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Ask HN: I'm disabled and out of money. Now what?

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Re: Ask HN: I'm disabled and out of money. Now what?

#91
It seems like you've done a lot of the most reasonable easy stuff already (lowering expenses, etc.)

I would assume an IC job with a single employer is easier to manage than founder or side projects or multiple consulting clients. Probably something where physical presence is required might actually be better (given that the rest of your life sounds unfulfilling). Not sure how limiting the chronic pain is for this, but finding something where you are provided housing/office/etc. at some location to do whatever work might be a good thing for a while (i.e. the tech equivalent of a remote oilfield job). These exist, but not sure how best to search for them. Might be a chance to transition from backend web dev to embedded, too.

(I was depressed/broke after a big startup failed and the dotcom collapse and crazy ex-gf in the bay area back in 2002; I went to Iraq/Afghanistan/etc for ~a decade to do tech stuff to get away from it.)

Good luck! (Also there's presumably some YC resource? idk, haven't really kept up on YC internal stuff for a while.)

Re: Ask HN: I'm disabled and out of money. Now what?

#93
post #38

What are your professional skills? I work for a chronic pain management startup and we have a lot of needs.

Backend web-centric, leadership, plus other misc things I learned as a founder. Can you drop me a message? I can imagine a chronic pain startup being a place that would understand the needs of a chronic pain patient.

tyvm for the shrimp at gmail dot com

Re: Ask HN: I'm disabled and out of money. Now what?

#94
I went through a very similar thing with ME/CFS and hEDS (which has a chronic pain component). Before I even knew what was I knew that I was on the decline. I was doing ok at work but my ability to maintain a working pace kept diminishing. I went from full time to part time to less than part time to the occasional contracting. I ended up having to do a bit of a Hail Mary to try to save myself. I took a bunch of stimulants for three months and made some software that I was able to sell for enough money to keep afloat. It was niche software that was obviously going to make money but it was a lot of unpleasant work. I likened it toilet scrubbing work. I knew if it didn't work I'd run out of money and without family support my backup plan was to take a long walk off a short pier. Since then I've been able to find out the underlying problem, no thanks to doctors who were all less than helpful, and now treat it fairly successfully with a variety of meds.

I guess my advice would be, do whatever is needed to make money, no matter how unpleasant, so that you can survive long enough to figure out what is wrong and get treatment. And don't rely on doctors for treatment.

Re: Ask HN: I'm disabled and out of money. Now what?

#95
Say you are going to the gym 4 times a week, then one day, while running, you feel a sudden pain in your knee. Knee swells but nothing too bad, except that every single time you move your knee, some sharp, nagging pain comes back and gets you to stop whatever you're doing. You then touch your knee, move it left and right, and scratch at the pain. Makes it a bit worse.

You should rest, says your aunt and her bridge friends. You don't really want to rest, but at the same time... that pain! Right? Can't really go to the gym now.. could I?

So, you stay home for the next two weeks. After two weeks, the pain is still there; you leave it for another two weeks before going to the doctor. Doc can't find anything wrong, so you get Ibuprofen for 2 weeks and rest, perhaps a little contention for your knee. After the two weeks are done, you feel a bit better, and you gained a bit of weight, so it's really time to go back to the gym.

You go back to the gym, pumped. First move, bam! Knee pain comes back. As sharp as ever. WTF.

Thing is. Not moving for a month or two and avoiding the pain has made all the muscles around your knee grow weak. Your threshold for pain is lowered by the inactivity in the limb, and your general fitness has severely diminished.

Is having knee pain as bad as your story? Of course not. Is that a helpful story? Well, maybe, you tell me.

I believe in both cases letting the pain control your life is a mistake. Even if it is the worst pain imaginable, do whatever you can to work AROUND it. What does it mean in your case?

Your pain does not forbid you to take care of your lifestyle: - Do not indulge in useless behaviours that kill your soul and increase your self-deprecation: (re)Build a discipline. - Eat well, sleep well and rise with the sun. - Do every bit of physical activity you can, regularly, like clockwork.

Can you do 20 pushups? 10? 1? Well, then it goes in. Can you run for 5 min ? You start there. Can you stretch your back ? Bam, in. You find out what you can do and make it a doable and improvable routine that you do EVERY SINGLE DAY, in the morning, preferably.

Work around the pain. Do not let it control you, build what can be built.

