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Ask HN: How did an adult ADHD diagnosis help you?

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Re: Ask HN: How did an adult ADHD diagnosis help you?

#41
I had a neuropsych evaluation (the neurological test) in my early 20's. It confirmed my diagnosis of ADHD and dyscalculia.

If you don't believe you're negatively impacted with ADHD type symptoms, it probably won't help you. It did help me manage the 'cycle of anxiety' brought on by ADHD-induced lack of focus and procrastination.

Stimulant medications do help, I'm on Concerta which is an extended release methylphenidate (Ritalin). It is not magic. I see a therapist to help with accountability and manage the chronic anxiety as well as develop systems to help me block my time and limit distractions.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#43
I'm a successful 33 year old adult in a career ideally suited to the way my brain works, so I was VERY skeptical about whether it would make any difference to my life to get diagnosed or go on meds. Now that I have, I can confidently say that it was a total game-changer and I wish my parents had gotten this done for me when I was a kid. It would've made so many things so much easier.

I currently only use my meds (specifinally, Vyvanse) once per week, because I don't love the side effects and I can manage fine without most of the time. On that one day per week, I do everything that my brain chemistry usually makes difficult, which is mostly paperwork and cleaning.

The difference it's made is HUGE. I went through a whole grieving process when I realized how much easier I could've had it all along. I can sit down, spend four hours doing my taxes, and then be done (and then realize the bathroom needs cleaning, and also do that), instead of sitting down, getting a snack, doing ten minutes of taxes, cuddling with the cat, starting a conversation, going on hacker news, doing ten minutes of taxes, going on hacker news, and finally finishing the taxes ten hours later at a quarter to midnight.

It's also made a huge difference to accept that some things are simply symptoms, and not signs that I'm a disorganized failure who'd too stupid to manage daily life. It's also helped to live with people who know and accept this about me, and who know that although I'm very good at managing my symptoms, sometimes things go wrong.

Yes, sometimes everyone is mildly inconvenienced because we were about to leave and now I have to go on a ten-minute WHERE IS MY WALLET tear through the house. It's fine! Sometimes, we're mildly inconvenienced because my girlfriend's insulin pumped is clogged and she needs to spend ten mins fussing with the catheter. These are things that happen when you have a chronic health condition, and no reason for anyone to get upset or berate anyone else. Accepting that has made me a much happier person.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#44
post #2

I've been on medication for about a week now and I've not thought about offing myself once since starting. That seems dramatic but honestly that used to be the default go-to answer for any problem that couldn't be resolved within a day or so. Seems a bit excessive of a response to problems now.. It really looks like my depression might be rooted in undiagnosed ADHD. I can also if not properly focus on tasks at least…

I'm not sure which med you are on, but I've been on adderall for about 12 years. Started during 1st year of a phd program.

In my experience with adderall... everything initially good about this particular Rx eventually fades away. Amphetamine makes you feel great. At the beginning really, really, great. It certainly helped me focus on whatever was in front of me, whether it was math homework or an iphone game. It became very important to ensure the right thing(s) were in front of me before taking meds (e.g. homework textbook or open IDE; not, for example, wikipedia, or email, or HN). Not getting enough sleep was the most acute negative effect of the meds. The battle for sleep continues to this day. The meds do suppress my appetite - they still do. It didn't help me lose as much weight as I'd hoped; turns out staring at a computer screen doesn't require a ton of calories.

These days I take as little Rx as possible, and I feel a lot better. I attribute a portion of this mood improvement to using a treadmill desk, which I started using ~2 years ago. I walk about 15-20 miles a day, while working (coding/writing/etc). I feel like it helps me focus, because I am "burning off" pent-up ADHD restlessness while working. And probably most helpful of all, I'm tired at the end of the day, so I fall asleep much easier.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#45
I was diagnosed once as a kid, and again as a teenager. I was prescribed medication just as fast as I was diagnosed. In either case it hasn't helped, as it concerns my focus. In fact I quite often felt worse when I relied on these later on. What it helped was to ascertain that I do not in fact have ADHD, and to learn that the diagnosis process is a complete joke.

My issue was primarily of chronic fatigue from inadequate sleep through my teen years, informed in part by high levels of anxiety and stress at home. Conversely as a kid, diagnosis came recommended by a teacher (!) because I was "daydreaming in class" - that's it. Details of my fatigue were made aware to the psychiatrist I was sent to at the time, but perhaps because I was scheduled for focus/attention issues, it was completely ignored.

I eventually regained my focus in adulthood, after pain and trepidation, with a multi-pronged approach that included reinvigorating sleep, reducing my anxiety levels, and diet / regular exercise.

Make no mistake: this is not to proselytize that "ADHD doesn't exist". But I would put it to you that since there is a perverse incentive to diagnose it, it's diagnosed as though everything is a nail in North America. There should be more credence given to the possibility that focus issues can be symptomatic of other problems.

I also find it dubious that children can so easily be diagnosed by virtue that a long day of boring lectures and sitting still is difficult to pay attention to. This is almost ubiquitous among children, though yes, it will exacerbate things more among kids who have more of a difficulty with focus. This brings to mind the story of Gillian Lynne, choreographer for Cats, who was brought to the doctor for her fidgeting - he suggested she go to dance school where she excelled. Why is it unthinkable that certain children be allowed to flourish in more appropriate environments? Because they're an inconvenience to adults - that's all. It's not less virtuous to be a person drawn to more physical engagement with the world.

