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Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

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Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#31

Post by pickledcods »

It also heavily stresses relationships.

I have the equivalent of two jet engines in my ears, including the characteristic phase shifting. Managing it is basically mentally "locking it out", which has the side effect of becoming insensitive to real-world audio stimuli.

So when my SO talks to me when I'm off guard, I only realise that mid-sentence before I "unlock" my perception. The first few words are usually the essence which are lost, so I need to ask her to repeat the first few words.

But as a non-Tinnitus she does not understand, gets annoyed, and starts shouting the whole sentence exaggerated articulated which kinda hurts both my ears an feelings, gets me annoyed because I explained why hundreds of times. Basically ruining the the moment for both of us, especially in public.

Fighting over it isn't worth it, so now I'm more into nodding friendly and hope she doesn't notice that I didn't get what she said, which creates a whole new bunch of problems.

Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#32

Post by mettamage »

Are there any people with tinnitus that have figured out how to sleep with earplugs on? My tinnitus gets worse when I try to sleep with earplugs on. I currently use my Airpods Max (at home) or Bose QC 35 (when traveling) to mask noise.

Now that I've read that noise cancelling doesn't protect from sound, I'll only use this for sleeping and use actual earplugs in other situations.

Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#33

Post by vprcic »

mettamage wrote: post #32

Are there any people with tinnitus that have figured out how to sleep with earplugs on? My tinnitus gets worse when I try to sleep with earplugs on. I currently use my Airpods Max (at home) or Bose QC 35 (when traveling) to mask noise. Now that I've read that noise cancelling doesn't protect from sound, I'll only use this for sleeping and use actual earplugs in other situations.

My tinnitus also gets worse with earplugs, and I wear them since I'm a light sleeper, with a bedroom close to a somewhat busy road. What I've managed to convince myself is that if I focus on in, instead of ignoring it, I can "use" it as an inbuilt white noise generator. I've probably conditioned myself to get a reassuring feeling out of it, but I guess that's what counts. I know it sounds ridiculous, and it might be I'm just lucky since my tinnitus is only a hissing noise, but it works for me, so it might work for others as well.

Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#35

Post by Nursie »

tinnitu wrote: post #34

A friend with Tinnitus says it’s much better after using this (free) treatment based on selective stimulation: https://uselullaby.com/

Back when I first got it I used notched music to attempt to self-treat in a similar way.

My perception of the problem definitely improved, but I couldn't say for certain if it was the notched music helped or if just doing something while also slowly relaxing and accepting helped my mind adjust to its new reality.

Either way it's unlikely to hurt and might be worth a go.

Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#36

Post by pickledcods »

pickledcods wrote: post #31

It also heavily stresses relationships. I have the equivalent of two jet engines in my ears, including the characteristic phase shifting. Managing it is basically mentally "locking it out", which has the side effect of becoming insensitive to real-world audio stimuli. So when my SO talks to me when I'm off guard, I only realise that mid-sentence before I "unlock" my perception. The first few words are usually the ess…

The weird thing is when I'm mentally exhausted. The sound effects changes and clicks and plops are added.

The only moment I am truly free of tinnitus is losing the fight against falling asleep. Seconds before I slip into a dream state there is silence. Most notable when falling asleep in the passenger seat of a car on a long trip. It's like I'm actually experiencing parts of my brain shutting down.

Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#37

Post by danuker »

traspler wrote: post #20

I am currently participating in a study using tEAS (transcranial electrical and auditory stimulation) for tinnitus. Can‘t say much about if it works or not especially as the study was redesigned and will contain less treatment, so I‘m not too optimistic. (Background: 10y tinnitus without any known cause, was coping very will for the last 8y, had a terrible last 2y but I am starting to get over it again so in general…

Typical laptops are not grounded. You might want to try a desktop (but also check that the wall plugs are properly grounded).

But I agree that for an expensive medical device, shocking its users is unacceptable.

Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#38

Post by ajnin »

traspler wrote: post #20

I am currently participating in a study using tEAS (transcranial electrical and auditory stimulation) for tinnitus. Can‘t say much about if it works or not especially as the study was redesigned and will contain less treatment, so I‘m not too optimistic. (Background: 10y tinnitus without any known cause, was coping very will for the last 8y, had a terrible last 2y but I am starting to get over it again so in general…

More importantly, what happens if there is a short somewhere and the USB port becomes connected to mains voltage ? Computers are not medical devices, and I'd say it is fairly common to feel a small tingle when touching ports so isolation is not that great. The actual medical device should use an isolation transformer or be powered by batteries.

Re: Treatment for Tinnitus with Stimulation of Auditory and Non-Auditory Nerves

#40

Post by Zircom »

pickledcods wrote: post #31

It also heavily stresses relationships. I have the equivalent of two jet engines in my ears, including the characteristic phase shifting. Managing it is basically mentally "locking it out", which has the side effect of becoming insensitive to real-world audio stimuli. So when my SO talks to me when I'm off guard, I only realise that mid-sentence before I "unlock" my perception. The first few words are usually the ess…

Not to pretend I know anything about you or your partner and y'alls relationship, but her being a non-tinnitus sufferer and not having personally experienced it herself doesn't make her unable to "understand" the issue and accommodate you in the manner of your choosing.

Assuming that you've sat down with her and clearly communicated exactly how you want her to handle situations when your tinnitus makes it hard for you to understand her, if she's still choosing to completely ignore that in favor of shouting and being unreasonable to the point it turns into a fight, that just reflects poorly on her and her willingness to be even minorly sympathetic and accommodating to a loved one's currently incurable medical condition.

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