Your pain does not forbid you to take care of your mindset: - Find goals, start small, and keep growing - E.g. "I can't hold a job" --> that's a useless generalisation. Change it to rational thinking: are you cognitively diminished ? yes/no ? if yes, how much? Are there job for cognitively diminished people like you ? (probably, given that half the population has an IQ below 100). Are you physically dimished ? yes/no ? How much? Can you find a job that would work? Remote? Coding ? Job X ? You don't know how to do X ? Replace video games by Coursera. Get a certificate in X. Is it you can't keep a job because you aim too high ? Would it be ok to aim lower ? How low ? How much time would it be ok to be there ? - Keep a vision of what the future could be. Even with the pain, even with all the failures and broken dreams. Find out what it could be as if your life depended on it.

Anyways. There is no silver bullet. You are, or have been, at a threshold for a while, a fork in the road between extinction and rebirth.

My advice is to take the Ibuprofen or whatever antidepressant you can get, whatever can help you stand a bit taller and feel a bit less of the pain. But go back to the gym, work around whatever pain is left after that, and wean yourself off everything you thought you needed to go through the days. Progressively.

Also, obviously. Stop taking benzodiazepine, weed, alcohol or any other drugs. Get help if you can. You are in a fight for the rest of your life.

Good luck.

Re: Ask HN: I'm disabled and out of money. Now what?

#96

I'm not sure what the cause of your chronic pain is, but I would highly recommend reading John Sarno's "The Mindbody Prescription." I've dealt with chronic pain for years and it's the only thing that's had any effect. Please, please , don't write it off until you've read the book. Note that Sarno's work focuses on back pain, but it applies to all types of chronic pain (including migraines, which he discusses in the b…

Aaron's article was discussed here at the time:

How I Cured my RSI Pain - https://news.ycombinator.com/item?id=1269951 - April 2010 (75 comments)

Lots of Sarno over the years:

https://hn.algolia.com/?dateRange=all&page=0&prefix=false&qu...

Re: Ask HN: I'm disabled and out of money. Now what?

#97
I'm working on a bootstrapped SaaS, I didn't plan on hiring developers because I just don't have the budget for it but I've been where you're at. I'm disabled and severely ill, with not much to look forward to in the future, thankfully I'm still employed and have enough to survive.

If you can program elixir and you can settle for a below-market rate I can give you a few billable hours and whatever schedule you can accommodate with your difficulties. It's not a long term solution but hopefully it could help patch the leak in your finances.

Re: Ask HN: I'm disabled and out of money. Now what?

#98
Sorry to hear that, after my startup failed I also had a very hard time, didn't want to take benefits (I thought that was below me, idiot me) and was eating the very cheapest Aldi stuff and got renting problems (no rent payed) and all credit cards and bank accounts cancelled. Got some money from my mom (they are the best). Luckily a friend gave me a job.

Re: Ask HN: I'm disabled and out of money. Now what?

#99

I went through a very similar thing with ME/CFS and hEDS (which has a chronic pain component). Before I even knew what was I knew that I was on the decline. I was doing ok at work but my ability to maintain a working pace kept diminishing. I went from full time to part time to less than part time to the occasional contracting. I ended up having to do a bit of a Hail Mary to try to save myself. I took a bunch of stimu…

> I guess my advice would be, do whatever is needed to make money, no matter how unpleasant, so that you can survive long enough to figure out what is wrong and get treatment.

The greatest TV show ever made (IMHO of course) was actually based on this premise, only the main character was a chemist, not a developer.

Re: Ask HN: I'm disabled and out of money. Now what?

#100
> In 2018 I started having problems with chronic pain and gradually became less and less capable on the job

Tame the Beast — It's Time to Rethink Persistent Pain, Lorimer Moseley This 5 minute animation explains how pain works, how our nervous system can learn pain, and explains new approaches to help reduce an individual’s pain. (5 min) [https://www.youtube.com/watch?v=ikUzvSph7Z4&vl=en]

Best Advice for People Taking Opioid Medication, Mike Evans This 11-minute video is great for both patients and clinicians. It explains what chronic pain is, what we know about the benefits and risks of opioid medications, and how to avoid the pitfalls that can be associated with opioid treatment. (11 min) [https://www.youtube.com/watch?v=7Na2m7lx-hU]

Understanding Pain: What to Do About It in Less Than Five Minutes? This easy to follow 5 minute video about chronic pain helps individuals understand what current research has been saying about chronic pain - that it’s not a joint or muscle problem, rather a 're-wiring' of the brain’s perception of itself. (5 min) [https://www.youtube.com/watch?v=C_3phB93rvI]

Chronic Pain Self-Management Resources This document provides a list of recommended chronic pain self-management resources that might be useful for primary care practices and their patients. Materials listed include three provider workbooks/manuals, along with resources your clinic might consider suggesting to patients. [https://depts.washington.edu/fammed/sixbuildingblocks/wp-con...]

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