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I have a brain injury [video]

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Re: I have a brain injury [video]

#91

A big metal Christmas street ornament installation fell on my head and shoulder as a rode my bike on the street underneath. Briefly on a ventilator. Thankfully can't remember that or the week after personally and mostly recovered over the following weeks, months and years. Kind of like a logarithmic curve; fast at first and then ever slower. From what I was told, that's generally the case and there isn't really anyth…

How long has it been since the incident? How do friends tactfully tell you your IQ has dropped, and would you rather they hadn't?

Just over 6 years ago now. I'm still working out my damage claim to the city with my lawyer and was discussing the differences before/after to claim with friends when they gave me their outside perspective*. So that was fine by me. They normally don't mention it; we're just getting on with our lives. Also, to be clear, I'm really not that bad off; I'm used to it and can live a pretty normal life.

*) E.g: Not being as good at board games as before; more forgetful, slower, struggling with words etc. Noticeably also especially in cases where I experience my what I call 'brain fatigue'. A really weird thing to get used to besides the usual physical and sleep types of fatigue. I think it used to be aligned with sleep but now I usually get this before I get that.

Re: I have a brain injury [video]

#92

A big metal Christmas street ornament installation fell on my head and shoulder as a rode my bike on the street underneath. Briefly on a ventilator. Thankfully can't remember that or the week after personally and mostly recovered over the following weeks, months and years. Kind of like a logarithmic curve; fast at first and then ever slower. From what I was told, that's generally the case and there isn't really anyth…

This book has been a godsend for my chronic pain problems, including, somewhat surprisingly, neurological stuff: https://www.amazon.com/Trigger-Point-Therapy-Workbook-Self-T... (I suggest looking up "whiplash" in the index.) As weird as it sounds, when I massage the muscles around my head and neck, I get noticeable cognitive changes in the minutes and days that follow.

Interesting, will check it out. Could use help with my neck.

Re: I have a brain injury [video]

#93

A big metal Christmas street ornament installation fell on my head and shoulder as a rode my bike on the street underneath. Briefly on a ventilator. Thankfully can't remember that or the week after personally and mostly recovered over the following weeks, months and years. Kind of like a logarithmic curve; fast at first and then ever slower. From what I was told, that's generally the case and there isn't really anyth…

Such an inspiring story. Glad to hear you're recovering your life. However I have to say that you are lucky. I doubt the majority of employers would be so kind and accommodating nor would work colleagues be as supportive.

Thanks. Helps that my brother is the CEO Also we have a lot of long term employees for an IT company, feels almost like a family with them. So yeah, very lucky indeed.

Re: I have a brain injury [video]

#94

A big metal Christmas street ornament installation fell on my head and shoulder as a rode my bike on the street underneath. Briefly on a ventilator. Thankfully can't remember that or the week after personally and mostly recovered over the following weeks, months and years. Kind of like a logarithmic curve; fast at first and then ever slower. From what I was told, that's generally the case and there isn't really anyth…

Did you manage to get any compensation from whoever installed the ornament?

City is taking intermediate responsibility and covering costs. They could in turn still claim it from the final responsible party, but I think that's really just them. I'm still working out a final future damage claim for my career etc. Will definitely get something, hopefully enough to help me buy a house.

Re: I have a brain injury [video]

#95
post #80

A big metal Christmas street ornament installation fell on my head and shoulder as a rode my bike on the street underneath. Briefly on a ventilator. Thankfully can't remember that or the week after personally and mostly recovered over the following weeks, months and years. Kind of like a logarithmic curve; fast at first and then ever slower. From what I was told, that's generally the case and there isn't really anyth…

Thank you very much for posting this. Holy cow. I had a slight brain injury in college, a concussion. Everyone was taking care of the urgent cases, so it took a while to realize that I was no longer tracking anything beyond five minutes at a time. I almost remember a dream-like experience of sitting in the Emergency Room under observation: they made me sit upright, when I so desperately wanted to lie down and sleep.…

Wow, that's an interesting write up of your experience as well! Yeah, an accident can give you a fresh perspective on life. And brain trauma also on your consciousness. I remember really wanting to improve my life afterwards; really digging into therapy for pre existing psychological issues as well. I have to admit I've kind of lost that flame again which I guess is normal after time. But my perspective has definitely also been widened and I think/hope that will last forever.

