Burden of post-Covid-19 syndrome and implications for healthcare planning • Hacker News Board

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#41

Post by iammisc » Tue, Jul 13, 2021, 7:12 PM UTC

manmal wrote: post #24

jacquesm wrote: post #3

One of those cases here. Symptoms: suddenly out of energy, occasionally suddenly being unable to spell, even mild physical exercise leaves me floored (and I was pretty fit for my age prior to this). So, 17 months in: it's still not back to where it used to be but if you think of it in terms of trends instead of absolutes it is definitely still improving. The downs are less far down, the fog is lifting and the energy…

Did you try NAC? Maybe worth a shot - this paper is about „long EBV/mono“ which might have similar mechanisms: https://pubmed.ncbi.nlm.nih.gov/29228057/ > These data support the idea that NAC could be considered as a treatment to alleviate chronic inflammatory pathologies, including post-viral disease

NAC is illegal in the USA now. Thank you FDA.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#42

Post by ElViajero » Tue, Jul 13, 2021, 7:12 PM UTC

gpm wrote: post #31

ElViajero wrote: post #26

Earlier quoted context omitted.

I got CoVid in Osaka at the beginning of November 2019. The symptoms lasted around 5 months. I got it again in May 2021 and this time I was fully recovered in 3 weeks. I got vaccinated, even during the second infection I felt extremely tired and slightly confused, I want to minimize as much as possible the risk of repeating again. update: For all the down-votes. Time will say. But "A new study shows that first cases…

> in Osaka at the beginning of November 2019 On what basis do you believe this was covid-19 and not some other disease?

I had the same symptoms that I had the second time. The second time was confirmed by PCR-test.

But, of course, it could have been an equivalent disease with the same symptoms: fever, mental-fog, sore-throat.

It is just the timing, the fact that Osaka is visited by many Chinese nationals and the feeling was so similar that makes me quite sure that it was covid-19.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#43

Post by strict9 » Tue, Jul 13, 2021, 7:12 PM UTC

elzbardico wrote: post #27

Self-reported symptoms. And now we will have the litany of hypochondriacs that didn't even got tested for SARS-COV-2 but swear they have some misterious long term viral syndrome that in the real world, if it really exists, is extremely rare. The trash that passes as science nowadays.....

This is a shallow dismissal and isn't contributing anything of value to the conversation.

Further it disregards the multitude of commenters experiences with "self-reported symptoms."

https://news.ycombinator.com/newsguidelines.html

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#44

Post by TuringNYC » Tue, Jul 13, 2021, 7:12 PM UTC

abystander wrote: post #8

Since they claim a quarter of patients are showing symptoms and one of those is depression - how do they separate the out the effect of the de facto criminalization of social activity, an innate human behavior ingrained in our DNA after millions of years of evolution? You'd get significant depression in solitary confinement too.

I was about to say this also -- I haven't been to the gym for over a year and haven't done any real weight training or group exercise for this whole time in lockdown. It would be hard for me to separate the effect of that from long COVID, curious how the study is controlling for this factor.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#45

Post by gremlinsinc » Tue, Jul 13, 2021, 7:12 PM UTC

justwanttolearn wrote: post #11

mygoodaccount wrote: post #2

RESULTS: Symptoms were present in 385 (89%) participants at diagnosis and 81 (19%) were initially hospitalized. At six to eight months, 111 (26%) reported not having fully recovered. 233 (55%) participants reported symptoms of fatigue, 96 (25%) had at least grade 1 dyspnea 111 (26%) had DASS-21 scores indicating symptoms of depression. 170 (40%) participants reported at least one general practitioner visit related to…

I haven't had covid but I definitely suffer a lot of these symptoms from the pandemic burn out..

I had bronchitis symptoms for only a week in March 2020, didn't think it was covid, took antibiotics but miraculously this really bad case of Bronchitis cleared up 3 days later.... I get Bronchitis every year or other year... and it's almost ALWAYS a 3-4 week thing.

since then I've had brain fog, fatigue, pain in my extremities, numbness in hands/feet (off/on), body aches, when I stand sometimes I have to sit back down for a minute, my standing HR is about 130...just standing, AFTER getting up from sleeping. My sitting is 90... Walking is just 130-140... Depression, and the worst anxiety attacks of my life, just panic, can't stop racing thoughts, etc...

Most of this stuff stopped a few months ago when I started doing 2 hours of mindfulness per day after seeing some "glitch" in the matrix type stuff which isn't really relevant here...

I can't say for a certainty the weird Bronchitis was Covid, but a lot of signs point to that, and it cleared up after my vaccinations...so who knows...

