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Ask HN: Why is medical software so hard to use?

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Re: Ask HN: Why is medical software so hard to use?

#11
If you're particularly interested in this topic, I'd encourage you to look at primary research and not just NY Times. The academic field for technology in healthcare is generally "biomedical informatics" or "health informatics". AMIA (amia.org) is the main association I'd look at, although industry conferences (like HIMSS) might also be interesting for a look at what companies are pitching these days.

I think the main issue comes down to pressures for many different stakeholders. The large EHR vendors (like Epic) were originally designed to replace paper processes, and so they're customizable to a fault. Then, obviously, you gotta pay for the software (Epic has historically not dealt with contracts that are less than $100M, or at least that's what the rumor has always been in informatics circles), and so billing optimization gets tacked on. Issues like usability get studied regularly, but it seems like a more common topic in academic circles than in industry circles. EHRs have historically been closed systems, so you can only really make improvements if your vendor makes improvements (Epic has also, at times, contractually prohibited tools from being added on to their software) -- so, you can't rely on third parties to improve.

Silicon Valley enters the chat So, entrepreneurs see this disaster and think they can disrupt and fix the problem. Only, they know very little about the actual space. Look at the backgrounds of the founding teams of EHR startups (e.g., Practice Fusion, DrChrono) or healthcare startups with home grown EHRs (e.g., Carbon Health). There's very sparse prior healthcare experience. And, while it's totally possible to learn the space, it's hard to learn the space without repeating other's mistakes first.

So, there's been over a decade's (err, actually over 3 decades) worth of effort put in to building standards for interoperability, but the main players at the table have been the Epics... the startup scene has mostly sat it out (either because they think they can build better standards, or they're simply not aware of these efforts existing). So that just creates more tech debt, but without many of the healthcare startup CTOs realizing they've incurred more tech debt. If you've ever wondered why One Medical doesn't integrate with Apple Health, this is your answer ;)

There's a ton of really good work going on in this space though. It just gets overshadowed by 20 years of crappy user experiences with EHRs. Check out companies like Canvas Medical, or researchers like Julia Adler-Milstein or Genevieve Melton-Meaux.

Re: Ask HN: Why is medical software so hard to use?

#12
I wrote Hacking Healthcare for O'Reilly Media, created ClearHealth/HealthCloud, WebVista, yada yada...

There are several factors that collide to make everything in software associated with health exponentially more difficult than in other areas. First, people's lives are actually on the line, the stakes are very high. Second, government regulation plays a significant role in how things can and cannot be done, this is a double edged sword in preventing some abuses but also making iteration and innovation more difficult.

The other most signifcant point is that there are often very large gaps in vision between different layers of a very large and complex human system. The needs of keeping the lights on and billing are often in direct tension to the needs of optimal care, this often manifests in software as a chimera that pleases no one.

One other tidbit I will add is well covered in my book's chapter "The incredible bandwidth of paper". When you actually sit in a room and see how fast and how complex the information recorded by a group of medical professionals with nothing but pen and paper form is, it is daunting to actually deliver that level of performance and reliability with any technology that exists today.

Re: Ask HN: Why is medical software so hard to use?

#13
post #2

What makes it so hard for innovation is all the rules and regulations like being HIPAA compliant etc.... Regulations are a tax on innovation and a floor on prices dropping (usually leading to prices increasing).

Is this really the case? Finance is highly regulated and there is a lot of superb software.

Many of the fintech companies and successes have been around circumventing rules and regulations using clever tricks and/or loopholes.

Re: Ask HN: Why is medical software so hard to use?

#14
I work for a medical startup and most of our clients' staff at small to mid-sized practices are poorly trained on the software they use. Even when it's a single EMR software they stay in all day long, helping their patients, a large part of their staff won't understand how it actually works. It's like clinics buy whatever software to handle the breadth and volume of work they want to produce, then neglect to train their staff on it and get frustrated when it doesn't work out. Sometimes repeatedly.

Re: Ask HN: Why is medical software so hard to use?

#15
post #12

I wrote Hacking Healthcare for O'Reilly Media, created ClearHealth/HealthCloud, WebVista, yada yada... There are several factors that collide to make everything in software associated with health exponentially more difficult than in other areas. First, people's lives are actually on the line, the stakes are very high. Second, government regulation plays a significant role in how things can and cannot be done, this is…

Then why isn't more of it done on an electronic paper? If it served in the old world, why can't the software equivalent work?

Re: Ask HN: Why is medical software so hard to use?

#17
> Why is Medical Software so Hard to Use?

You mean like Google? Like when doctors Google in front of me?

It works really well. They get answers which they translate to me.

Exactly the same as my job. I Google it and translate to others. I don't think it's hard to use.

What's the real question?

Like how does one $ billion get lost on a Healthcare payroll fuck up? https://www.henricodolfing.com/2019/12/project-failure-case-...

For starters we could look at how many lives were lost because of that and what bureaucrat had to pay for those deaths.

But people are dumb cunts. You can't even get to stage one of how many people died. I suspect the bureaucrat's who killed people have been promoted since. Dumb cunts don't get that. Dumb cunts talk about ransomware killing people in Germany (Which it didn't) or things like complex electronic medical records which are at best stage two after we sort out all the rest.

That's why it's so hard to use. People won't look at the real issues.

Re: Ask HN: Why is medical software so hard to use?

#18
Same reason every other awful UI is awful: egos, opinions, hubris, turf, ignorance, neglect, incompetence, resource constraints, NIH, etc, etc.

I designed and implemented the back half of a caregiver facing "portal", working hand in glove with our people making the front half. And I prototyped what became our patient facing portal (think MyChart). And I wrote a medical image viewer.

We were first to market, had customers that loved us, making money.

Then our product team was sold to MedPlus (Quest Diagnostics). Who promptly destroyed all of our work.

I'd already been thru a handful of acquisitions beforehand (both sides), so I knew what to expect. The Golden Rule. He who has the gold makes the rules.

Even so, as a patient, stuff like Epic, Cerner, MyChart, etc. fills me something like despair, rage, hopelessness.

Just today, reviewing my scripts, during a visit, yet again... The hospital's list of scripts for me is wrong. Again. Despite being manually corrected every time I visit.

I know PRECISELY how and why it's wrong. Because I fixed those exact queries myself, back when the hospital had been one of our customers. Over a decade ago.

So aggravating.

As you can guess, a new CTO had come in with grand ideas and ambition to match, threw away their predecessor's work (including our product), and brought in Epic.

Same as it ever was, I suppose.

Re: Ask HN: Why is medical software so hard to use?

#19
post #2

What makes it so hard for innovation is all the rules and regulations like being HIPAA compliant etc.... Regulations are a tax on innovation and a floor on prices dropping (usually leading to prices increasing).

Not true. HIPAA was a non-issue for my team. Mid 2000s.

Further, having any kind of regulations, rules, procedures whatsoever would have been a huge boon. Instead, we had to invent everything ourselves.

I actually called up lawyers (and others) involved in court cases, asking for pointers. "Try harder" was the answer.

Sadly, I could never figure out how to code "try harder".

Re: Ask HN: Why is medical software so hard to use?

#20
post #13

Earlier quoted context omitted.

Is this really the case? Finance is highly regulated and there is a lot of superb software.

Many of the fintech companies and successes have been around circumventing rules and regulations using clever tricks and/or loopholes.

How is fintech like healthcare?
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