21–25 of 25 posts
So sorry. Other than my sympathy, the only thing I have to offer is that a government job might be a good bet. They usually have insane medical coverage, and usually the programming knowledge you need is not exactly state of the art.
I had a fantastic job while taking care of my Dad towards the end of his life. Emergencies would come up that required me to fly to him (he was in Boston in assisted living and nursing homes, I was in the Bay) and the company and my manager were so understanding about it. I think a job where it's understood that you may have to take a day off with very little notice, or more, will go a long way to everyone's peace of…
A board and care home can provide full time basic care, usually with monthly "rent" for the full package. Respite care is a shorter term variant for when a caregiver needs a break. These are not nursing homes because they lack staff doctors and registered nurses. They have a little economy of scale by sharing caregiving staff with several residents.
There are also hourly/daily caregivers who specialize in providing in-home care. This can get very expensive with frequent use though. There are less specialized variants for "sitters" and transportation escorts who can be a companion but don't handle as much of the patient needs.
Try to check with your hospital system or county social services, as they can probably help you bootstrap your knowledge of these topics. There also may be local support groups where other caregivers may have relevant experience and tips to share, as well as camaraderie.
Earlier quoted context omitted.
The divorce is to firewall creditors chasing OP for post death medical debt. It’s not for lack of love, but because America. OP should talk to an attorney familiar with creditor and estate law.
Thanks,I will consult a lawyer
I'm not in the states, so I cannot provide any insight on that aspect.
As Hermitian909 suggests, investing in hiring someone to assist with tasks such as cleaning, cooking, and laundry can be immensely helpful.
As you have said, your employer is supportive, don't change jobs. There is no way to predict if a new employer will be as understanding and accommodating of your situation. Having a life-threatening disease means that you may have unexpected emergencies at random times and need to leave work to attend to them.
Ask your employer to let you work remotely. It will allow you to provide better care for your partner. And, most importantly, spend more quality time with them. You never know when the time will change.
This advice may be difficult to hear, but record videos with them. Pictures are nice but videos have something magical in them(Speaking from experience.. I lost my partner a couple of weeks ago).
It is not possible for you to be with your partner constantly. If possible, consider relocating your home to be closer to either your or her family. Or you can move in with them semi-permanently for support.
I would worry less about the money, things usually work out. You also need to identify all of your options. Does your partner now qualify for SSI, disability and/or Medicaid? If they do get Medicaid. Otherwise the Affordable Care Act will limit your/their financial exposure as well. Next, you need to build a support system of friends and possibly family (if they can come over for a time to help). https://www.usa.gov/…
My partner is not eligible for SSI, disability or Medicaid because of immigration status. I will check about Affordable Care Act, but currently we are on employer provided health insurance plan. I will go through the link you have posed and check the state resources too. Have not heard of personal care assistants before, but will find out more.
Another link for you: https://rarediseases.org/policy-issues/medicaid-eligibility/