp to input/store your blood test results?

#28
post #23

If you're looking for a well-integrated web app product that isn't something you can run locally on your computer, Picnic Health [1] is really good at this. They import all your medical records from the providers who use electronic health record systems with APIs and collect your medical records from the providers that don't use those systems or aren't as technologically savvy. They digitize everything and put it in…

Note they misuse the term end-to-end encrypted, and apply it to mirroring "what banks do". I don't know anything else about their product, but this is sloppy and/or dishonest.

Re: Ask HN: Is there a webapp to input/store your blood test results?

#29
post #25
post #16

After noticing Apple Health doesn't let you track this data at all (very strange decision on their part) I contemplated building an app... But Excel is easier and serves the same function. Conditional highlighting, charts, trends, it's all there.

Apple Health tracks the data. It just doesn't provide graphs except for the most common variables. I'm not really sure why no one makes a graphing app that works off HealthKit data

Blood test results? I couldn't find anywhere to input the data manually. I track everything else there, like blood pressure, but serum iron, ferritin? Transferrin? Albumin? Etc. Nothing. Am I blind?

Re: Ask HN: Is there a webapp to input/store your blood test results?

#30
Fasten Health [1] is an open-source, self-hosted, personal/family electronic medical record aggregator, designed to integrate with 100,000's of insurances/hospitals/clinics.

It's designed to automatically pull your medical records from your EMR -- but users can also enter their conditions, medications and procedures manually. We have plans to allow users to manually enter their lab results [2], however that feature has not been implemented yet.

Fasten is still a work-in-progress, but if you're willing to contribute we have a pretty active discord (linked in the README).

[1]: https://github.com/fastenhealth/fasten-onprem/ [2]: https://github.com/fastenhealth/fasten-onprem/issues/137

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