A lot of modern medicine is factory work, there is no time or interest for the patient. It's the same reason people with symptoms that aren't immediately obvious get diagnosed with anxiety. It can be life-destroying when it's systemic, a lot of disabled people find that when they age out of pediatric care no one will touch them, not doctors, not physiotherapists, nobody.
Does this apply globally or just in the US? Do folks in other countries with disabilities have better experiences?
In Australia I find our medical system to be incredibly supportive of disabled people as long as you don’t go to the “bottom of the barrel” doctors (eg local big medical centres). Those places are purely set up to churn people through for sickie notes or basic scripts. Every town has “family practice” GPs and even with me having moved all over the country I’ve always found them to be very accomodating.
Almost any appointment can be done over the phone or Telehealth (government video conference system) if I don’t feel I can make it in that day. Scripts can also be done like that then SMSed to my phone, or emailed direct to my local pharmacy who drop the medications off same day for free (paid by government). If I do have to go in physically to an appointment, they always have my full medical record thanks to our MyGov system and have a tl;dr on the screen when I go in, so I’m not wasting time going over everything again and again (which is how it worked before MyGov).
Overall I love our medical system. It’s absolutely not perfect but I’ve lived overseas in a few places and despite loving the idea of living overseas again (and having various serious issues with other aspects of this country) I stay here purely for the medical support I get with my conditions.