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My ADHD founder toolbox

hypatia.ca

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Re: My ADHD founder toolbox

#232

Earlier quoted context omitted.

Before explaining it's important to note that even if it wasn't intended to be, comments such as this can be incredibly harmful, especially with people who are preparing too to get diagnosed, or who have recently been diagnosed. Doubting your diagnosis (or any mental health diagnosis) is an incredibly common and damaging thing for treatment. Please be mindful in avoiding activating that negative belief. It's not that…

I'm objectively responding to an anonymous comment in an internet forum, with no knowledge whatsoever about your background, sex, gender, race, age, location, or anything about your mental condition. It would be impossible for me to diagnose you or to question such a diagnosis. > comments such as this can be incredibly harmful For anyone reading this exchange, ignoring, or going against, the opinion of 30+ mental hea…

> For anyone reading his exchange, ignoring, or going against, the opinion of 30+ mental health professionals can also be harmful.

In defense of GP, I want to caveat with this: if you go to a random psychiatrist and tell them about your issues, it's quite likely you'll get evaluated for the "usual suspects", such as depression. A proper evaluation (not just initial diagnosis, but matching treatment and noticing effects) can easily take over a year, since medication used in depression treatment usually take a month to kick in, and you might need to go through several before finding one that works for you, if at all - while also dealing with some nasty side effects.

Now, imagine a person with ADHD staring this path. How likely is it they'll go through the process diligently for a year or more, until the doctor figures out something else is going on? What's more likely to happen is, the person will keep taking the meds for a while, then forget to schedule a visit before running out, run out, enter withdrawal, then be unable to schedule a visit, leave withdrawal few weeks later, and feel too ashamed to talk to that doctor again. So in a few months or more, they may go to another psychiatrist...

... who will want to re-examine them for depression just to be sure, starting the cycle anew.

I wasted a decade of my life on exactly this.

Hence my standing recommendation: if you suspect ADHD, find a psychiatrist who's actually specializing in adult ADHD (and not just has it on a list of things they can help you with). ADHD can often be diagnosed or ruled out in days to weeks; going to an ADHD specialist isn't about trying to "get your favored diagnosis" (if you feel worried about this, just be up-front with them) - it's about minimizing the chance they'll dismiss this as an option, as (from copious anecdotal evidence) most other psychiatrists do.

Re: My ADHD founder toolbox

#233
post #226

I was diagnosed last year at 35. I've tried and failed to launch my own projects since I was 13. I was a classic adhd child, at a time when diagnosis and treatment was rare. Children whose dopamine regulation issues are treated early can leave medication as their brain adjusts while still plastic. In adulthood you're stuck. I've battled addiction, terrible damage to relationships and failure to achieve my full happin…

How has the meds changed your life? And have you done anything else apart from being prescribed medication?

For the first time in my life i've not had my own brain screaming at me, 24/7, deafening my inner voice with chaotic noise.

I can think. I can maintain a single strand of thought, then act on it. I can think, feel appropriate impulse, then "do" based on that impulse without it being out competed by the noise of random impulsive dopamine sparks.

I'm the same, my emotions are the same, but there's more control. My brain isn't "hunting" for stimulation.

I've been in therapy for 10 years too.

Re: My ADHD founder toolbox

#234

Earlier quoted context omitted.

I wish I could downvote. Just because you can't see a disease doesn't remove it. You don't tell a cancer patient to just get up and exercise.

For sure, if it really is ADHD, I'm all in for treatments if they work well for the patient. It's just that so many here on HN and elsewhere think they need medicines because they have problems to focus at work or in school or while reading a book. On a slightly different note, focus and concentration is maybe not the ideal state either. Maybe creativity (new ideas, new angles, new thoughts) will be affected which in…

Saying somebody is creative because of their ADHD is like saying a person is charming because of their glasses. These things do not need to be related, they are charming and they happen to wear glasses. They are creative and happen to have ADHD.

Do not ascribe talents people have to their disabilities.

Besides, it's just a stereotype and doesn't hold for everyone with ADHD.

Re: My ADHD founder toolbox

#235
post #129

Earlier quoted context omitted.

No need to feel so bad (edited from: be so negative) about meds. They’re a crutch, sure, or maybe a wheelchair. But you wouldn’t begrudge a disabled person their wheelchair, would you? Or if you dislike thinking of it as a disability (even if there’s nothing morally wrong with being disabled): a pair of glasses. Do we really think less of people (or in this case likely ourselves) for using a wheelchair or wearing gla…

I don't care about stigma, but comparing a drug to a wheel chair is just ridiculous. I don't want to get addicted to another thing in my life, here in Europe we're quite familiar with (ab)using speed (amphetamine paste) and the idea of being on speed every single day seems pretty bad. I don't feel "more like myself" on speed and I seriously doubt most positive effect would persist after a year of using and rising tol…

> I don't care about stigma, but comparing a drug to a wheel chair is just ridiculous.

Why? Just because it comes in a pill form, instead of being conspicuous, doesn't make it any less of a help for a medical condition.

> I don't want to get addicted to another thing in my life,

The point of this comparison is that "being addicted to" ADHD meds is not in the category of "being addicted to heroine" - it's in the category of "being addicted to a wheelchair" when you could technically just use your hands to crawl around and grab things, instead of aiding yourself with technology.

> the idea of being on speed every single day seems pretty bad

Stimulant medication aren't speed, they're like "1/100 speed". It turns out that with medicine (not just psychiatric), the effects don't scale linearly or continuously with dose size. That's why those meds are helpful and safe to take in therapeutic doses, despite being technically dangerous, addictive drugs in much larger drug abuser doses.

