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Ask HN: How did an adult ADHD diagnosis help you?

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Re: Ask HN: How did an adult ADHD diagnosis help you?

#201
post #135

Earlier quoted context omitted.

Did you ever experiment with Adderall, Vyvanse or Ritalin? How did you end up with Strattera? I’m trying to triangulate a course for myself and still can’t pull the trigger on any of these for fear of side-effects or dependence.

Not the person you're replying to but Vyvanse gave me excruciating neck cramps, brain zaps and really cold fingers. My doctor said that I had a bit of an outlier reaction to it so YMMV but if you decide to go that route at least ask about the cramps lol. Adderall isn't a wonder drug for me but it tips the scale in my favor. I just take the standard release pills 'as needed' in the morning. It does tend to mess with m…

I was prescribed Adderall XR which did wonders for my symptoms but eventually I stopped taking it as my heart would race after doing any strenuous exercise. I wish that wasn't the case, as it did help.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#202
My 2c (not a Dr.):

* ADHD diagnosis could be useful for self-knowledge and for maybe acquiring medication;

* not sure what the neurological tests give you above and beyond a psychiatrist's expert judgement. Seems like they've got incentives to run expensive tests/use expensive machinery that don't necessarily align with the patient's.

I benefited from Concerta at a job but the self-knowledge gained from looking hard at my own abilities and disabilities was much more valuable. You might find the same.

Here's a resource on adderall you might find valuable: https://lorienpsych.com/2020/10/30/adderall/

Re: Ask HN: How did an adult ADHD diagnosis help you?

#203
post #133
post #100

Earlier quoted context omitted.

One hypothesis is that, in the country where you live, there is more stigma around ADHD in adults and it is more frequently ignored or dismissed. It is an easy condition to ignore —- adults with ADHD are frequently not very “hyperactive” because even if they were as children, they’ve learned to modulate that behavior through experience. The traits of inattentive-only ADHD are often written off as laziness when in rea…

Which raises another question: - How bad can it be, if it stays undiagnosed?

My wife was diagnosed with ADD (ADHD-I) at 20 (no points for H at all, literally none).

When all stimuli hit you at the same level it's really tiring. Someone clicking their pen, bird chirping outside, someone coughing in the hallway or the classroom next to you, someone picking his nose in the corner of your eyes etc. She isn't able to filter them at all.

I've come home to the place being flooded because she ran a bath but remembered she needed to do something in the kitchen, and that prompted something else, etc. We've fought because of little things, but those little things combined with having to process every single stimuli the world throws at you is difficult. If you're focusing on work, or just sitting around do you even register the things going on outside? She does. At the same 'volume' as the thing she's trying to focus on.

In high school she missed more classes than she went to. She was deemed lazy, dumb, and uncaring. We have three levels in the Netherlands and she barely completed the lowest one. Mainly because she was home sleeping, or just wandering off with her mind, migraines - you name it.

When she had to write school reports for a specific class the teacher would be baffled by the report. It went from the actual subject to a few pages of an English report, then a chapter of economics. I always imagined it as her having to go to the bathroom, coming back and remembering 'Shit I needed to write that book report for English class'. Because, obviously, this was only started just before or even after the deadline.

You'd think the schoolsystem would raise an alarm right? Nah, she wasn't exactly 'trouble' as in being busy / shouting / name any typical bad behaviour. She was just chaotic and 'dumb'. Real easy conclusion, especially when you have kids getting in fights and smoking joints - at least she was trying to do her homework.

So she missed a lot of opportunities, felt really bad about herself to put it lightly, and the migraines are a bitch too. I don't know if that's how bad it can be when undiagnosed but yeah. When the psychiatrist did the sessions / tried medications they also took an IQ test which indicated that when the world is not throwing stimuli at her (well it still is, but with the help of the meds she can filter it) she's actually really fucking intelligent (remember the lowest level she barely passed, could've easily done the highest level and moved on to university). After years of hard work catching up she did complete a BA and I couldn't be prouder. It's not easy believing in yourself after so many years of people saying you're dumb and lazy.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#204
post #185

Earlier quoted context omitted.

Whenever I visit the US, I inevitably end up sitting in front of a TV and I'm always so surprised at how many commercials are for drugs. Its just drugs and cars every 5 minutes all day long. I guess those groups have figured out how to advertise on HN now too.

