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Amit Gupta has found a 10/10 matched donor

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Re: Amit Gupta has found a 10/10 matched donor

#91

Post by nicholasreed »

fady wrote: post #55
losvedir wrote: post #44

Earlier quoted context omitted.

All right, you're the one who finally got me. Each time Amit's story has come up on HN someone has posted a link how to join, and each time I'm closer to deciding to do so, but always got a little scared before I pulled the trigger. Now that I see Amit found a donor and the system works (my eyes teared up a little reading his post), I finally decided I need to join. So, for everyone else like me who has needed just a…

wow, and you were the one who got me! i "was" in the same boat..passed it up, but after reading your post and the follow up, i just had to signed up. good luck; eat healthy. update: just finished signing up and it took a whole 7 mins. thanks for the nudge :) http://dl.dropbox.com/u/103326/Slingshot/Pictures/Screen%20S...

7 minutes? Either your tubes are way faster than mine or I need to start reading faster.

Thanks for the push folks; it was much simpler than I expected, and now I can be excited for some snail mail!

Re: Amit Gupta has found a 10/10 matched donor

#92

Post by martincmartin »

chimeracoder wrote: post #10

> At this point, my blood type changes to the blood type of my donor. And my blood will now have my donor’s DNA, not my own. That's actually really fascinating. This perpetuates for life? This would seem to imply that a person who's received a transplant will, thirty years later, be walking around with two separate sets of DNA, as the other cells in the body presumably would not change. Given that DNA is (indirectly)…

The dichotomy does seem to create complications, unfortunately:

Overall, 75% of AML transplant patients survive year one, 50% make it through year five.

Re: Amit Gupta has found a 10/10 matched donor

#93

Post by losvedir »

fady wrote: post #55
losvedir wrote: post #44

Earlier quoted context omitted.

All right, you're the one who finally got me. Each time Amit's story has come up on HN someone has posted a link how to join, and each time I'm closer to deciding to do so, but always got a little scared before I pulled the trigger. Now that I see Amit found a donor and the system works (my eyes teared up a little reading his post), I finally decided I need to join. So, for everyone else like me who has needed just a…

wow, and you were the one who got me! i "was" in the same boat..passed it up, but after reading your post and the follow up, i just had to signed up. good luck; eat healthy. update: just finished signing up and it took a whole 7 mins. thanks for the nudge :) http://dl.dropbox.com/u/103326/Slingshot/Pictures/Screen%20S...

Hooray, glad to hear it! :-)

Re: Amit Gupta has found a 10/10 matched donor

#94

Post by kmfrk »

X-Istence wrote: post #71
kmfrk wrote: post #31

Earlier quoted context omitted.

CSI: LA did an episode about it in its earlier seasons. (As in, back when it was good.) This might be the one: http://www.csiguide.com/episodedetail.aspx?csi=157 .

Not CSI: LA but CSI, the one set in Las Vegas.

Yeah, I hit the A instead of the V, there. :)

Re: Amit Gupta has found a 10/10 matched donor

#95

Post by 97s »

superamit wrote: post #62
97s wrote: post #48

Congratulations! My life was just extended going through the same exact thing your going to go through. I am 7 months out and life is grand. Be thankful for the small things like popsicles, laughing, and cold wash-clothes when you start throwing up. Everything will be wonderful. Best of luck to you Amit!

That's awesome. Congratulations! (And jeez yeah not looking forward to the nausea in the coming week but I'll get through it.)

For sure! I assume you have already been through tons of nausea. I relapsed from my original AML treatmeat a few years later and had to undergo transplant. The chemo before the transplant was the worst I have ever had. It was my 11th round of chemo since I started with cancer back in 2008. Just sit up in the morning and eat what you can, rest a lot and always talk to everyone and ask them how their days are going. I found that hearing others pleasures made me get through my experience much easier. Plus it takes the mindset from how crappy you are feeling to how good the future will be for you.

Re: Amit Gupta has found a 10/10 matched donor

#96

Post by aptimpropriety »

Is there any data on how many actual potential donors did a sample as a result of this campaign? The 7000+ reblogs is a very impressive number - but I'd bet nowhere near all 7000 went through the process. Would those 7000 reblogs even result in 7000 potential donors?

It could provide an interesting perspective on this hot topic of 'painless activism'. While getting tested is pretty easy, there are still plenty of points of process attrition for those to drop out (or not get started).

Re: Amit Gupta has found a 10/10 matched donor

#97

Post by nbauman »

aptimpropriety wrote: post #96

Is there any data on how many actual potential donors did a sample as a result of this campaign? The 7000+ reblogs is a very impressive number - but I'd bet nowhere near all 7000 went through the process. Would those 7000 reblogs even result in 7000 potential donors? It could provide an interesting perspective on this hot topic of 'painless activism'. While getting tested is pretty easy, there are still plenty of poi…

The funnel has to start wide somewhere.

Re: Amit Gupta has found a 10/10 matched donor

#98

Post by superamit »

aptimpropriety wrote: post #96

Is there any data on how many actual potential donors did a sample as a result of this campaign? The 7000+ reblogs is a very impressive number - but I'd bet nowhere near all 7000 went through the process. Would those 7000 reblogs even result in 7000 potential donors? It could provide an interesting perspective on this hot topic of 'painless activism'. While getting tested is pretty easy, there are still plenty of poi…

It's tough to know the exact number, especially since the numbers from the drives are delayed by several weeks and some of the drives we held weren't "tagged" for me, but from what's come in so far, and the drives we ran in India, we should have registered about 10,000 people.

I haven't been able to get a number of the individuals who sent in for swab kits as a result of our efforts, so I'm not including those numbers. But I'm hopeful that with all the posts online + press (CNN, NPR, Wired, BBC, GOOD, tech blogs, etc.) that those numbers add up to something significant as well.

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