231–240 of 334 posts
I changed my diet and began exercising. Lost 50 pounds. My sleep apnea went away and I no longer even snore.
The downside of getting diagnosed is my life insurance company dropped me.
Sleep apnea is strange. Good news! We have a diagnosis, sleep apnea. You're bad at sleeping now, the thing everybody has to do all night long every day since birth. The solution is to wear a modern iron lung whenever you want or need to sleep forever. Many times it's because people are overweight but you aren't. Is that really all there is for treatment? No throat exercises or therapeutic sleeping positions? No diets…
> The solution is to wear a modern iron lung whenever you want or need to sleep forever Calling it an iron lung is extremely disingenuous. The Iron Lung uses negative pressure and had to be used 24x7 to keep the patient alive because their lungs weren't able work on their own. They had no mobility and were confined to a bed for the rest of their lives. CPAP / APAP machines use positive pressure and only assist with b…
Iron lung use was not 24/7 for all patients. Saying so might be considered by some to be extremely disingenuous or even ridiculous.
https://www.npr.org/2021/10/25/1047691984/decades-after-poli...
Earlier quoted context omitted.
It's hyperbole, but the comparison isn't without some merit. My grandma stopped using it because it's troublesome, and I've heard many people voice the same. Getting into an iron lung each night would also be ... troublesome.
You don't climb in and out of an iron lung. If you're using one you're in it 24x7.
https://www.npr.org/2021/10/25/1047691984/decades-after-poli...
Anyone got any other experiences with things that cause brain fog? I don't think I have sleep apnea (my wife often falls asleep after I do and she doesn't report any kind of weird breathing issues for me, nor snoring). But even though I generally sleep 8 hours a night, I am quite tired during the day and I often have trouble focusing. At night, I fall asleep like a log and I don't wake up during the night.
> The morale of the story, you need to sometimes tackle your own health and take matters into your own hands The frustrating thing for me is that doing so is often labeled as being anti-science, when the truth is, this guy was actually doing the science himself. It's not anti-science to take your health into your own hands. It's anti-outdated-underfunded-medical-systems.
> It's not anti-science to take your health into your own hands. It depends on how exactly it was taken into one’s hands right? Can’t really know if it’s pro-science or anti-science until you see what a person is doing. Most people do pretty irrational stuff, based on stories of a doctor in my family.
The doctor gets self reported snapshots from a patients memory. It amuses me as an engineer that they detect what seems irrational, but never follow up on it in any meaningful way or ever attempt to observe the actual reality of their patients lives.
The lack of time for real follow up is understandable, but the unwillingness to accept that this fact, more than anything, colors the way they see their patients is a little maddening. So, I always find it understandable when someone decides they'd rather take their care entirely into their own hands.
Sleep apnea is strange. Good news! We have a diagnosis, sleep apnea. You're bad at sleeping now, the thing everybody has to do all night long every day since birth. The solution is to wear a modern iron lung whenever you want or need to sleep forever. Many times it's because people are overweight but you aren't. Is that really all there is for treatment? No throat exercises or therapeutic sleeping positions? No diets…
Google it for yourself or https://www.sleepcycle.com/sleep-apnea/optimal-sleep-positio....
Earlier quoted context omitted.
On the flipside, there are also a small selection of unproven treatments that work better than standard care.
Can you share an example of an unproven treatment that works better than standard care?
I tried multiple doctors, treatments, tips etc and etc nothing worked. I finally visited a homeo doctor who diagnosed it right. It's deviated septum which is causing sinus infections because of regular coconut water intake. I just stopped drinking coconut water and it's been 10+ years and not another recurrence of sinus so far.
Proper diagnosis is hard and requires skill. The OP figured it by himself and in my case, someone did.
Sleep apnea is strange. Good news! We have a diagnosis, sleep apnea. You're bad at sleeping now, the thing everybody has to do all night long every day since birth. The solution is to wear a modern iron lung whenever you want or need to sleep forever. Many times it's because people are overweight but you aren't. Is that really all there is for treatment? No throat exercises or therapeutic sleeping positions? No diets…
Diagnosed at 24 with sleep apnea. I tried a bunch of things. What worked for me was regular cardio exercise and daily doses of high absorption magnesium. The magnesium is absolutely unproven pseudoscience nonsense that can't possibly work. But if I stop taking it my sleep suffers massively.
With so many systems in the body, you really have to wonder how many people actually have a _single_ issue that's causing _all_ their problems. It's much more logical that your experiences are the result of emergent phenomenon from the interaction of multiple issues. In that case, perhaps you're simply treating a secondary condition that's vastly improving the outcomes with what you view as your primary condition?
Maybe that's the only risk of short-circuiting the medical establishment, that now the author is satisfied with the solution he found for the central apnea which is one symptom, without being concerned with solving its cause (that could have other consequences)?
How strange that the only way to get one of those devices is via the NHS. Usually if you have to wait too long, or something isn't available in the UK, there's a private medical service more than willing to take your money!
OP here. I purchased the first device privately from resmed (one of the main cpap vendors), but the actual one i needed was an ASV and this was refused privately and only available via the NHS. Reading between the lines, I expect the NHS is one of their main customers and had ordered a huge backlog, so they got priority.
Moreover it could easily be coupled with the sensors and soft required to work as a sleep analyzer, in order to help diagnose central apnea vs obstructive apnea, etc.