Even as Americans we find these amusing. They tell you to "ask you doctor about x." Does anyone do that ever? They're also unintentionally hilarious now that they can't read the side effects at super speed, so 50% of the commercial is watching someone play with their dog while you learn that this allergy medicine is going to give you diarrhea and suicidal thoughts and maybe a heart attack. They must work somehow beca…

Actually, yes.

I take a medication that's routinely advertised. When they advertised an updated formula for it, I did ask my doctor if we should consider it. Turns out, it's not covered by the insurance, so, not today. But if it were, we'd certainly be considering it. Doctors are pretty notorious for the "if it's not broke, don't fix it", and leaving things as they lay, rather than bombarding patients with "the latest options". So, it can help patients interested in the condition to talk about these sorts of things.

Also, when my doctor proposed the medication, it helped I already had some indirect familiarity with it.

I sympathize with the caricature of medical advertising, and even advertising in general. We all "hate" advertising, but we all rely on it. Everyone pauses at an ad that catches their eye in some way.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#205
post #107

Anyone reading this should be extremely skeptical of internet strangers recommending drugs that gave them "superpowers", changed their life, etc. Taking these drugs will make anyone feel more focused, motivated, etc because these drugs are strong stimulants that cause euphoria, focus, and bursts of energy. Anecdotally, I've seen a huge uptick in posts of the format "how an ADHD diagnosis changed my life" on Reddit, T…

Theoretically, if you have ADHD the medicine shouldn’t make you ‘high’. If you don’t it will have that effect. This was told to me by a specialist (I am dubious though)

A normal dose can make you high or euphoric the first few times you take it. Eventually your body down-regulates and you don't experience a high, but if you read ADHD experiences on the internet you will often come across people who have just had their first dose and are clearly geeked up.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#207
Be wary of the possible dry mouth side-effect. As far as my experiences go the feeling of dry mouth is due to reduced saliva production, and just drinking water will not solve the issue. Too little saliva lowers your oral health and as a result can accelerate tooth decay (among other things).

Re: Ask HN: How did an adult ADHD diagnosis help you?

#208
post #33

I am medicated for ADHD, and my goal is to one day get off the meds, maybe in 5-10 years. Sounds like you've been functioning pretty well without them, which is a great reason NOT to start. Have you gotten any encouragement from people in your life to investigate ADHD, or is it just this therapist? I was encouraged by teachers and loved ones to look into it starting in grade 2, finally got a diagnosis about 5 years b…

The therapist, really. Kind of came out of nowhere. I am terrified of getting on meds, and my wife (a doctor) is also against them.

[deleted]

Re: Ask HN: How did an adult ADHD diagnosis help you?

#209
post #33

I am medicated for ADHD, and my goal is to one day get off the meds, maybe in 5-10 years. Sounds like you've been functioning pretty well without them, which is a great reason NOT to start. Have you gotten any encouragement from people in your life to investigate ADHD, or is it just this therapist? I was encouraged by teachers and loved ones to look into it starting in grade 2, finally got a diagnosis about 5 years b…

The therapist, really. Kind of came out of nowhere. I am terrified of getting on meds, and my wife (a doctor) is also against them.

Sounds like you have an intuitive read on the situation and maybe needed a bit of backup? My ADHD is bad enough that I barely graduated high school, and I'm totally sold on medication as a tool, but in this case it sounds like a hammer looking for nails.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#210
post #107

Anyone reading this should be extremely skeptical of internet strangers recommending drugs that gave them "superpowers", changed their life, etc. Taking these drugs will make anyone feel more focused, motivated, etc because these drugs are strong stimulants that cause euphoria, focus, and bursts of energy. Anecdotally, I've seen a huge uptick in posts of the format "how an ADHD diagnosis changed my life" on Reddit, T…

Thank you for posting this. And since these are all basically just anecdotes, I would also like to add mine. I got hooked on anxiety pills after a diagnosis (not the same thing as ADHD, but still), and the withdrawals were genuinely the worst things I've ever faced. Like I wouldn't wish that on my worst enemies. With drugs, especially habit forming ones backed by Big Pharma, you should always be on the side of cautio…

Thanks for this, my big fear is the effects of long-term use. I've had friends who were superheroes on Adderall, lost tons of weight, changed their lives. They couldn't see how manic they were.
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