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Night of the living brain fog dead or how I hacked myself better via open source

decodebytes.substack.com

31–40 of 334 posts

Re: Night of the living brain fog dead or how I hacked myself better via open source

#31
post #22

Earlier quoted context omitted.

CBC won't show low ferritin. You can feel awful if your hemoglobin is OK but your ferritin is low.

They should. At least here they do. I know this is how we detected my mom's hemochromatosis.

A CBC is a specific and very common lab test and does not include a ferritin level. It’s a separate test.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#32
post #27

Sleep apnea is strange. Good news! We have a diagnosis, sleep apnea. You're bad at sleeping now, the thing everybody has to do all night long every day since birth. The solution is to wear a modern iron lung whenever you want or need to sleep forever. Many times it's because people are overweight but you aren't. Is that really all there is for treatment? No throat exercises or therapeutic sleeping positions? No diets…

I read a book called Breath by James Nestor, it’s all about the benefits of nose breathing. Anecdotally this has completely fixed my sleep apnea/ snoring/ energy levels/ etc. Highly recommended!

Re: Night of the living brain fog dead or how I hacked myself better via open source

#33
post #5

Okay, serious question: The author of this blog post sleeps with his partner, and then discovered he spent 20 seconds of each minute gasping for breath, 40 times per hour. (Something like ~this). How did his wife not notice and tell him? Now I'm paranoid that I have sleep apnea. What's the cheapest wearable or device that can probably tell you if you have apnea?

> What's the cheapest wearable or device that can probably tell you if you have apnea?

Years ago I was once concerned I might have had sleep apnea. I did see a doctor, who said I almost certainly didn't have it. I also bought a $40 pulse oximeter that could do logging, and taped it to my finger over a couple nights. I didn't see my oxygen level drop below 90% (or something, I can't remember), so I figured I didn't have it.

My understanding is oxygen level is one of the most important factors to track for sleep apnea. I am also super-skeptical of movement-based sleep tracking. Since my impression is it's typically half-assing with cheap sensors that aren't very suited to the task (on their own).

Re: Night of the living brain fog dead or how I hacked myself better via open source

#35
Some people seem to have luck by taking 100mg vitamin B1 before sleep for central apnea:

https://www.cpaptalk.com/viewtopic/t176555/Found-a-vitamin-t...

Given B1 seems to be working similarly to acetazolamide but appears to be much safer, I am wondering if anyone is using it for altitude sickness? Doping up a few grams of thiamine just before climbing?

Re: Night of the living brain fog dead or how I hacked myself better via open source

#36
post #27

Sleep apnea is strange. Good news! We have a diagnosis, sleep apnea. You're bad at sleeping now, the thing everybody has to do all night long every day since birth. The solution is to wear a modern iron lung whenever you want or need to sleep forever. Many times it's because people are overweight but you aren't. Is that really all there is for treatment? No throat exercises or therapeutic sleeping positions? No diets…

>No throat exercises or therapeutic sleeping positions? No diets? No botox injections for your uvula or a daily pill to obviate breathing while sleeping?

Since OP's apnea is not obstructive, sleeping position, botox, etc. won't make a difference.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#37

Earlier quoted context omitted.

Blood panel was done

CBC won't show low ferritin. You can feel awful if your hemoglobin is OK but your ferritin is low.

Any doctor worth their salt should and will do this if you come in complaining about fatigue. They did with me. Someone presenting specific symptoms isn't going to get just a CBC.

Re: Night of the living brain fog dead or how I hacked myself better via open source

#38
Here's a story.

We lived in a "commie block" and we could hear our neighbor snoring super loudly during summer when we all had our windows open for the night.

One night, we heard him repeatedly stop breathing and then gasp for breath. So when I've seen him the next day by the elevator I told him: "Sorry to bother you, but we can hear you snoring" and he has gotten super apologetic. But I continued, "yeah, we are used to it so don't sweat it. The trouble is, you are stopping breathing recently. You may have sleep apnea. Go see a doctor, STAT. You don't want your brain to die off due to a lack of oxygen."

He told me in a couple of weeks he's got a CPAP and is working to shed some weight off. In a year he went back to a more normal weight.

He also started dating our neighbor. Curse those open windows... :-)

Re: Night of the living brain fog dead or how I hacked myself better via open source

#39
post #17

Earlier quoted context omitted.

> It's not anti-science to take your health into your own hands. It depends on how exactly it was taken into one’s hands right? Can’t really know if it’s pro-science or anti-science until you see what a person is doing. Most people do pretty irrational stuff, based on stories of a doctor in my family.

Experiments are science, and if we knew how they’d turn out beforehand they wouldn’t be experiments. Sort of definitionally you can get pretty weird or unsafe and if you’re comfortable with it not working it’s still a totally valid experiment.

Experiments are potentially science. Not all experiments are done in a scientific manner.

(And even then, experimentation is only a part of the scientific process.)

Re: Night of the living brain fog dead or how I hacked myself better via open source

#40
post #27

Sleep apnea is strange. Good news! We have a diagnosis, sleep apnea. You're bad at sleeping now, the thing everybody has to do all night long every day since birth. The solution is to wear a modern iron lung whenever you want or need to sleep forever. Many times it's because people are overweight but you aren't. Is that really all there is for treatment? No throat exercises or therapeutic sleeping positions? No diets…

I read a book called Breath by James Nestor, it’s all about the benefits of nose breathing. Anecdotally this has completely fixed my sleep apnea/ snoring/ energy levels/ etc. Highly recommended!

Wait, people aren't breathing through noses?
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