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Poor sleep drove me insane, and my long path to recovery

writing.samsonhu.com

301–310 of 370 posts

Re: Poor sleep drove me insane, and my long path to recovery

#301

Without immediate access to at-home sleep test kits, could something like Sleep as Android [1] (which claims to record breathing as well) be used to find out, in a first approximation? [1] https://sleep.urbandroid.org

No because the diganostic criterea is nasal restriction + sp02 decrease. Or microarousals scored manually by a specialist from an ecg. You need a physical device measuring these signals

Re: Poor sleep drove me insane, and my long path to recovery

#303
post #87

I'm glad you found the root cause and were able to fix the issues. When I started reading this, I was shocked how that workplace exploited you to the brink of your existence. To the point you lost your identity. I can relate to this, running from one fire to the next, a constant race, while the managers laugh at the margin they achieve with low staff. The extra value you create for the price of your finite time and h…

We exist in constant competition with one another for status and worth. But thankfully in this part of my career I have more choice as to what I want to do / the level I need to sacrifice.

Re: Poor sleep drove me insane, and my long path to recovery

#304

Thanks for sharing! Sleep is the most important way for our bodies to rest, and I also have stuggled with sleep in the past. Luckily, I was able to effectively improve my sleep through getting some exercise. Your article provides a helpful approach for those who are having difficulty improving their sleep. When all else fails, it's important to consider seeking more professional treatment.

Yes one thing that I didn't emphasize enough was that I had a team of specialists treating me:

- An ENT and a consulting ENT for a second opinion

- A oral surgeon specializing in sleep apnea

- Two sleep medicine doctors

- Two allergists ( one for shots, one for consult )

- Multiple GP's from one medical

- A gastroenterologist that did an upper gi endoscopy

My message I tried to convey is that you need to own the entire process though. none of the people above will do it for you or do their job beyond their specialty

Re: Poor sleep drove me insane, and my long path to recovery

#305

> I had reached a stage of mental illness. One that is not aesthetic and talked about to spread awareness. But one where people would avert their eyes. This period was a dark era in my life. This is actually all mental illness, we just seem to be really bad at dealing with it as a society. It's quite shocking how little empathy or support people seem to have for "unfashionable" mental illness.

Yeah. Kanye is a roscharch test. Mental illness is not pleasant or even easy to pity. It will offend you. It can be disturbing, violent, and insane. I have no ideas, this is just the way things are

Re: Poor sleep drove me insane, and my long path to recovery

#306

This is quite raw and I'm actually somewhat afraid to share this. But I think sleep apnea is criminally under-discussed and underdiagnosed. It can f your life up sideways and can take years to diagnose. So sharing my story and hope I can advocate for it. If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you. You must fix the root cause

One detail to add that I think was missing. My message is you need to own your diagnosis and treatment. But much of the work has to be done by doctors in partnership. These doctors do not have time to direct your treatment outside their specialities, so you need to own the entire process.

I had a team of specialists:

- Sleep: Dr Sinha (primary), AXG Sleep Diagnostics (for psg), Lofta, and Night Owl

- ENT: Dr. Gerald Kangelaris (nasal surgery), Dr Andrew H. Murr (consult)

- Allergist: Dr Opal Gupta (primary) and Dr Carmen Choy (amazing doctor! consult)

- Gastroenterologist: (upper gi endoscopy), unnamed as I dont recommend

- Sleep apnea surgical expert: Dr Kasey Li (triple board certified, best in the world)

- Primary care (One Medical)

Re: Poor sleep drove me insane, and my long path to recovery

#307

Earlier quoted context omitted.

The intensity of my sleep apnea varies from night to night, and you might be similar? Based on oxygen levels, mine also varies from subclinial to "medium" apnea. I was deemed not to have sleep apnea based on the take-home test or the in-hospital test... but I wore my oxygen-logging ring during the in-hospital test to check it was calibrated to the hospital's equipment (it was), and the specialist then diagnosed me ba…

What brand is your ring? I know some doctors that would love that!

I have a "Wellue Checkme O2 wrist oxygen monitor". (The Oura ring didn't measure blood oxygen back then.)

Re: Poor sleep drove me insane, and my long path to recovery

#308
post #108

For anyone using or considering a CPAP device, you should also do some research into mandibular advancement devices (MADs). They’re basically a mouth guard that opens your airway by moving your lower jaw forward. They are lesser known than CPAPs but are much simpler and way less invasive. They’re often well suited for people who are thinner and/or have milder OSA symptoms. I couldn’t use a CPAP but using a MAD has he…

I remember my sleep doctor mentioning them as an option, but with a risk of altering the jaw's shape.

It's not really a risk. I use a MAD. In the morning I have a little insert that realigns my overbite and do 5 minutes of muscle exercises. If i don't do that i notice alignment issues when I'm chewing. If i do, it's not an issue at all throughout the day. There are studies that have shown that overbite decreases over time but it's not clear if they do the reset procedure every morning.

Re: Poor sleep drove me insane, and my long path to recovery

#309
post #108

For anyone using or considering a CPAP device, you should also do some research into mandibular advancement devices (MADs). They’re basically a mouth guard that opens your airway by moving your lower jaw forward. They are lesser known than CPAPs but are much simpler and way less invasive. They’re often well suited for people who are thinner and/or have milder OSA symptoms. I couldn’t use a CPAP but using a MAD has he…

I have severe sleep apnea and made the switch from CPAP to MAD a couple years ago. Expensive but covered. Never looked back. Much simpler on every level, works about the same. My wife confirms I don't have apnea episodes.

When you say "covered" you mean your insurance paid for it? Are you in the USA? I understand it's not covered unless you do a series of sleep studies.

Re: Poor sleep drove me insane, and my long path to recovery

#310

This is quite raw and I'm actually somewhat afraid to share this. But I think sleep apnea is criminally under-discussed and underdiagnosed. It can f your life up sideways and can take years to diagnose. So sharing my story and hope I can advocate for it. If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you. You must fix the root cause

Isn't the root cause usually obesity? So good habits and exercise may actually fix it.
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