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I’ve been battling cancer last 2 years, but now only have a few days left

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Re: I’ve been battling cancer last 2 years, but now only have a few days left

#211

Earlier quoted context omitted.

I'm in NL and absolutely not concerned about the quality of health care here or what it will cost. Insurance here is very good and reasonably affordable.

For sure. PC runs in my family and I have somewhat of A/B test due to this based on family members living in different parts of the world. I had family travel to india recently to get provenge ( after exhausting all other SOC options ) because NHS said its too expensive https://www.ajmc.com/view/nice-rejects-provenge-says-treatme... It was apparently available under some clinical trial but that trial wasn't recruitin…

> triplet therapy example in my comment isn't still approved in NZ yet

I think the GP meant NL as in the Netherlands.

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#212

Earlier quoted context omitted.

For sure. PC runs in my family and I have somewhat of A/B test due to this based on family members living in different parts of the world. I had family travel to india recently to get provenge ( after exhausting all other SOC options ) because NHS said its too expensive https://www.ajmc.com/view/nice-rejects-provenge-says-treatme... It was apparently available under some clinical trial but that trial wasn't recruitin…

> triplet therapy example in my comment isn't still approved in NZ yet I think the GP meant NL as in the Netherlands.

Ah, thank you for the correction. I removed that part of my comment.

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#213
post #159
post #123

Earlier quoted context omitted.

Death is something people in my culture try not to think about much. It is considered that the dead are totally dead and gone, never to be spoken to again and spoken of with sadness and distance. People of other cultures think differently about death. Death is welcomed into the day to day life. Consciousness of death is invited, even celebrated. The dead are spoken to. This second group of people don't believe in the…

The processes in your brain and body that are your consciousness stop and you cease to be forever. After that point nothing that happens or happened matters to you because you no longer exist. Various cultures, religions, spiritual people want to deny this. They're probably happier for it, but I can only accept the dull explanation that we just stop and it's not very interesting.

From my perspective, this is what happens every night when I go to sleep. I may well "not exist" for the duration of the night. The whole connection from me-today to me-yesterday is my memory. Even the concept of physical continuation of the body (and every other belief, spiritual or materialistic) may be the induced memory. The only thing that help keep the fear of sleeping (effectively, dying) at bay is confidence that tomorrow large chunk of my today's memory will exist. And from this perspective, it doesn't matter whether this memory is bound to the single physical body or spread in the community.

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#214

Earlier quoted context omitted.

> Don’t forget people also died much earlier for thousands of years. Funnily enough not from obesity or heart disease. They died from violence, starvation, infections, plagues, travel, etc. Fats were not a cause.

This is a ridiculous point. If you halved today's average lifespan, you'd see a dramatic reduction in cancer.

> If you halved today's average lifespan, you'd see a dramatic reduction in cancer.

Not sure where the comment I’m replying to, and onwards, ever mentions cancer.

Lol

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#215
post #99
post #61

Earlier quoted context omitted.

I just feel that in general. Lying in bed on most nights I can "feel" my body disintegrating. Forever, irreversibly as I drift into cold nothingness. To end on a positive note, I still find it less terrifying than the alternative, which is living forever.

> To end on a positive note As a religious person this is actually like the most negative note imaginable for me. I mean, sure, I'll grant you life after death is "terrifying" in a "fear of the unknown" sense, but I would definitely prefer seeing deceased loved ones again and continuing to learn and progress after death vs. ceasing to exist.

An eternity to be concious is a long time. Over an infinite amount of time it can go wrong in an infinite number of ways.

Seeing your loved ones is great. Exhausting the total combination of everything you can express with english words.

Do you continue to make up new concepts forever to keep yourself entertained?

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#216
post #205
post #159

Earlier quoted context omitted.

The processes in your brain and body that are your consciousness stop and you cease to be forever. After that point nothing that happens or happened matters to you because you no longer exist. Various cultures, religions, spiritual people want to deny this. They're probably happier for it, but I can only accept the dull explanation that we just stop and it's not very interesting.

Hello, hard materialist camp representative :) That possibility makes sense, but I don't really know enough about the universe to be certain.

