11–20 of 334 posts
Okay, serious question: The author of this blog post sleeps with his partner, and then discovered he spent 20 seconds of each minute gasping for breath, 40 times per hour. (Something like ~this). How did his wife not notice and tell him? Now I'm paranoid that I have sleep apnea. What's the cheapest wearable or device that can probably tell you if you have apnea?
Okay, serious question: The author of this blog post sleeps with his partner, and then discovered he spent 20 seconds of each minute gasping for breath, 40 times per hour. (Something like ~this). How did his wife not notice and tell him? Now I'm paranoid that I have sleep apnea. What's the cheapest wearable or device that can probably tell you if you have apnea?
The frustrating thing for me is that doing so is often labeled as being anti-science, when the truth is, this guy was actually doing the science himself. It's not anti-science to take your health into your own hands. It's anti-outdated-underfunded-medical-systems.
That's the crucial point here. Health care failed him, but luckily he was rich enough to privately purchase multiple medical devices just to try it they might help.
> The morale of the story, you need to sometimes tackle your own health and take matters into your own hands The frustrating thing for me is that doing so is often labeled as being anti-science, when the truth is, this guy was actually doing the science himself. It's not anti-science to take your health into your own hands. It's anti-outdated-underfunded-medical-systems.
Yup, it is. Because like a cargo cult, most of the external signs are similar. The difference is in the depth of knowledge used, the rigor applied to the evidence, whether the person is actively avoiding or seeking confirmation bias, etc. So, yes, much of the time, it is actually anti-science.
That said, there is no reason to hide a person's own data from them. Even if statistically, they are more likely to abuse it.
The fact that he had to go get a gray-market machine hacked to use open-source to get his own data is unconscionable. It should simply be required that all medical devices have an easy method to provide data to the user/patient, such as a Patient_SDCard_Slot, or Patient_USB_port. Obviously it wouldn't provide access to the internals, but provide a parallel output data stream that they could use or not use as they choose.
> The morale of the story, you need to sometimes tackle your own health and take matters into your own hands The frustrating thing for me is that doing so is often labeled as being anti-science, when the truth is, this guy was actually doing the science himself. It's not anti-science to take your health into your own hands. It's anti-outdated-underfunded-medical-systems.
It depends on how exactly it was taken into one’s hands right? Can’t really know if it’s pro-science or anti-science until you see what a person is doing. Most people do pretty irrational stuff, based on stories of a doctor in my family.
> The morale of the story, you need to sometimes tackle your own health and take matters into your own hands The frustrating thing for me is that doing so is often labeled as being anti-science, when the truth is, this guy was actually doing the science himself. It's not anti-science to take your health into your own hands. It's anti-outdated-underfunded-medical-systems.
I am not one to defend doctors too much as I did have a moment, where a whole series of trained professionals missed something obvious ( in retrospect ) to the point that made me question whether they were all just trying to drain my insurance as much as they could. It is a problem, as we are still learning how our bodies really work.
That 'sometimes' is important. You want to know the line where supplements and blinds are no longer sufficient.
The word iron did not show up a single time in this article. It is extremely important to make sure your iron and ferritin levels are sufficient or you will feel tired and depressed all the time.
Blood panel was done
"the National Health System have yet to even send me a letter" That's the crucial point here. Health care failed him, but luckily he was rich enough to privately purchase multiple medical devices just to try it they might help.
One crab has managed to climb out of the bucket. The rest of us should celebrate for a minute and then redouble our efforts to get everyone to the same place, leveraging the lessons he’s passed on. Upwards!