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Baffling neurological illness affects growing number of young adults

theguardian.com

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Re: Baffling neurological illness affects growing number of young adults

#51
post #49
post #36

Earlier quoted context omitted.

> Canadians are generally very satisfied with the quality and availability of healthcare in Canada. If any of us are it's because of the pervasive anti-American propaganda spewn about. My GF is from the Czech Republic (where we currently are) and since we got here she's been getting all her standard check ups done. Here she can make an appointment only a day in advance (as opposed to weeks or months out in Canada), t…

I’m Canadian and am extremely happy with the state of healthcare. It has nothing to do with propaganda but personal experience. Please don’t claim to speak for me. Your view does not match the typical Canadian’s.

How often do you, personally, use healthcare? I was fine with it too because I'm a very healthy man (let's face it, men don't use health care as much as women for obvious biological reasons) in my 30's. The fact it's so shit doesn't affect me, personally.

But it's objectively bad when compared to every country at our level of income, and bad when compared to most first-world countries. We pay more and receive less. My girlfriend is pregnant (part of the reason for all her medical appointments) and legitimately doesn't want to move back to Canada (where we met) because of the state of health care (and education, and infrastructure, and housing costs, but healthcare is a big one with a child on the way).

Edit - in a comment to another person you're saying you're OK with things being postponed in Canada because it's a pandemic. Nothing is postponed or shut down here... We've been getting appointments just fine. Literally made my point.

Re: Baffling neurological illness affects growing number of young adults

#52

Earlier quoted context omitted.

This should be unsurprising. Governments consistently represent business interests over the well-being of their population. As a result the right is already running on populism and the left is not far behind with all the labor organizing that’s happening. We’re in for a wild ride over the next decade.

I’m not sure I disagree with your broader point, but I don’t understand how labor organizing equates with right-wing populism. To me greater efforts at unionization are simply a rational economic response. What am I missing?

Labor organizing is largely being driven by left-wing populism in the face of unrelenting corporate ghoulishness from the Democratic Party. Once the right went hard populist it became the meta because business interests fled to the other side and pissed them off too. And historically, high levels of populism in politics usually ends up in authoritarianism. I’m actually very sympathetic to left wing populist positions; but at the same time it’s very easy for charlatans to prey on.

Re: Baffling neurological illness affects growing number of young adults

#53
post #9

Canadian healthcare is scary, and it's made worse by these politicians that always go to the US for care. The joke is that it's gotten so progressive that no one gets better, we all have to equally suffer. You can see clearly how this situation was mishandled.

Still living 3 years longer then the Americans.

Closer to 4 now: https://en.m.wikipedia.org/wiki/List_of_countries_by_life_ex...

Re: Baffling neurological illness affects growing number of young adults

#54

Interesting what happens when doctors no longer work for you, but can only work for the government monopoly.

This is an annoying indirection in this discussion.

Doctors working for everyone also means they work for the highest bidder. Remember the tabaco industry in the US and the doctors literally advertising it?

How about doctors near areas of chemical spills getting $£€¥ from the companies to keep quiet about them?

How about the opioid crisis that has killed thousands of Americans?

Yeah. So, if you want to bring up a misleading example, at least think of the entire cycle of the "other side" of this.

At the end of the day the thing is "interesting what happens when doctors are incentivized with capital and success is measured by how rich you are"

Re: Baffling neurological illness affects growing number of young adults

#55
post #21

Earlier quoted context omitted.

You really should never eat shellfish from unknown sources, because these are either from unsustainable farms pumped full with chemicals to keep diseases in check or from the sea. Either way, very dirty food in more than one way. If you really gotta eat shellfish, get it from local closed-cycle industrial farms. That's of course more expensive, because you're paying for what you're getting.

As someone that did a lot of research into aquaculture for work a couple of years back, I'm now very picky about where I get fish, whether finfish or shellfish. Safety, processes, practices and quality vary wildly by region and farm.

Do you have any high level suggestions?

Re: Baffling neurological illness affects growing number of young adults

#56
post #2

>The 3 referring physicians in New Brunswick engaged the Public Health Agency of Canada’s Creutzfeldt-Jakob Disease Surveillance System (CJDSS) to actively investigate the possibility of human prion disease, but to date, all test results have been negative for known forms of human prion disease. https://www2.gnb.ca/content/gnb/en/departments/ocmoh/cdc/neu... So it does not seem to be prions, despite the similarities.

Which at least is good - be aware Prions are very hard to detect or categorize (and most forms of infectious prions seem incredibly hard to destroy). We don’t have a generic ‘prion’ test, and there is a non-zero chance of a different type we haven’t categorized yet.

