Hacker News Board Hacker News, browsed like a classic message board
Live data from Hacker News

An Update on Dianna's Health (Physics Girl) [video]

youtube.com

Post reply on HN
Print view View original

101–110 of 117 posts

Re: An Update on Dianna's Health (Physics Girl) [video]

#101

Post by BenFranklin100 »

Semaphor wrote: post #76
BenFranklin100 wrote: post #36

[flagged]

A streamer I watch has autoimmune diseases and CFS. Since she got Covid last year, they both got worse. Not even close to what’s the case here, but still enough to force her to take extended breaks more often than usual. And for more anecdotes, "extremely atypical"? Extreme fatigue is pretty much the most common symptom of long COVID I heard of, why would that be atypical?

You miss my point. You are assuming this has something to with COVID. Given the high prevalence of COVID, it might not at all. Do the Bayesian statistics.

Re: An Update on Dianna's Health (Physics Girl) [video]

#102

Post by Semaphor »

BenFranklin100 wrote: post #101
Semaphor wrote: post #76

Earlier quoted context omitted.

A streamer I watch has autoimmune diseases and CFS. Since she got Covid last year, they both got worse. Not even close to what’s the case here, but still enough to force her to take extended breaks more often than usual. And for more anecdotes, "extremely atypical"? Extreme fatigue is pretty much the most common symptom of long COVID I heard of, why would that be atypical?

You miss my point. You are assuming this has something to with COVID. Given the high prevalence of COVID, it might not at all. Do the Bayesian statistics.

You ignored half my message.

Re: An Update on Dianna's Health (Physics Girl) [video]

#103

Post by dharmab »

trogdor wrote: post #83
dharmab wrote: post #78

Earlier quoted context omitted.

I had a serious, one-off injury in 2018 that would have wiped out about half of that if not for my employer sponsored care. US healthcare is extraordinarily expensive.

If you hadn’t had employer-sponsored healthcare, wouldn’t you have purchased health insurance through the Marketplace?

It's significantly more expensive with higher deductibles and copays and smaller networks.

Re: An Update on Dianna's Health (Physics Girl) [video]

#106

Post by pkaye »

zaroth wrote: post #50
pkaye wrote: post #35

Earlier quoted context omitted.

I believe the recent No Suprises Act no longer allows balance billing for emergency care or when an out-of-network provider is working at an in-network facility. https://www.consumerfinance.gov/ask-cfpb/what-is-a-surprise-...

True! It eliminated balance billing for almost everything except for land ambulances. Got a $2,200 ambulance bill for taking my daughter 6 miles that was balance billed last year after insurance paid $600. Don’t know how land ambulances in particular managed to avoid being covered by the act, but just something to keep in mind if you have a non-critical injury and don’t need an ambulance.

Some progress is better than none. Hopefully ambulances can be added in the future. One thing though I heard is ambulance services in rural area are barely solvent so just eliminating balance billing may put them under. Not sure if a better approach to funding is taxes or have insurance cover it.

Re: An Update on Dianna's Health (Physics Girl) [video]

#107

Post by mat_epice »

Brian_K_White wrote: post #96
mat_epice wrote: post #77

Earlier quoted context omitted.

Let me tell you: $325k/yr is not enough to manage a debilitating health condition that requires constant care. For a creator of her size, patreon takes 12% right off the top. ($39k) In addition, there is a transaction fee of 2.9% + $0.30. ($9.5k + $32.5k = $42k) Then you have to pay taxes. Self employment taxes on $283k are $26.5k. Federal/state/local income taxes are $82k. 189k of your earnings are GONE. So, you’re…

"$325k/yr is not enough" ...and so definitely needs your charity more than people with only $25k/yr.

That was never said.

Re: An Update on Dianna's Health (Physics Girl) [video]

#108

Post by mat_epice »

trogdor wrote: post #81
mat_epice wrote: post #77

Earlier quoted context omitted.

Let me tell you: $325k/yr is not enough to manage a debilitating health condition that requires constant care. For a creator of her size, patreon takes 12% right off the top. ($39k) In addition, there is a transaction fee of 2.9% + $0.30. ($9.5k + $32.5k = $42k) Then you have to pay taxes. Self employment taxes on $283k are $26.5k. Federal/state/local income taxes are $82k. 189k of your earnings are GONE. So, you’re…

Even assuming that your figures are correct, I am not sure how you can conclude that $135k/year take-home is insufficient to support a couple through a catastrophic health issue. She is apparently in her 30s. Same with me. I pay for an excellent Marketplace health insurance policy. My premium, annualized, is around $6,500, and my annual out-of-pocket maximum is $8,000. That’s $14,500 a year. Double that to liberally…

Insurance is not the only health care expense. Her level of illness indicates need for round-the-clock supervision, which could be satisfied by a nursing home at $10k per month, which would allow her husband to work. That’s a pretty miserable existence, so home health aids are more common, which augment the time family spends caring for the sick person. That can easily cost $5k/month or more to just cover enough time to hold a job, go to school, or just sleep most nights without worry.

Re: An Update on Dianna's Health (Physics Girl) [video]

#109

Post by zingababba »

During my first round of COVID I suddenly developed Terry's nails and extreme exercise intolerance.

The tips of my fingernails were bands of dark red and the rest of my nail bed was completely white. I showed it to something like 5 different doctors and was shrugged off every time. I also started to develop skipping heart beats that got so bad it was happening hundreds of times a day.

Prior to COVID I was highly active 6 days a week and had been for nearly a decade. After COVID I was finding it hard to exercise once or twice a week. This went on for years, all the while I was trying to figure out WTF was going on with me. Eventually I started supplementing copper and my heart issues went away completely within a week. I then started to supplement Iron and my nail beds started to fill back in.

After a month of supplementing I got my Iron/Copper levels checked out of pocket and my ferritin was below range and my copper was just in range. I don't know if I was susceptible to this and COVID kicked me into this territory or what but man was it a shitty ride.

Re: An Update on Dianna's Health (Physics Girl) [video]

#110

Post by taylorfinley »

keizo wrote: post #93
taylorfinley wrote: post #54

I went to high school with Dianna and was good friends with her older sis. They were both super genuine and truly wonderful people back then. I saw this on social media a few days ago from mutual friends, it's really sad to hear how much she's been impacted. Really heartening to see this community cares too. I've seen a lot of go-fund-me grift over the years and am usually an extremely skeptical person, but if Dianna…

I know taylor from high school and trust him. And know many that know Dianna. I would trust whatever support they get will go to good use. Also, taylor we going to 20 yr this summer? :| :) good to see you on this corner of the internet.

Woah, keizo! Great to hear from you. Man that 20 years snuck up on me quick, I just might have to try to make it home.
Post reply on HN