We don't know everything for sure. And we'll never know everything. But, we know enough up and down the physical stack through biology, chemistry and physics that there isn't some non-physical other going on in there.

Here's where the idea of life after death really breaks down for me: If you have a degenerative disease when do you get to this afterlife? Some people have effectively died long before they die, in terms of mind. If you see this as a process that is entirely physical it makes sense, it's sad but it makes sense. If you think there's something non-physical there then it poses some really hard questions: did they die already? why do personality changes happen if who a person is is contained in some non-physical thing? when they do die does the degenerated form go to the afterlife or the whole, and if its the whole then what happened to the person that was degenerative? Now throw in non-human life where we have a continuum of brain complexity down to nothing and ask similar questions - it just makes no sense. Unless you hold humans above other animals, which I find really distasteful and short sighted. Really though, if you try to explain all this you're just explaining away needless complexity to justify wishing for something that seems very unlikely.

A christian chap I used to live with told me that after we die our soul goes to heaven but its just our consciousness and not our personality, and we spend the rest of all time praising god. Well, not me, I was going to hell for not believing. Honestly, of the things he described, not sure which sounded better, but a materialistic death definitely trumps either of those options.

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#217
post #159

Earlier quoted context omitted.

The processes in your brain and body that are your consciousness stop and you cease to be forever. After that point nothing that happens or happened matters to you because you no longer exist. Various cultures, religions, spiritual people want to deny this. They're probably happier for it, but I can only accept the dull explanation that we just stop and it's not very interesting.

From my perspective, this is what happens every night when I go to sleep. I may well "not exist" for the duration of the night. The whole connection from me-today to me-yesterday is my memory. Even the concept of physical continuation of the body (and every other belief, spiritual or materialistic) may be the induced memory. The only thing that help keep the fear of sleeping (effectively, dying) at bay is confidence…

That's not a bad way to think about it, although I don't see any need to invoke community. Asimov: "There is nothing frightening about an eternal dreamless sleep. Surely it is better than eternal torment in Hell and eternal boredom in Heaven."

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#218
post #104

Almost exactly 18 months ago, my then 87 year old father, after feeling unwell and having some fluid problems with his lungs was diagnosed with stage-4 lung cancer. He turned down treatment and died at home a couple days before Christmas last year. I've come away from the experience very unhappy with the medical system. There's a long list, things that in any other industry would be prosecuted. The medical and hospic…

I'd rather not go into personal detail but I share a similar experience. The thing that really drove it home for me was when I got back home and was telling my own doctor about my experience dealing with family in the medical system and she said I was mistaken or there was a misunderstanding because that kind of thing doesn't happen. I asked why she was siding with a doctor she'd never met before instead of listening…

I'll share another story as an example. Late last year I started having trouble swallowing. It started as a discomfort, and eventually turned into trouble breathing and inability to eat solids. I went from perfectly healthy (literally ran a triathalon two months before this, and a marathon a few months before that) to unable to eat solids and bedridden within ~3 weeks.

I visited the ER a total of 5 times during those 3 weeks (having never visited the ER one time in my previous 35 years of life). Each time I was told to go home and rest. I received no care. I was unable to stay awake for more than a few hours and eventually became unable to talk and too weak to walk. I was unable to talk, eat, stay awake, and even drinking water was miserable. I lost 30 lbs in 1 month. I had to go on disability from my job (Site Reliability Engineering Manager). Life was so bad.

Over the course of the next 10 months I visited a dozen different specialists. Most of them weren't even worth the copay. A lot of doctors are absolutely worthless. I did eventually build up a team of talented and caring doctors. But 80-90% of the doctors I saw had zero care of my wellness. I am 35 years old, 6 ft, 180 lbs. I am very healthy. I eat tons of veggies, i don't do drugs, I drink rarely (socially a few times a year).

The specialists continued to rule out specific diseases within their respective line of specialty, but they kept suggesting I rule out more general stuff from my Primary Care Physician. But my primary care doctor would continue to shrug off suggestions I had and tests I requested. The fact that I had researched things on the internet would ensure that he wouldn't want to encourage it. He would shrug off symptoms telling me they were irrelevant or that I just had to deal with them or that its just part of me "getting older" (i'm only 35...). I had asked for basic tests like a metabolic panel or other broad tests to give us somewhere to look and he truly didn't care. He just wanted to send me to a different specialist and have them worry about me.

