I have Crohn's, an incurable digestive disease, and built Crohnology • Hacker News Board

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#31

Post by imperialWicket » Wed, Sep 14, 2011, 1:06 AM UTC

It is so nice to see someone using technology to create something genuinely productive. You have a somewhat small target audience, but they have (as you rightly point out) very few alternatives when it comes to finding information about the disease and options for trying to aid in controlling it.

Congratulations on the launch, I'll be passing the link to a few people I know who battle Crohn's. Great work.

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#32

Post by ridave » Wed, Sep 14, 2011, 1:07 AM UTC

Thank you for building this.

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#33

Post by mathattack » Wed, Sep 14, 2011, 1:14 AM UTC

Wow - what a great use of talent! Turning lemOns onto lemonade is very cliche, but it applies here.

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#34

Post by mossity » Wed, Sep 14, 2011, 1:14 AM UTC

waterside81 wrote: post #17

I never heard of this disease until Mike McCready, guitarist for Pearl Jam, came public with his long battle with the disease. He talked about how he had to leave the stage, sometimes in mid song, because of complications arising due to Crohn's. Really raised the profile of the disease (at least amongst PJ fans!) Here's the link to his interview: http://www.everydayhealth.com/crohns-disease/pearl-jams-mike... Apologi…

As always, the trick is to pretend you want to print it: http://www.everydayhealth.com/printview.aspx?puid=EB6220D4-B...

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#35

Post by alexknight » Wed, Sep 14, 2011, 1:16 AM UTC

This sounds like an amazing project. My grandfather had Crohn's. I wish he was still alive today to see this.

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#36

Post by mathattack » Wed, Sep 14, 2011, 1:23 AM UTC

Wow - what a great use of talent! Turning lemOns onto lemonade is very cliche, but it applies here.

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#37

Post by whakojacko » Wed, Sep 14, 2011, 1:38 AM UTC

seanahrens wrote: post #28

cowkingdeluxe wrote: post #4

Earlier quoted context omitted.

http://blog.crohnology.com/im-going-to-be-demoing-at-medicin...

hm, working from San Francisco. I'll keep my eye on it though. Thanks for letting me know.

not working for me either (Also SF). From here, blog.crohnology.com CNAMEs to sfibd.posterous.com, but that doesn't work for reason's unknown to me (IP returned is 184.106.20.99)

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#38

Post by lunchbox » Wed, Sep 14, 2011, 1:48 AM UTC

Similar concept to PatientsLikeMe: http://www.patientslikeme.com/

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#39

Post by dmix » Wed, Sep 14, 2011, 1:54 AM UTC

I was diagnosed with ulcerative colitis earlier this year and was building something similar to this a few months ago. It was focused on the sharing the optimal medication treatments.

But I ended up joining another startup and no longer have time.

I'm happy to see someone doing something similar.

Re: I have Crohn's, an incurable digestive disease, and built Crohnology

#40

Post by CWuestefeld » Wed, Sep 14, 2011, 1:57 AM UTC

kefs wrote: post #12

This is great! As a sufferer of bowel problems for many years, I developed PoopLog for Android to track my bowel habits using the Bristol Stool Scale [1]. Software like ours really do help everyday people, and the daily emails I receive from my users make everything worth it. Good luck! For the curious, my next update is a rather large one including many more logging options, charts, and trends. [1] https://secure.wi…

I've had Crohn's since I was 12, and have often contemplated creating a tool to help others track their diet and activity, to look for correlations. I've not done so because I was afraid of either (a) FDA interfering, since it's medical-related; or (b) liability in case there was a bug.