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Patients can now access all their health records digitally

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11–20 of 122 posts

Re: Patients can now access all their health records digitally

#12
I really love it when I want records from Doc A to be sent to Doc B, then the Doc B offices refuses to get records and insist the patient need to do it, despite signing over all the papers, and then Doc A refuses to send them because they can only give to patient - even though patient is begging to send them. Quadruple the pain if you need records from multiple doctors. This is why now I prefer going to chain hospitals like university clinics. At least they can access records from doctors within their network. Like NYU, Mount Sinai, Presbyterian, etc.

Re: Patients can now access all their health records digitally

#13
post #3

Nothing sets off my fuse than a clinic refusing to send me my data so I can get it to another doctor for another opinion, ESPECIALLY around cost / prognosis (well, they don't "refuse", they just delay for so long). So, so glad to hear this.

https://www.hhs.gov/hipaa/for-professionals/privacy/guidance...

> Individuals’ Right under HIPAA to Access their Health Information 45 CFR § 164.524

> Timeliness in Providing Access

> In providing access to the individual, a covered entity must provide access to the PHI requested, in whole, or in part (if certain access may be denied as explained below), no later than 30 calendar days from receiving the individual’s request. See 45 CFR 164.524(b)(2). The 30 calendar days is an outer limit and covered entities are encouraged to respond as soon as possible. Indeed, a covered entity may have the capacity to provide individuals with almost instantaneous or very prompt electronic access to the PHI requested through personal health records, web portals, or similar electronic means. Further, individuals may reasonably expect a covered entity to be able to respond in a much faster timeframe when the covered entity is using health information technology in its day to day operations.

> If a covered entity is unable to provide access within 30 calendar days -- for example, where the information is archived offsite and not readily accessible -- the covered entity may extend the time by no more than an additional 30 days. To extend the time, the covered entity must, within the initial 30 days, inform the individual in writing of the reasons for the delay and the date by which the covered entity will provide access. Only one extension is permitted per access request.

Re: Patients can now access all their health records digitally

#15
post #5

I was hosting some friends who were on vacation. They live across the US. Long story short, one of them had to go to the emergency room and was subsequently diagnosed with cancer, very far from home. He said OK, I don't live anywhere near here. You will just transfer all this info to my "home" doctor, right ? The doctor seeing him said "not necessarily." Assuming I'm reading this article right, thank fucking god no o…

I fell ill far from home and while the care was subpar I did get to take along a CD with my xrays on it. Nobody seemed to know what to do with it and I ended up getting a redundant set of xrays within days of the first set. No weird file formats, they were full-resolution and exactly what the xray tech and docs were looking at previously.

Re: Patients can now access all their health records digitally

#16
post #3

Nothing sets off my fuse than a clinic refusing to send me my data so I can get it to another doctor for another opinion, ESPECIALLY around cost / prognosis (well, they don't "refuse", they just delay for so long). So, so glad to hear this.

> Reminder #5 – How IB actors make EHI available for access, exchange, and use can and will vary based on who the IB actor is, their technological sophistication, and who it is that is seeking to access, exchange or use an IB actor’s EHI. > The information blocking regulations do not require IB actors to adopt or use certain technologies or platforms. IB actors may use “patient portals,” other web interfaces, applica…

Is this always the case for photographers? If they are employed by a business and the pictures are taken for pay, wouldntthe company own them? Can you specify the same in a contract with a freelance photographer?

Re: Patients can now access all their health records digitally

#17
post #10

One big limitation of this standard is imaging data. X-Ray radiographs, MRI scans, PET scans, etc are not part of the USCDI standard V1 that'll be available to US patients. The current story for getting these scans still sucks and isn't close to being actually available to patients in the US. The best you can get is a set of DVD's containing that stuff, if you are lucky. The problem is that the protocol used by imagi…

DICOMWeb over FHIR sounds miserable.

Re: Patients can now access all their health records digitally

#18

Earlier quoted context omitted.

> Reminder #5 – How IB actors make EHI available for access, exchange, and use can and will vary based on who the IB actor is, their technological sophistication, and who it is that is seeking to access, exchange or use an IB actor’s EHI. > The information blocking regulations do not require IB actors to adopt or use certain technologies or platforms. IB actors may use “patient portals,” other web interfaces, applica…

Is this always the case for photographers? If they are employed by a business and the pictures are taken for pay, wouldntthe company own them? Can you specify the same in a contract with a freelance photographer?

I don't really know all the legal ins and outs, but you are the artist of the pictures you take and you own the copyright. I'm sure you can work as an employee and you can always sell the copyright along with the work. It used to be back in the day that photos were taken on film, so photographers could retain the film and sell you prints or just give you the film so you could make whatever you wanted. I've mostly been out of the loop since those days, so I'm not sure what the conventions are like these days.

The most interesting legal questions around this recently are regarding monkeys or other animals who take selfies, and whether they can own those works.

Re: Patients can now access all their health records digitally

#20
post #10

One big limitation of this standard is imaging data. X-Ray radiographs, MRI scans, PET scans, etc are not part of the USCDI standard V1 that'll be available to US patients. The current story for getting these scans still sucks and isn't close to being actually available to patients in the US. The best you can get is a set of DVD's containing that stuff, if you are lucky. The problem is that the protocol used by imagi…

Got a dental 3d scan recently and I also couldn’t get that as any sort of digital file
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