Re: I have a brain injury [video]

#96
post #78

Earlier quoted context omitted.

Would shrooms help you reset?

I'm pretty pro psychedelics, but you should know it's generally a REALLY bad idea for anyone with a history of psychosis to use them, to the point that I really implore you not to recommend them so casually to someone with such a history. That cohort is at very high risk and the use of psychedelics can really exacerbate the condition and make people less functional.

Yup. I’m bipolar.

Re: I have a brain injury [video]

#97
post #78

Earlier quoted context omitted.

Interesting. I had a four month long psychotic break. It started mid-August 2018 when I physically felt something snap in my brain. (See my reply to the same comment)

Would shrooms help you reset?

I’ll pass. I’ve already had the shrooms experience and the complete brain reset without them.

I’m on antipsychotics and no one is going to let me go off them, including me.

I’m never, ever going off my antipsychotic.

Re: I have a brain injury [video]

#98
I never had a head injury per se, but I did hit my head a couple of times with no particular changes in perception, but as someone with OCD and probably a whole range of other undiagnosed disorders, and probably future schizophrenic as I don't know how to get out of the pit I've dug myself.

I wanted to talk about a special case of brain injury, namely: self-asphyxiation through psychogenic problems.

I had to experience this myself the last month, I wasn't particularly aware that such a thing could occur, 2 weeks ago I was in a delusional loop, that in turn caused me anxiety, which lead to psychogenic dyspnea(irregular breathing, feels like choking). It wouldn't dissipate for a long time, my head or brain I'm not sure what to call it anymore, constantly: tingling, itching, like gears constantly pulsating, until the sudden onset of what felt like a screw loosening and jumping out, this is the best analogy I can think of as of now. This isn't a one time occurrence, there have been plenty of similar experiences that I've piled up over a timespan of 3 years as of now. I am 24, just for the record.

As the reader may infer, sleep schedule?: sucks, diet?: sucks. friends?: none. Loneliness?: since a long time.

I'd like to think of myself as someone very patient and resistant to most things other humans can't deal with, but I too have occasional meltdowns. In some rather amusing fashion, I've glanced upon this post before sleep, and after sleeping I broke down in tears, and came back to this thread. Everything is becoming too much, I probably have to seek help, this facade of the invincible is probably hindering me much more, and the delusion of self-progress through ones own intellectual effort seems to be in vain, more and more. I'm trapped in this maze within a maze, I've given up as of present. I don't know how to continue, but I will.

There is no tyrant, like a brain.

edit: I'm at a point where I can't tell apart whether I became dumber due to the asphyxiation or not, I do notice a change in perception ever since that last week, but is that a delusion? Can I delude myself of a feeling, a physical one at that? And, yes, I don't visit the doc very often. Nonetheless, as the days pass my capabilities seem to return more and more to the "usual".

Re: I have a brain injury [video]

#99
I had a bad concussion in 2016 on the receiving end of a t-bone car accident. I too had a bad experience with Mayo Clinic Jax concussion expert, clueless and insulting. After 5 years, I’m still feeling the usual post-concussion syndrome affects, like issues with sleep, cognition, focus, agitation, and memory. Studies show that 1 in 5 concussions are “long-haul” chronic conditions and no one is sure why.

Here are some things that helped me: 1. Many of my symptoms improved immediately with the Jim McMahon (the football player) concussion treatment. It fixes a neck issue with C1 and C2 shift. Google it. 2. Antidepressants did nothing, but Provigil has been a lifesaver for focus and xanax when I’m overwhelmed. I take them when needed. 3. Good doctors understand the issues, but you need to find them. I’ve had success with USF Dept of Neuroscience.

I still have the concussion symptoms, but I have adapted to a new way of living and I’m at peace and grateful. Good luck to everyone in this boat, you’re not alone and it can get better.

Re: I have a brain injury [video]

#100
post #79

Earlier quoted context omitted.

Lyme disease from ticks?

Presumably, yes. I don't remember actually seeing the tick but I felt it when I scratched it off thinking it was a scab, and later developed the typical bullseye rash

This is terrifying and I love hiking, might have to give up this hobby for fear of tick bites.
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