After 10 months of this I found a new primary care physician. I explain my symptoms to him and he truly listened and cared for the first time since this whole thing started. He listened to my actual problems and the timeline of the events and within one visit he took a bunch of blood and sent off for a host of tests. Within a week of that visit I discovered I had severe Vitamin D deficiency and B12 deficiency. I took vitamin supplements for these two vitamins and within a week I was about 50% better. It took about a month and I was about 80% better and another month and I was 95% better.

The cure to my disease was $20 worth of vitamins that you can buy at a corner market. I was on disability, I actually came close to dying a few times and racked up $150,000+ in medical procedures (luckily I have amazing insurance so it cost me my out of pocket max of $3,500). All of this for what was cured with vitamins and a simple blood test. A single visit from a caring doctor found this problem, but I suffered for a year because I couldn't find a doctor that cared enough to actually listen and take me seriously.

The stickler is this. I wondered about a vitamin problem at the beginning and my original primary care physician told me specifically not to take a multi-vitamin because "it might make things worse". I had also explicitly requested a general vitamin and metabolic panel on my first visit to the emergency room and also on my first visit to the PCP, of which I was denied both times. I even specifically mentioned a vitamin B12 deficiency during my first visit with the PCP, but when he asked why I suspected it and I mentioned that I read about it on the internet and my symptoms matched up, he was determined to convince me that I was wrong and it couldn't be that.

Not only did I effectively lose a year of my life and career and thousands of dollars. But I still might have some lingering permanent effects from this. Nothing like what I went through initially, but still lingering issues nonetheless.

The lack of compassion or care in the medical community astounded me. I have been very healthy my whole life and haven't had to deal with a lot of doctors. I always looked up to them as intelligent and respectable people. But this experience really gave me a more cynical experience of them. I realize they are just shooting from the hip and guessing as much as anyone else. Yes they went to medical school and have that knowledge to fall back on, but they are still just guessing. They just want to get you out the door, just like when you have someone come into your office to talk about something. You want to make that person happy, but you also just want to get them to move on and stop bothering you. Most doctors have this same approach. You are a customer, and most doctors don't truly care about you more than that. They don't see you as a person with a life, who may actually die from these decisions you are making or make have serious repercussions (like taking disability off work or suffering daily).

Yes, i'm American. So this is the American medical system I am talking about. But I doubt it's really that much different elsewhere in the world (minus the outrageous prices).

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#219

Earlier quoted context omitted.

We also have a lot of data on ways to reduce cancer before it happens. Reduce obesity. Reduce pollution. Etc. Yet we really aren't doing an awful lot about those things. Imagine for example if we had an obesity tax - everyone obese must pay 30% of their earnings into a Medicare fund. Sure it would be unpopular, but obesity would very quickly be solved, and cancer rates would plummet.

That will probably do nothing for obesity rates except fleece obese people. I’d be more interested in seeing appetite drugs like semaglutide become cheap and easy to get, something that helps instead of buying into punitive measures for absolutely everything.

It's ironic that you mention semaglutide, because it causes cancer.

Re: I’ve been battling cancer last 2 years, but now only have a few days left

#220
post #104

Almost exactly 18 months ago, my then 87 year old father, after feeling unwell and having some fluid problems with his lungs was diagnosed with stage-4 lung cancer. He turned down treatment and died at home a couple days before Christmas last year. I've come away from the experience very unhappy with the medical system. There's a long list, things that in any other industry would be prosecuted. The medical and hospic…

A big issue medical system side are basically absent family who only show up for end of life. A lot of folks threatening lawsuits etc. Few folks willing to pay much to make anything better - lots of asset transfer games. It’s usually but not always the most absent family members who get the most upset at those who are helping toilet someone etc. This has nothing to do with OPs point except there is frustration on bot…

As applied to medical decisions, this even has its own name--"Daughter from California" syndrome: https://en.wikipedia.org/wiki/Daughter_from_California_syndr...
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