Feel like 80% of normal, which is way better than the 20% I was feeling just this past March.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#46

Post by ping_pong » Tue, Jul 13, 2021, 7:14 PM UTC

ElViajero wrote: post #26

jacquesm wrote: post #3

One of those cases here. Symptoms: suddenly out of energy, occasionally suddenly being unable to spell, even mild physical exercise leaves me floored (and I was pretty fit for my age prior to this). So, 17 months in: it's still not back to where it used to be but if you think of it in terms of trends instead of absolutes it is definitely still improving. The downs are less far down, the fog is lifting and the energy…

I got CoVid in Osaka at the beginning of November 2019. The symptoms lasted around 5 months. I got it again in May 2021 and this time I was fully recovered in 3 weeks. I got vaccinated, even during the second infection I felt extremely tired and slightly confused, I want to minimize as much as possible the risk of repeating again. update: For all the down-votes. Time will say. But "A new study shows that first cases…

I'm sorry but Covid wasn't in Osaka in November 2019. You definitely had some other disease like the flu.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#47

Post by jacquesm » Tue, Jul 13, 2021, 7:14 PM UTC

bb2018 wrote: post #37

jacquesm wrote: post #3

One of those cases here. Symptoms: suddenly out of energy, occasionally suddenly being unable to spell, even mild physical exercise leaves me floored (and I was pretty fit for my age prior to this). So, 17 months in: it's still not back to where it used to be but if you think of it in terms of trends instead of absolutes it is definitely still improving. The downs are less far down, the fog is lifting and the energy…

I do wonder if this is proportional to your symptoms/proportional to other ailments. For instance, is someone with Covid (who was on the verge of needing oxygen) more likely to have long term symptoms than someone the same age who got the flu/pneumonia (and was also on the verge of needing oxygen). In other words - is there something unique about Covid? Or is that any disease that sets you back has serious long-term…

Good question, and one that I would like to have the answer to too. I also wonder what the effects are on longer term immunity, apparently there is some evidence that if you had a more serious case that your immunity will be longer lasting but I have yet to find something that is conclusive.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#48

Post by jjeaff » Tue, Jul 13, 2021, 7:14 PM UTC

ElViajero wrote: post #26

jacquesm wrote: post #3

One of those cases here. Symptoms: suddenly out of energy, occasionally suddenly being unable to spell, even mild physical exercise leaves me floored (and I was pretty fit for my age prior to this). So, 17 months in: it's still not back to where it used to be but if you think of it in terms of trends instead of absolutes it is definitely still improving. The downs are less far down, the fog is lifting and the energy…

I got CoVid in Osaka at the beginning of November 2019. The symptoms lasted around 5 months. I got it again in May 2021 and this time I was fully recovered in 3 weeks. I got vaccinated, even during the second infection I felt extremely tired and slightly confused, I want to minimize as much as possible the risk of repeating again. update: For all the down-votes. Time will say. But "A new study shows that first cases…

Do you happen to work in a biolab? How do you know you had covid in November 2019? The first known cases in Japan aren't until January 2020. And the first reported case in China is November 2019.

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#49

Post by iammisc » Tue, Jul 13, 2021, 7:15 PM UTC

When my first daughter was born in 2018, I had a respiratory infection. It lasted three months before I went in to the doctor. I hesitated to seek medical advice because it was clearly viral. But the cough was so bad it was causing the newborn to wake up.

The doctor (at a walk-in clinic) told me viral respiratory infections can last months and there's nothing you can do. Just wait. HE gave me some pills to stop the cough since it was interfering with my life.

That was it. It was about one year later that the cough finally dissipated. It got better after about 5 months, but it took many more months for all symptoms to go away.

I guess my question is... why did my doctor tell me that viral respiratory diseases can last for many months in early 2019, when according to what I gather here, doctors are surprised that COVID may do the same?

Re: Burden of post-Covid-19 syndrome and implications for healthcare planning

#50

Post by jacquesm » Tue, Jul 13, 2021, 7:16 PM UTC

kvnn wrote: post #33

jacquesm wrote: post #3

One of those cases here. Symptoms: suddenly out of energy, occasionally suddenly being unable to spell, even mild physical exercise leaves me floored (and I was pretty fit for my age prior to this). So, 17 months in: it's still not back to where it used to be but if you think of it in terms of trends instead of absolutes it is definitely still improving. The downs are less far down, the fog is lifting and the energy…

Have you seen this strategy for Long Covid? https://covid19criticalcare.com/covid-19-protocols/i-recover...

No, I haven't and reading that I immediately picked out one more symptom: reduced appetite. I have lost significant weight, and in fact I'm still losing weight (but much more slowly now). Down to about 68 Kg, 1,76 meters tall.