More recently, Crohn's, altho that was more straightforward medically. The lead up to Crohn's was a period of working too hard and going out too much in San Francisco.
Poor sleep drove me insane, and my long path to recovery
81–90 of 370 posts
Re: Poor sleep drove me insane, and my long path to recovery
#82Thank you for sharing! Skimmed for now, but saving this to read later. I've had a history as well of never getting good sleep so I'm curious to see what your experience was and the steps you've taken. A few things I've done that have helped a bunch: - Using BreatheRight nasal strips every night - Latex earplugs ("Mack's Pillow Soft Silicone Earplugs"). I could never sleep with foam earplugs in my ears but these are g…
> BreatheRight nasal strips Never knew about these. I'm guessing you can't re-use the same strip each night? I don't have sleep issues apart from a bit of snoring and blocked nose. I might buy a pack of these to try.
Re: Poor sleep drove me insane, and my long path to recovery
#83Earlier quoted context omitted.
Good points, but also if your job is causing this amount of suffering, don’t wait. GTFO as fast as you can, otherwise you’re going to work your way into a death spiral that is even harder to get out of (poor sleep, weight gain, emotional distress, negative impacts to relationships, grinding teeth during sleep leading to dental damage, etc). Defend your sleep and well-being like you would a loved one. No one will do i…
As soon as I realized my healthy sleep and wage work were incompatible, I quit working for others permanently and have been far healthier since then. Overnight and persistent improvement. Now I sleep well and when I don’t at night I just sleep when I want to. Simple
Re: Poor sleep drove me insane, and my long path to recovery
#84This is quite raw and I'm actually somewhat afraid to share this. But I think sleep apnea is criminally under-discussed and underdiagnosed. It can f your life up sideways and can take years to diagnose. So sharing my story and hope I can advocate for it. If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you. You must fix the root cause
I agree that it’s under-diagnosed in people who have it, but it’s actually discussed very widely across social media and in person.
I have some sleep medicine professionals in my extended social circle. It’s common to hear stories of people coming in convinced that they must have sleep apnea after reading about it online, but their sleep studies are nearly perfect.
There’s one doctor in my area who opened her own clinic and pushes apnea studies very hard in advertising. Apparently they score tests differently enough that they can find some reason to prescribe CPAPs to almost everyone who comes through her office, which of course they also happily sell. It has gotten bad enough that she’s becoming well known among doctors as someone to avoid for referrals. One of the hallmarks of incorrect diagnoses is that a lot of her patients stop the _PAP machines after less than a year because they’re not helping anything.
If anyone suspects sleep apnea they should definitely look into it, but make sure you’re going to a provider aligned with your best interests.
Re: Poor sleep drove me insane, and my long path to recovery
#85This is quite raw and I'm actually somewhat afraid to share this. But I think sleep apnea is criminally under-discussed and underdiagnosed. It can f your life up sideways and can take years to diagnose. So sharing my story and hope I can advocate for it. If you have sleep apnea, no amount of sleep gadgets, good habits, exercise, will help you. You must fix the root cause
I had an at-home test that was not positive for obstructive sleep apnea so I landed on a 6-month queue for a test at a sleep lab (hello from over in Vancouver).
I've felt really discouraged by that because it's left me back at "I have no idea what's wrong". I snore (occasionally "like a banshee"), always have nasal congestion while sleeping, wake up every night once (or even twice) needing to urinate and with an extremely dry mouth, and no longer remember what a well rested sleep feels like.
Even now, I'm taking an extended time off work and hoping the lack of work stress would increase my sleep quality but to no avail. If anything, because my circumstances are keeping me away from home, my sleep has gotten even worse to the point where I'm consistently lethargic and too tired to do anything most days.
I only very recently learned about sinus obstruction after taking Affrin (for a cold) and realizing just how clear my sinus was compared to mu average day.
Everything you wrote about allergies and other self-experimentation is very helpful for awareness. I also had no idea positional therapy was a thing, which is helpful as I'm a stomach sleeper.
It has certainly given me more to understand and proceed with doctors for.
Re: Poor sleep drove me insane, and my long path to recovery
#86Thank you for sharing! Skimmed for now, but saving this to read later. I've had a history as well of never getting good sleep so I'm curious to see what your experience was and the steps you've taken. A few things I've done that have helped a bunch: - Using BreatheRight nasal strips every night - Latex earplugs ("Mack's Pillow Soft Silicone Earplugs"). I could never sleep with foam earplugs in my ears but these are g…
Re: Poor sleep drove me insane, and my long path to recovery
#87When I started reading this, I was shocked how that workplace exploited you to the brink of your existence. To the point you lost your identity.
I can relate to this, running from one fire to the next, a constant race, while the managers laugh at the margin they achieve with low staff. The extra value you create for the price of your finite time and health.
I'm angry at this injustice people have to subject themselves to.
I tried to identify a problem within myself for years, but realized this once I got closer to management...
Re: Poor sleep drove me insane, and my long path to recovery
#88Earlier quoted context omitted.
Good points, but also if your job is causing this amount of suffering, don’t wait. GTFO as fast as you can, otherwise you’re going to work your way into a death spiral that is even harder to get out of (poor sleep, weight gain, emotional distress, negative impacts to relationships, grinding teeth during sleep leading to dental damage, etc). Defend your sleep and well-being like you would a loved one. No one will do i…
As soon as I realized my healthy sleep and wage work were incompatible, I quit working for others permanently and have been far healthier since then. Overnight and persistent improvement. Now I sleep well and when I don’t at night I just sleep when I want to. Simple
Re: Poor sleep drove me insane, and my long path to recovery
#89I have a horrible snoring issue and I have some problems with burnout, "brain fog", and inability to stay focused. I have a snorelab score in the 50s and my wife kicked me out of our bedroom since she can't sleep. I did a take-home sleep study with Kaiser once but they said I just have mild disordered sleeping but no apnea. I'm not super fat or anything either (BMI = 23.9). It seems like I very likely have something…
if you have the money, Dr. Kasey Li is the best sleep apnea surgeon in the bay area, possibly the world. He is the protoge of dr Christian Guilleminaul who is the founder of sleep apnea medicine. He does MMA and EASE, both of which solve structural issues if you have narrow airways. He also won't do it unless he thinks it will truly make a difference. One friend went to him for a MMA but he turned him away and referr…
Re: Poor sleep drove me insane, and my long path to recovery
#90Earlier quoted context omitted.
But I don't wanna wear a machine! What will I tell lady friends from the bar?
There are also silicone devices which keep your tongue out of your airway by keeping it pulled outside. Studies show they work almost as well as a machine yet are much less likely to be rejected by users as opposed to a CPAP. Tongue stabilizing devices: https://www.verywellhealth.com/tongue-stabilizing-device-for...