Live data from Hacker News

Night of the living brain fog dead or how I hacked myself better via open source

decodebytes.substack.com

201–210 of 334 posts

Re: Night of the living brain fog dead or how I hacked myself better via open source

#201

I have a chance of having sleep apnea since my sleep is atrocious and extremely light, but I'm not overweight and I also can't sleep on my back or side, meaning a machine with mask ain't gonna cut it. Thus I've not even bothered. Also I wouldn't fall asleep in a sleep study location (I can't sleep outside of my bed, with any noise, lights, etc)

There are home tests. That’s how my sleep apnea was diagnosed.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#202
post #46

Earlier quoted context omitted.

... That's not the flipside, that's the "exception to the rule". Of course the system's not perfect, but people don't live way longer now because our medicine is worse than before...

"The exception proves the rule" refers to a logical/legal situation where a rule has been posted with specific exceptions. A sign that says "no parking on Sundays" logically implies that parking is allowed all other days. The concept you're looking for is closer to "any statistical group has outlier cases".

I did not use the word "proves"; the "exception to the rule" fallacy is when you see a singular case violating some rule and you use that to assume the rule doesn't hold in general, or you make generalizations from a singular case.

The commenter I'm replying to is advocating for homeo- / naturo-pathy because of some statistically insignificant and probably actually not causally based relationship they've witnessed, which is generalizing from a ~singular case

Re: Night of the living brain fog dead or how I hacked myself better via open source

#204
> This meant I would have no way of seeing results for myself, instead I would to pay out £150 each time to get the consultant to analyse for me.

I think I would have just paid the money (at least for a few months to see if I'm getting my money's worth) rather than going through all that trouble of trying out different machines, etc.

That's just me though. I realize some people are more comfortable with taking matters into their own hands and enjoy getting into the nitty gritty.

I'm also the kind of person who would much rather hire a trusted plumber, mechanic, etc to just get it done than muck about it myself.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#205

"the National Health System have yet to even send me a letter" That's the crucial point here. Health care failed him, but luckily he was rich enough to privately purchase multiple medical devices just to try it they might help.

Considering how terrible sleep apnea is for the health, you would think that all healthcare systems and insurance companies would take it seriously. The costs of treating heart problems and stroke are much worse. But in practice it seems like no healthcare system puts in more effort than begrudgingly ordering a sleep test and then maybe a basic cpap after much hesitation. There are stories of people literally begging…

Well, just to offer some pushback in the thread, I can imagine one reason why.

My father has sleep apnea, he is overweight, a heavy smoker and I reckon his daily intake of coffee could kill a small rodent. We are Spanish and public healthcare has blessed us with a CPAP machine...

That he just won't use. He refuses to, complains that he feels too uncomfortable with it. I can't recall the last time he slept 8 hours in one go.

And I wonder how common that is. The machine is noisy, does look like pulled out of a teenage horror movie and takes accustoming to. There is heavy friction for its use and that might be a serious problem to consider.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#206
post #198
post #168

Anyone got any other experiences with things that cause brain fog? I don't think I have sleep apnea (my wife often falls asleep after I do and she doesn't report any kind of weird breathing issues for me, nor snoring). But even though I generally sleep 8 hours a night, I am quite tired during the day and I often have trouble focusing. At night, I fall asleep like a log and I don't wake up during the night.

You might be getting poor sleep and there are many reasons that might be happening. Then there is also depression or hormone problems. For me personally it tends to be caffeine preventing me from getting good sleep, which in turn makes me want to take caffeine to focus more, which prevents me from getting good sleep, rinse repeat.

It's not depression - I've had that a couple of years ago, I'm not feeling anything remotely similar.

I don't think caffeine is an issue. I try not to drink coffee on weekends and I still feel like this on Monday

Re: Night of the living brain fog dead or how I hacked myself better via open source

#207

Earlier quoted context omitted.

> What's the cheapest wearable or device that can probably tell you if you have apnea? Years ago I was once concerned I might have had sleep apnea. I did see a doctor, who said I almost certainly didn't have it. I also bought a $40 pulse oximeter that could do logging, and taped it to my finger over a couple nights. I didn't see my oxygen level drop below 90% (or something, I can't remember), so I figured I didn't ha…

Smart Watches often can track sleep and approximate blood oxygen levels. Does anyone know how accurate Samsung or Apple Watch are?

You might want to check this youtube channel:

https://www.youtube.com/@TheQuantifiedScientist

Reviews of health tracking devices, often comparing their performance with medical equipment.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#208
post #183
post #174

Earlier quoted context omitted.

Same. Also not super tired, can go through with coffee, etc. But I don't feel rested when I wake up, almost never. [1] The things I never tried: giving up caffeine completely, eliminating sugar completely, eliminating carbs completely, losing 20 kgs (I'm a bit overweight like BMI 27). What didn't work: Ritalin, Venvanse, Modafinil... [1] I feel like it could just be "stress" ie don't know how to relax and let go (bee…

Unfortunately, there are many things it could be. Doctors are only so helpful (and most are even less so) Here's a list of things I tried that sorta helped with my tiredness spells. Recommend doing any of these changes separately: - Sugar fast for 4 weeks (helps reset your cravings) - Switched from coffee to green tea - Reduced caffeine intake to one a day or 3x a week - Acupuncture - 15 min walks or bike ride every…

Sugar fast.... Seems impossible. Most I've done is one week and it was absolutely horrible. I was always hungry, despite eating a lot.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#209
“The John Snow Project has set out some of the growing body of evidence that suggests COVID-19 is having serious adverse long-term impacts on human health. This evidence is, however, being subjected to the same ‘doubt as product’ approach that was successfully deployed by the tobacco lobby to slow the introduction of public health measures to protect people from the harms of smoking, and the underlying economic incentive is similar to the rationale of the cigarette companies. While attendees at the World Economic Forum in Davos had to be vaccinated, wear masks, undergo regular COVID-19 tests, and used advanced air ventilation, filtration and treatment to reduce their risk of infection, the costs of such protocols to protect the general public are widely viewed as prohibitively expensive.”

https://johnsnowproject.org/insights/merchants-of-doubt/

Re: Night of the living brain fog dead or how I hacked myself better via open source

#210
post #27

Sleep apnea is strange. Good news! We have a diagnosis, sleep apnea. You're bad at sleeping now, the thing everybody has to do all night long every day since birth. The solution is to wear a modern iron lung whenever you want or need to sleep forever. Many times it's because people are overweight but you aren't. Is that really all there is for treatment? No throat exercises or therapeutic sleeping positions? No diets…

Nothing works anywhere near as well as PAP therapy. Certainly not diets (overweight is often an effect of apnea, not a cause). Sleeping positions can help in the case of positional apnea, but certainly not for everyone. Botox injections anywhere will have to be repeated regularly. Fucking with the uvala (like in UPPP surgery) can actually worsen sleep apnea and has all kinds of nasty infection and side effect risks.

PAP therapy works. The biggest problem with it is that it has a bad reputation, which is largely caused by doctors and sleep clinics not doing their fucking jobs. Patients are often sent home with a CPAP machine, titrated to some semi-random setting which happened to be fine for the night of their sleep study in an artificial environment. And that's it. Goodbye and good luck. That's such a messed up way of treating people with a life-long ailment ...

Post reply on HN