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Poor sleep drove me insane, and my long path to recovery

writing.samsonhu.com

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Re: Poor sleep drove me insane, and my long path to recovery

#171
post #146

I recently discovered that I’m a slow metabolizer of caffeine. Via my raw 23andme data. https://you.23andme.com/tools/data/?query=rs762551 C/C genotype. https://www.geneticlifehacks.com/liver-detox-genes-cyp1a2/#C... Instead of coffee being a net positive, it actually takes caffeine 4X the time to process through my body and increases my cardiac event risk by 2X. I can drink a cup of coffee at 8am and it still impact…

Can't you drink one coffee in the morning?

Also would like a source on the 2X cardiac event risk, couldn't find that in the linked article. Big if true!

Re: Poor sleep drove me insane, and my long path to recovery

#173
Had crippling insomnia for most of 15 years. It's the worst thing that ever happened to me and I would not wish it on anyone. I'm convinced I've lost years of my life - not just in the sense of wasted time, but shortened life. But no use being bothered about it.

The mainstream knowledge is still slow to catch up, but things are better than when I was researching at the outset. All you had from online searches was boilerplate inconsistent "sleep hygiene" advice and nothing else. I took a methodological approach and cracked open some books, and spent a lot of time on google scholar / pubmed. Self-adminstered CBT-i was an important intervention, despite its flaws - you can gripe that there are blind spots (e.g. it's possible to have automatic negative thoughts through conditioning despite knowing and understanding that they are distortions, 3rd-wave approaches like MCT make it a point to handle this), but in the main, a better mental game is absolutely key. Other interventions included eliminating pornography consumption, exposure to more sunlight in the morning and daytime, limiting total time in bed, experimenting with bedding, and even dietary changes. There were others as well I can't think of right now. Basically threw the kitchen sink at it. The mistake I often see is that those afflicted will rationalize that trying interventions "will lead to anxiety". There's no reason they have to. The anxiety comes from you.

Re: Poor sleep drove me insane, and my long path to recovery

#174

Earlier quoted context omitted.

Interesting. I bet close to all young skinny people with sleep apnea must remain undiagnosed. My generalist doc basically said "if you really insist we can do a polysomnography, but I'm pretty sure you don't have it, you're young, skinny and sporty. There isn't really much that helps that you can do about it anyway". I did insist and it turned out that I do have it. The changes in life I experienced are similar to yo…

Many advice trying a CPAP device first instead of going for a sleep study if you suspect apnea for this exact reason. The sleep tests are expensive and often not accurate.

There are at home sleep tests. Basically a wristband that measures your sleep. Then you take it back to the clinic and they read the results. I don't remember how much it was but it wasn't too much.

Re: Poor sleep drove me insane, and my long path to recovery

#175
I found out I had sleep apnea mostly due to coincidence. Eventually I got jaw surgery to fix it, but there is a surprising anecdote:

Shortly after I started using a CPAP, at a networking event I met someone who worked at a mental health clinic, and he told me that many of their patients with schizophrenia had a pressure setting of 18 or 19 bars. Apparently disturbed sleep can cause some rather severe mental illness.

I was at 16 bars at the time. (I no longer use a CPAP post surgery.) About a year prior, there were a few times that I wondered if something actually happened, or if I was misremembering a dream.

It makes me wonder if some severe forms of sleep apnea can make dream context confusing enough that it's hard to bucket memories between dreams and actual events?

Re: Poor sleep drove me insane, and my long path to recovery

#176

Thank you for sharing! Skimmed for now, but saving this to read later. I've had a history as well of never getting good sleep so I'm curious to see what your experience was and the steps you've taken. A few things I've done that have helped a bunch: - Using BreatheRight nasal strips every night - Latex earplugs ("Mack's Pillow Soft Silicone Earplugs"). I could never sleep with foam earplugs in my ears but these are g…

Thanks for the earplug recommendation. I don't have sleep apnea but I'm a very light sleeper so the slightest step or a car going by makes me wake up. I assume this was very beneficial when my ancestors would be attacked by a neighboring tribe or a mountain lion but it's not so great now. lol.

I usually just use CSV earplugs but my hears wake up hurting almost every morning. I considered using the Bose sleep ear buds but they're a bit expensive so I'm going to try these out first!

Re: Poor sleep drove me insane, and my long path to recovery

#177

Very useful read. My friend, an osteopath, says neck issues also can create breathing obstructions, and it makes a good deal of people wake up in the middle of the night and stay awake, even though they don't even think it's a problem. Symptom to watch for: you wake up and your nose is stuffy, can't breathe through it, but there's no snot. And in 5-15 minutes it gets clear. If you have it, it means lymph flow out of…

Strange, I often have this. Feels like it's related to more to smoking, drinking, dust, lack of fresh air.

My doc told me once you're better off rinsing your noise with salt water and then positioning your head in a certain way to let gravity do its thing and it works wonders even without rinsing the nose. Avoid OTC nose sprays at all cost!

Osteopaths gave me nothing but witchcraft over a period of 15 years: "your lower back pain is due to the EM rays coming out of your computer screen. Spend more time outside. And let me work on your energy points. That will be $150 please. Oh and PS - don't even try running, it will destroy you even more".

In the end all it took was advice from a good physio (strengthen your core). And I can now run a half marathon with no problems, despite one leg being 15mm longer than the other which was the reason for my lower back pain. My hips weren't straight, putting stress on my core muscles.

Re: Poor sleep drove me insane, and my long path to recovery

#178

This is quite raw and I'm actually somewhat afraid to share this. But I think sleep apnea is criminally under-discussed and underdiagnosed. It can f your life up sideways and can take years to diagnose. So sharing my story and hope I can advocate for it. If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you. You must fix the root cause

> If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you Probably not what you mean, but this is untrue as there can be different causes for sleep apnea. For instance obesity, which would be helped by exercise.

Correct. Obesity is the leading cause in the US. A vast amount of anyone overweight in the US have sleep apnea, diagnosed or not.

Re: Poor sleep drove me insane, and my long path to recovery

#179
post #149
post #146

I recently discovered that I’m a slow metabolizer of caffeine. Via my raw 23andme data. https://you.23andme.com/tools/data/?query=rs762551 C/C genotype. https://www.geneticlifehacks.com/liver-detox-genes-cyp1a2/#C... Instead of coffee being a net positive, it actually takes caffeine 4X the time to process through my body and increases my cardiac event risk by 2X. I can drink a cup of coffee at 8am and it still impact…

Are there any services like 23andme that are more strict when it comes to data privacy or that allow me complete ownership of the data? I would love this type of analysis even at a higher cost but I am scared of what might happen in the future to this data on me and children

Health care providers can order genetic testing to help discover how your body metabolizes tons of things.

I recently had it done and it illuminated an entire class of anti-depressant that has very little efficacy for me.

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