Until relatively recently they were considered some kind of ‘wake up sweating and dismiss the nightmare as just fantasy’ type cause that should be dismissed by rational people, though there were a number of serious known diseases that no virus or bacteria could be shown identified as causing.

Not actually knowing what causes a disease is a lot more common than people think though, including for a number of relatively common diseases.

The ones we’ve shown a prior cause for had a big question mark next to them despite concerted effort. They were also generally in either remote populations that were practicing some taboo things (human cannibalism), a few families, or in animals (scrapie), and clearly fatal.

In the mid 60’s it was becoming apparent these diseases were not likely caused by the most common theory of a ‘slow virus’ or any known bacteria, as even biological sterilizing agents, viral killing agents, hard UV, and high levels of ionizing radiation didn’t stop samples from being infectious, and searches to find the actual cause started looking for more novel sources, despite a lot of skepticism.

The term prion, after decades of research, was only coined in ‘82, and only generally accepted as the actual source of the disease (instead of a red herring for a disease caused by a not-yet-isolate virus) in the late 90’s to early 2000’s. One of the most prolific researchers on the topic got a Nobel prize for his work proving they exist - but only in 2017.

A brief history [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4626585/]

So not likely, but until another cause can be isolated, best to not fully rule it out either, even if it is negative for all known prions.

With how good many of our tests actually are, it’s easy to overweight their accuracy in categorizing unknown phenomenon. Somewhat of a CSI type effect.

Re: Baffling neurological illness affects growing number of young adults

#57

Seems obviously BMAA but clearly the government don’t want to say so because it will destroy the lobster industry. We should all be terrified of BMAA and it’s here because of climate change. https://www.sciencedaily.com/releases/2019/01/190124110834.h... Climate change is making the oceans and fresh water toxic and very deadly. We’ve seriously fucked the earth. Have you ever heard weasel words more reminiscent of a c…

Seems more likely the old mines in the area are causing the contamination with BMAA and that it is being consumed in shellfish. BMAA contamination is often associated with old flooded mine shafts, and there are several in the area where these people are getting sick, most of them upstream.

Not sure why you're assuming this has anything to do with climate change. What could be the link there?

Re: Baffling neurological illness affects growing number of young adults

#58

Earlier quoted context omitted.

> Canadians are generally very satisfied with the quality and availability of healthcare. I'd love to see the list of people you surveyed to draw this conclusion. In my metropolitan area availability is abysmal and (in my experience recently) quality is not great. I am contrasting this to my recent experiences in the US system.

That makes some sense - US healthcare is great if you are wealthy and barely existent if you are not. Canada strikes me as middle of the road - moderate quality for nearly everyone. If you are one of the lucky 10% at the top of the heap US healthcare will outperform.

Nonsense. Middle class employment comes with health insurance that makes healthcare generally affordable, barring stories about catastrophic bankrupting illnesses that are actually rare.

Edit: what, am I out of touch? Is health insurance only provided to employees in the top 10%?

Re: Baffling neurological illness affects growing number of young adults

#60
post #49
post #36

Earlier quoted context omitted.

> Canadians are generally very satisfied with the quality and availability of healthcare in Canada. If any of us are it's because of the pervasive anti-American propaganda spewn about. My GF is from the Czech Republic (where we currently are) and since we got here she's been getting all her standard check ups done. Here she can make an appointment only a day in advance (as opposed to weeks or months out in Canada), t…

I’m Canadian and am extremely happy with the state of healthcare. It has nothing to do with propaganda but personal experience. Please don’t claim to speak for me. Your view does not match the typical Canadian’s.

I'm Canadian and since living abroad I can only say how impressed I am with health care systems OTHER than Canada's. Getting a specialist appointment in Canada can take weeks to months and even then the specialist barely has time for you.

I have friends from Europe who (now) have dual citizenship and fly back to their country of origin for anything beyond a basic checkup.

In Asia I go to the hospital and I get all the results in a folder and can review them myself. There are no hidden mysteries like in Canada -- what are they hiding in Canada? I've asked for a copy of my medical file and they've looked me like I'm a lunatic!

In Canada:

"So when do I get my test results?"

"We'll call you if there is a problem."

No joke!

In Quebec I always have to pay $500 a year for medical -- I guarantee you I can get A+ coverage for that amount of money in any SEA country. So it's definitely not "free".

Canadian health care is most certainly a better financial deal than the US system if stories are to be believed. But it's most certainly not the best world wide.

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