English medical records are about to be given away. As GPs, we’re fighting back • Hacker News Board

Re: English medical records are about to be given away. As GPs, we’re fighting back

#81

Post by nanis » Mon, Jun 07, 2021, 5:02 PM UTC

dekhn wrote: post #49

dkarp wrote: post #43

Earlier quoted context omitted.

https://en.wikipedia.org/wiki/Preimplantation_genetic_diagno... https://www.nature.com/articles/d41586-019-00673-1 23andMe/AncestryDNA

the first link predates the movie and isn't really the same thing. IIRC they don't edit babies in the movie. (you're arguing with a biologist who worked in this field, I'm making the point that the movie has not fundamentally come true, even if there are some details are the edges that resemble it).

As I said, "becoming" not "has come true".

Everything is in place for Gattaca to come true. With more centralized control of health care expenditures, the incentives of bureaucrats will be lined up and full tracking of one's genetic makeup, life choices, and current conditions, the sky is the limit.

Re: English medical records are about to be given away. As GPs, we’re fighting back

#82

Post by Dah00n » Mon, Jun 07, 2021, 9:54 PM UTC

chrisseaton wrote: post #12

Dah00n wrote: post #9

Is this possible because of Brexit or is it just more unlawful data collection in the UK? If I (in Denmark) switch GP my new GP can't see my journals without me filling out a form to allow it and hospitals definitely can't access them no matter what as it is two independent systems.

> is it just more unlawful data collection in the UK? What makes you think any of this is 'unlawful'?

Well, it was meant as a question but I can see it came out as an accusation but after having read about the unlawful GCHQ data collection court case the other day and then this article saying that this is "unwarranted, unparalleled in its scale and implications and quite possibly unlawful" I arrived at unlawful. Especially as this seems to go back quite some years in different forms and I'm quite positive that the EU (GDPR etc.) would not like this. But I'm neither a lawyer or live in the UK (though I do have family in England so I follow the happenings more than most foreigners I guess).

Re: English medical records are about to be given away. As GPs, we’re fighting back

#83

Post by alex77456 » Wed, Jun 09, 2021, 4:25 PM UTC

Broken_Hippo wrote: post #22

wiz21c wrote: post #11

Earlier quoted context omitted.

From the page : "You can opt out of sharing your data" No no no triple no. Don't opt me in. Full stop. I'll opt in if I want to. 99% of people just don't get it enough to opt out. So please, take a default that protects people first.

...take a default that protects people first. I'm not convinced opting out is the thing that protects people. More information going to the folks that can use it to help people is the option with the most protection for folks. Having health care that is responsive in the right ways helps people. Better medicine is better for everyone. Folks like you - the ones with strong opinions - can opt out. It is like this becau…

https://news.ycombinator.com/item?id=27436310