Also see: A Disease Called Childhood: Why ADHD became an American Epidemic, by Marilyn Wedge, Ph.D.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#46
I was diagnosed with ADHD 7 months ago. The diagnosis and medication have been life-changing.

I was 'high-functioning', in much the same way as OP: stable marriage, successful career, not much savings but at least not in any debt.

But I also suffered from depression, anxiety, extreme procrastination, substance abuse, risky and impulsive behaviour.

Of course I saw psychiatrists, and they stopped listening the moment I said "depression" and prescribed the usual drugs, which did nothing for me. Luckily my 3rd psychiatrist listened a bit better and referred me for tests.

Since diagnosis I have started medication (methylphenidate/Ritalin, the only real option in the country I live in) my life has significantly improved. My procrastination is almost entirely gone (now maybe 4 hours a week "wasted" instead of 3+ days of being unable to do anything productive), my work performance is drastically improved, I'm losing weight (no longer dopamine-hunting with food), my wife says I'm doing more 'chores' and forgetting little things (spoon in the sink instead of the dishwasher) less often.

My depression and anxiety have disappeared. I still get overwhelmed in loud/busy environments. I still have emotional overreactions to small annoyances. I still forget things, and procrastinate a little. But the key thing is acceptance. I understand why these things are happening now, and that understanding makes them less hard to do live with.

Even if you don't start medication (and I suggest you do, it's provably incredibly effective for most cases) the biggest thing you can do is learn. You will be amazed for the first 6 months at least that such a massive amount of your life has truly been affected and so much of your 'unique personality' is shared with other ADHD adults.

My psychiatrist answered my same question "How can I have ADHD if my life is like this?" with "But how hard was it?". Success despite ADHD doesn't mean it doesn't exist. It just means you developed coping strategies for your deficiencies. And if you're in therapy for family issues then clearly those strategies are not working sufficiently.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#47
post #43

I'm a successful 33 year old adult in a career ideally suited to the way my brain works, so I was VERY skeptical about whether it would make any difference to my life to get diagnosed or go on meds. Now that I have, I can confidently say that it was a total game-changer and I wish my parents had gotten this done for me when I was a kid. It would've made so many things so much easier. I currently only use my meds (spe…

The grieving process was intense for the first few months. It was somewhat amazing to notice the "stages" as they happened. Anger, towards my parents and my teachers and my psychiatrist, was the hardest to deal with.

But acceptance came, and it's the best I've felt in years.

Glad to see others in this thread like yourself with such similar experiences.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#48

It's important to note that an ADHD diagnosis does not necessarily end with stimulant medication. Stimulant medication can be helpful for some people, but it's not the only way to treat ADHD. Having an ADHD diagnosis could help you choose appropriate therapy methods, self-help practices, and other self-improvement measures. Of course, an ADHD diagnosis isn't necessary to begin implementing better time management prac…

> It's important to note that an ADHD diagnosis does not necessarily end with stimulant medication. Stimulant medication can be helpful for some people, but it's not the only way to treat ADHD.

One may not need medication, but also don't be TOO reluctant to use medications. After my diagnosis, I fell back into the "Now that I know, I should be able to do this with will power and todo lists" trap and resisted medication for too long. Going on medication was, and is, life changing for me (16 months later).

The rest of your advice is dead on!

Re: Ask HN: How did an adult ADHD diagnosis help you?

#49
I have recently been diagnosed while being in a very similar situation as you. I have had and still have a successful career, I'm in a stable relationship, have good savings and a great life.

I've been seen as gifted as a child so fit within the so-called twice exceptional criteria...

I don't regret getting diagnosed and having confirmation of it (I ran relatively extensive tests to confirm this which took 8 hours in total and cost me quite a bit).

In my case, it's been helpful because I'm moving more and more towards management and ADHD is sometimes detrimental to some of my new responsibilities. Knowing that I have ADHD and reading about resources to manage it has certainly been helpful.

I was prescribed Concerta which is helpful on some days when I need to work on things that are extremely boring and that I'd normally have a hard time doing. However, I take it less than 4 times a month, so extremely rarely. I have however noticed that I cannot take it on days when I am sleep deprived as it would cause me to become extremely sleepy.

Re: Ask HN: How did an adult ADHD diagnosis help you?

#50
post #18

I'd recommend everyone who thinks he or she has ADHD to keep in mind that there are clinics who literally make money by diagnosing you. So make sure you don't go to one of those. This is a problem, even in the Netherlands https://www.trouw.nl/zorg/in-de-adhd-fabriek-is-de-diagnose-... I wish I could find a translated version for you. Anyways, Methlyphinidate (ritalin) should be your very LAST step. Before that, clean…

Yeah, if _things_ distract you easily, it's one thing. Notifications are DESIGNED to distract you, if they do, that's not an indicator of anything. ADHD is more like "I was cooking dinner and got distracted by the idea of cleaning the toilet, so here I am buying new socks. Oh, the unfinished dinner is still on the counter."

Your example is a pretty extreme caricature; I suspect many of us are more familiar with the slower but broader version of this sequence where we gain and lose interest in careers/partners/lifestyles with alarming and exhausting frequency.
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