> I seriously doubt most positive effect would persist after a year of using and rising tolerance.

Countless of people who have been treating their ADHD with stimulant medication continuously, for years or decades, will beg to disagree.

Nobody says you have to take meds for ADHD treatment, or that you have to take stimulants (there are other options available, although typically less effective). Hell, on some people with ADHD, stimulants don't work at all, or side effects are not worth the cost. But comparing them to speed is just wrong and irresponsible, as it makes people afraid of trying what could be effective treatment.

Re: My ADHD founder toolbox

#236

I'm not sure if i have ADHD, I seem to come up pretty high for Symptons, but I don't want to play doctor on the internet, i'm also in the UK and as an adult I understand it's very difficult to get a diagnosis. I'm also not sure if it's caused by something else. I just really struggle to function and it's a killer. I have lots of projects and life improvement things I want to do, but I wake up and i'm like ughh, I can…

I'm in Ireland, but have recently been diagnosed by a UK doctor as having ADHD. If you go privately, it's not a terrible process, and my local GP is willing to prescribe as my UK ADHD expert advises. Granted, medication has had no positive impact on me so far, but getting the diagnosis was pretty straightforward.

Re: My ADHD founder toolbox

#237
post #146
post #127

I was diagnosed with ADD about two years ago and started taking meds. A couple of weeks ago I found something which allowed me to stop taking meds - I started running. I did not expect this to help with my ADD, but my head is so much clearer and focused since I started to run, it's crazy.

ADD here too with severe tics and anxiety. This resonates with me to some extent. Physical workout does wonders for your mentality while also making your body healthier. I am on Aduvanz (Adderall equivalent) and it lifts me up an extra notch, or at least; is a good alternative when time is sparse. But being active is the single most important thing every person can do. I hope doctors will push harder on exercising in…

> ADD here too with severe tics and anxiety

Then it makes sense that I manage to get by without meds and "just" sports. My case is not as severe as yours, in a way I needed the meds to be compatible with a corporate IT job, without them the stress and responsibilities made me really anxious etc. But the last three weeks since I started running have been surprisingly zen to handle, even though I quit the meds cold turkey.

> I hope doctors will push harder on exercising in the future

Definitely, yes.

Re: My ADHD founder toolbox

#238

I'm not sure if i have ADHD, I seem to come up pretty high for Symptons, but I don't want to play doctor on the internet, i'm also in the UK and as an adult I understand it's very difficult to get a diagnosis. I'm also not sure if it's caused by something else. I just really struggle to function and it's a killer. I have lots of projects and life improvement things I want to do, but I wake up and i'm like ughh, I can…

Have you tried recently? It was only a couple months wait on NHS when I did it.

I know, "only", but seeing as it had been 32 years at that point it wasn't a major wait. 2 months is good for the NHS and mental health haha.

Diagnosis itself once I'd got through the wait took about 2 hours in total across 2 weekly meetings.

Re: My ADHD founder toolbox

#239
post #187

Earlier quoted context omitted.

I was diagnosed when I was six, and, like you, I dropped all meds at 17. Recently (as in, this year) through a combination of therapy and introspection, I realized that while indeed I was able to have a successful life, career, relationships without the medication, and that, yes, my coping mechanisms were satisfactory, I was punching myself in the face for no reason Last month I saw a psychiatrist and got a prescript…

I know exactly how you feel, but I there is a bigger question: how well do these medications do in the medium term (counted in months)? I have read people testify how the initial boost evaporates, and when things come back to normal, they have to either continue the drug for not much benefit or face withdrawal. Edit: to clarify, I'm not telling anyone not to try medication. Everyone's response will be different. Just…

No idea, but habituation is a much bigger deal than people give it credit for.

I did the titration regimen after my diagnosis with a licensed psychiatrist and ADHD specialist, so you start very low and test a dosage for a month at a time. You increase it slightly until side effects are noticeable, then you scale back. This was my timeline:

Euphoria lasts perhaps two days, and you're on the lowest dose so it's pretty mild. You're just doing something and feeling happy about yourself. Good, it's a side-effect, and needs to go ASAP. Many people start on too high a dosage, so euphoria lasts maybe weeks, and when it stops they think it stopped working. This opens the doors to abuse, especially in teenagers.

Adaptation, during which other negative side effects start to lessen, lasts about 10 days.

Then there's peak productivity with little side effects for 6 months or so.

Then you start to question if it is still doing anything. There are days that you just don't feel like doing much. Take a couple days off, and it's obvious it was working all along. Without it you're still unproductive and scatter-brained as you've always been without. Also, you've started getting good at using this new powerful tool, but still don't know what to do with it. This is where I'm at at the moment.

--

When you're used to having good days, good days become normal days and it is very hard to remain objective in your assessment.

Re: My ADHD founder toolbox

#240

Earlier quoted context omitted.

For me, I've been on dexamphetamine sulphate for about five years. I had to have my dose adjusted after about a year, because I experienced what you mentioned (decreased efficacy). Once the dose was increased, the effect became pretty stable though (I'm currently on 45mg a day). I wouldn't say it completely negates my ADHD, but it definitely makes things a lot more manageable.

What did your dose look like at the start? & how did it progress over the 5 years?

I believe it was 30mg (10mg, 3x a day) that I started on. Dosage was adjusted after about a year, when I began to notice the dosage wasn't really having the same effect. Was upped to my current dose that I've been on since then.
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