I have Crohn's, an incurable digestive disease, and built Crohnology
blog.crohnology.com
I have Crohn's, an incurable digestive disease, and built Crohnology
1–10 of 79 posts
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#2Awesome site. My wife has Crohn's and I've been thinking how nice it would be to have a site like this. We'll try it out. Also the link in the title is busted, but just going to the domain works.
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#3Awesome site. My wife has Crohn's and I've been thinking how nice it would be to have a site like this. We'll try it out. Also the link in the title is busted, but just going to the domain works.
Many thanks! I'm happy to have, help, and learn from her. Which link are you referring to?
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#4Awesome site. My wife has Crohn's and I've been thinking how nice it would be to have a site like this. We'll try it out. Also the link in the title is busted, but just going to the domain works.
Many thanks! I'm happy to have, help, and learn from her. Which link are you referring to?
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#5As a Crohn's sufferer, It's rare that I come to HN and see something so closely targeted to me! One thing that makes me a bit nervous, though, is the social nature of the site. I tend to be pretty private about my illness, and only my closest friends know I have it. Have you considered the privacy implications of the site? I'd be worried that information about me and my condition might leak onto the internet, and the homepage doesn't really mention it.
I applaud the effort, though. Crohn's is a terrible disease and it's great to see people taking proactive steps towards treating it.
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#6My wife, sister, dad and aunt have Crohn's. This will be great for them. My wife when she was first diagnosed at 19 was desperate to find information online about the disease. In fact, we were setup on a blind date and these posts are what I first found during my requisite Google :)
My aunt is dying of complications related to the disease while my dad, wife and sister have it under control.
I'll be sending it to all of them.
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#7Hiromi Shinya, the inventor of colonoscopy, has had success with Crohn's patients throughout his career:
http://www.amazon.com/Enzyme-Factor-Hiromi-Shinya-MD/dp/0982...
His advice consists mainly of radical dietary changes and drinking Kangen water. FWIW.
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#8How is it I've heard of all kinds of largely non-existent (today) diseases like Cholera, Typhus, Typhoid, Scrofula, Gout, etc, but as soon as I got on the internet, everyone seems to have Crohn's, which I had never heard of pre-internet?
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#9My wife, sister, dad and aunt have Crohn's. This will be great for them. My wife when she was first diagnosed at 19 was desperate to find information online about the disease. In fact, we were setup on a blind date and these posts are what I first found during my requisite Google :) My aunt is dying of complications related to the disease while my dad, wife and sister have it under control. I'll be sending it to all…
Thank you so much. I'm sorry to hear about how pervasively this disease has affected your family. But I'm glad to be working to produce something that may help. Email me at beta@crohnology.com, and I'd love to have them a part.
Re: I have Crohn's, an incurable digestive disease, and built Crohnology
#10so ironic - i am literally in the hospital right now in chicago for a real bad uc flare up...