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NHS response to this and similar allegations Collecting GP data - advice for the public: https://digital.nhs.uk/data-and-information/data-collections...
No no no triple no. Don't opt me in. Full stop. I'll opt in if I want to.
99% of people just don't get it enough to opt out. So please, take a default that protects people first.
Is this possible because of Brexit or is it just more unlawful data collection in the UK? If I (in Denmark) switch GP my new GP can't see my journals without me filling out a form to allow it and hospitals definitely can't access them no matter what as it is two independent systems.
What makes you think any of this is 'unlawful'?
Is this possible because of Brexit or is it just more unlawful data collection in the UK? If I (in Denmark) switch GP my new GP can't see my journals without me filling out a form to allow it and hospitals definitely can't access them no matter what as it is two independent systems.
They're at it again. This one seems like another care.data only possibly worse. For those who would like to opt out, see here: https://medconfidential.org/how-to-opt-out/ Note that if you haven't previously opted out from similar plans for data sharing, you'll probably need to opt out of two separate systems this time, one for sharing your GP records and one for sharing records from other sources like hospitals. The…
NHS response to this and similar allegations Collecting GP data - advice for the public: https://digital.nhs.uk/data-and-information/data-collections...
From the page : "You can opt out of sharing your data" No no no triple no. Don't opt me in. Full stop. I'll opt in if I want to. 99% of people just don't get it enough to opt out. So please, take a default that protects people first.
Their argument is that having high-quality data to plan healthcare is protecting people.
If people want the state to manage and pay for your healthcare, the state needs information to plan that for everyone. You can already 'opt out' entirely by purchasing your own healthcare if you aren't prepared to contribute.
The fact that GPs are acting as some kind of custodians for this data isn't it also the same problem? This data should belong to their owners: the patients.
Some of this information may be urgently needed at a time when the patient is not capable of giving informed consent for its disclosure or does not have it immediately available.
Some of the information may be vital to the future healthcare of the patient and would cause serious harm to them if it were lost.
And in more of a more morally grey area, some information might be harmful to the patient if they had it. For example, consider the implications of bluntly disclosing various mental health diagnoses to someone who doesn't fully understand what they mean and whose condition means they won't necessarily respond rationally or beneficially to the information.
In this case, having the records kept locally by exactly one organisation that is run by medical professionals who are bound by strong professional ethics seems like a reasonable policy.
Earlier quoted context omitted.
From the page : "You can opt out of sharing your data" No no no triple no. Don't opt me in. Full stop. I'll opt in if I want to. 99% of people just don't get it enough to opt out. So please, take a default that protects people first.
> So please, take a default that protects people first. Their argument is that having high-quality data to plan healthcare is protecting people. If people want the state to manage and pay for your healthcare, the state needs information to plan that for everyone. You can already 'opt out' entirely by purchasing your own healthcare if you aren't prepared to contribute.
This is literally going against the underlying principles of the NHS. There is no 'transaction' going on here. I already contribute to the NHS through my taxes.
Earlier quoted context omitted.
> So please, take a default that protects people first. Their argument is that having high-quality data to plan healthcare is protecting people. If people want the state to manage and pay for your healthcare, the state needs information to plan that for everyone. You can already 'opt out' entirely by purchasing your own healthcare if you aren't prepared to contribute.
> If people want the state to manage and pay for your healthcare, the state needs information to plan that for everyone. You can already 'opt out' entirely by purchasing your own healthcare if you aren't prepared to contribute. This is literally going against the underlying principles of the NHS. There is no 'transaction' going on here. I already contribute to the NHS through my taxes.
Bizarre claim. The underlying principle of the NHS is socialised healthcare. Opting out of contributing to allow the NHS to plan for everyone's healthcare is the opposite of being social.
> There is no 'transaction' going on here. I already contribute to the NHS through my taxes.
Seems self-contradictory?
For anyone (like me) who is no longer resident in England, you can find your NHS number with [1], then use it (plus a UK VPN) to opt out here [2]. As I understand it, [2] covers hospital data etc, but not GP data, which is the recent data grab and the subject of the article. I have written to the GP I was last registered at to see if they still hold any data on me, and whether they were intending to share it without…
Sorry, you cannot see this page
This might be because:
* you're outside of the UK and this service is only
available in the UK
Earlier quoted context omitted.
From the page : "You can opt out of sharing your data" No no no triple no. Don't opt me in. Full stop. I'll opt in if I want to. 99% of people just don't get it enough to opt out. So please, take a default that protects people first.
> So please, take a default that protects people first. Their argument is that having high-quality data to plan healthcare is protecting people. If people want the state to manage and pay for your healthcare, the state needs information to plan that for everyone. You can already 'opt out' entirely by purchasing your own healthcare if you aren't prepared to contribute.
Similarly, it is already possible for research groups to contact patients with certain conditions indirectly (via the clinical professionals treating them) and invite them to participate in research programmes that they might be able to help. Again, there is no need to create the most risky personal data lake in the history of the UK to achieve this.