Night of the living brain fog dead or how I hacked myself better via open source

Post by LoganDark » Mon, Apr 10, 2023, 4:19 PM UTC

StrictDabbler wrote: post #87

dekhn wrote: post #77

Earlier quoted context omitted.

This isn't science, it's medicine. Many parts of medical diagnosis are not completely scientific. It's also easy for people managing their own health to make mistakes that professionals would not.

Yes, absolutely. It is worth practicing medicine when the treatment is inherently harmless and going through the medical system has been bottlenecked. Nobody is killed (or really harmed) by trying a CPAP and the waiting list for sleep clinics can be months or years long, not to mention the expense. It's one of the rare medical interventions that is relatively safe for an individual. Probably should be otc.

Post by Enginerrrd » Mon, Apr 10, 2023, 4:21 PM UTC

jrm4 wrote: post #98

yosito wrote: post #13

> The morale of the story, you need to sometimes tackle your own health and take matters into your own hands The frustrating thing for me is that doing so is often labeled as being anti-science, when the truth is, this guy was actually doing the science himself. It's not anti-science to take your health into your own hands. It's anti-outdated-underfunded-medical-systems.

Exactly this. I've also dealt with the whole CPAP thing, and the extent to which the whole industry is obviously infantilizing-for-profit is infuriating. Over the years, it's gotten increasingly difficult to just "buy the supplies yourself," (aka easily and/or cheaply) and the extremely condescending "reasoning" we get is "oh, it's medical equipment and therefore dangerous so we get to control it." And here , having…

Post by meindnoch » Mon, Apr 10, 2023, 4:22 PM UTC

Enginerrrd wrote: post #113

jrm4 wrote: post #98

Earlier quoted context omitted.

Exactly this. I've also dealt with the whole CPAP thing, and the extent to which the whole industry is obviously infantilizing-for-profit is infuriating. Over the years, it's gotten increasingly difficult to just "buy the supplies yourself," (aka easily and/or cheaply) and the extremely condescending "reasoning" we get is "oh, it's medical equipment and therefore dangerous so we get to control it." And here , having…

>There's no remotely significant way that this thing will hurt you even if used improperly Eh... I've talked to RT's and the occasional pulmonologist enough about ventilators out of idle curiosity to learn that the pressures involved do need to be carefully set within certain envelopes to minimize risks, and I'm not quite as confident as you are in this statement.

Post by oefnak » Mon, Apr 10, 2023, 4:24 PM UTC

tablespoon wrote: post #29

> Night of the living brain fog dead or how I hacked myself better via open source The use of "hacking" in the title is unfortunate, since it strongly brings to mind software engineers confidently loading up on weird supplements to do stuff like "boost intelligence" without much understanding of what they're doing. This article is very much not that, and is very sensible.

Post by [deleted] » Mon, Apr 10, 2023, 4:26 PM UTC

orzig wrote: post #20

fxtentacle wrote: post #15

"the National Health System have yet to even send me a letter" That's the crucial point here. Health care failed him, but luckily he was rich enough to privately purchase multiple medical devices just to try it they might help.

You’re not wrong on the facts, but if you’re implying that we should not feel good about this story, I disagree. One crab has managed to climb out of the bucket. The rest of us should celebrate for a minute and then redouble our efforts to get everyone to the same place, leveraging the lessons he’s passed on. Upwards!