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FDA approves new ADHD drug for children

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Re: FDA approves new ADHD drug for children

#311

Earlier quoted context omitted.

> What you may not believe is that you are no longer in control of wanting to get more. That’s the reality of a drug. Really? I’ve repeatedly asked to stay at the same dose even though my doctor and I both agree it may be too low, because the next step up could be too high and disrupt my life. > Anyway, have the paranoid episodes hit you yet? When I was drinking way too much to self medicate? Yeah. Not so much since.…

I can only think of art to represent how it goes down: https://youtu.be/RkT4Xd3mDwI Tyler is your drug, he will justify anything, the ego. I think this is about where we came in. Flashback humor. Edit: I have this voice in my head too: https://youtu.be/Gd_6b7rpeEI For what it’s worth, I’m going all the way, this time sober.

Okay this is ridiculous. We’re having a debate about future facts about my life.

But they’re relatively verifiable future facts. Let’s make this one of the rare cases of “someone is wrong on the internet” where “who’s wrong?” is an answerable (and answered) question.

You’re so confident you know what will happen if I continue to use prescription medication that I depend on. Are you confident enough to invest some money in it? I am.

1. Pick a (verifiably not you) third party who you trust. Someone who can be trusted to initially make this agreement public. I’ll choose one to mirror for public access, and trust your representative party from there.

2. I’ll authorize a medical release with my psychiatrist allowing full disclosure of my current prescriptions, any future prescription changes, my doctor’s personal opinion about my disposition as it relates to meds (present and over time), and any future doctor changes to your chosen representative party.

3. If I change doctors, I will authorize the same release. If I fail or refuse to do so within one month (time allowance purely for reasonable life changes), I forfeit.

4. We both select and disclose an organization, charity or benefactor of our choosing (again provably not ourselves).

5. We agree to a level of financial risk (with no clear possibility of financial gain). We each place a cash value (pending agreement) into an escrow account (details also pending agreement). We authorize that account to act on our behalf failing consent after some (pending agreement) period without acquiescence.

6. We select a contribution level we’re both comfortable with, and deposit it. My initial suggestion is $100, but if you think that’s too high (burden) or too low (not enough risk), I’m open to reconsider it.

7. On a regular schedule (my initial suggestion is every six months, unless you object), we enlist your chosen third party to contact my doctor/access relevant medical records and determine whether I’ve exhibited drug-seeking behaviors or other relevant cause for concern.

8. If any such concern is raised, you have my permission to make it public. I have a right to verify it with my doctor/any future doctor falling under this agreement. Disagreements are to be discussed/settled in public. I reserve the right to publish relevant letters from said doctor/future doctors. Anything I publish from an undisclosed doctor likewise means I forfeit.

9. For each evaluation period, there are two possible outcomes:

a) Neither of us admits we were wrong. The amount deposited in escrow is split evenly among our chosen recipients.

b) One of us admits we were wrong or want to cancel the agreement for any reason. The amount deposited in escrow is granted to the other party’s chosen recipient.

10. Each period this persists, following dispersal of the previous period’s donations we’re expected to deposit for the next period. Again all public record according to the same terms. If either of us fails or refuses to do so, that constitutes forfeit.

11. In the event we reach this point, I want to also suggest we increase the stakes. My suggestion is 10% of the previous period’s investment (again open to reasonable adjustments higher or lower for the same reasons).

12. This would be a friendly agreement in principle which we expect to benefit others, but we both reserve the right to contact an attorney if it gets stupid, for our own respective values of stupid.

If you’re in I’m in. If you are, I’m donating my medical experience to public scrutiny regardless of who’s right. That’s something I welcome and I hope you do too.

Re: FDA approves new ADHD drug for children

#312

Earlier quoted context omitted.

> Do lower reading comprehension, stunted long and short term memory, and a constantly wandering mind also factor in there? Yes! These are even pretty common symptoms addressed in youth. And the rest of your comment is pretty much the story of my life give or take a few degrees. If these are still difficulties for you or if you ever find them to be again, I highly encourage learning more about how ADHD presents in ad…

Do you have any tips on dealing with these issues as an adult? I saw meditation mentioned at least.

Meditation is great if it suits you. Also know no one owns the source code, which is to say you’re entirely free to pause, calm yourself, get grounded however you prefer. No one is in charge but you.

I find nominal meditation practices exhausting. I find meditative practices that don’t claim to be universal much more accessible.

Navigating the actual difficulties: I’m benefitting from a diagnosis and medicine. Before that it was basically chance and very specific life tools/adaptations.

Re: FDA approves new ADHD drug for children

#313

Earlier quoted context omitted.

I can only think of art to represent how it goes down: https://youtu.be/RkT4Xd3mDwI Tyler is your drug, he will justify anything, the ego. I think this is about where we came in. Flashback humor. Edit: I have this voice in my head too: https://youtu.be/Gd_6b7rpeEI For what it’s worth, I’m going all the way, this time sober.

Okay this is ridiculous. We’re having a debate about future facts about my life. But they’re relatively verifiable future facts. Let’s make this one of the rare cases of “someone is wrong on the internet” where “who’s wrong?” is an answerable (and answered) question. You’re so confident you know what will happen if I continue to use prescription medication that I depend on. Are you confident enough to invest some mon…

[deleted]

Re: FDA approves new ADHD drug for children

#314

Earlier quoted context omitted.

I can only think of art to represent how it goes down: https://youtu.be/RkT4Xd3mDwI Tyler is your drug, he will justify anything, the ego. I think this is about where we came in. Flashback humor. Edit: I have this voice in my head too: https://youtu.be/Gd_6b7rpeEI For what it’s worth, I’m going all the way, this time sober.

Okay this is ridiculous. We’re having a debate about future facts about my life. But they’re relatively verifiable future facts. Let’s make this one of the rare cases of “someone is wrong on the internet” where “who’s wrong?” is an answerable (and answered) question. You’re so confident you know what will happen if I continue to use prescription medication that I depend on. Are you confident enough to invest some mon…

It’s all good, I was just trolling ya’ll. No hard feelings :)

What I can offer you is a private email in the event you ever think you might need someone that gets it (could be years down the line or never). I won’t be shocked and I’ll listen, if you are not above that.

Re: FDA approves new ADHD drug for children

#315

Earlier quoted context omitted.

Okay this is ridiculous. We’re having a debate about future facts about my life. But they’re relatively verifiable future facts. Let’s make this one of the rare cases of “someone is wrong on the internet” where “who’s wrong?” is an answerable (and answered) question. You’re so confident you know what will happen if I continue to use prescription medication that I depend on. Are you confident enough to invest some mon…

It’s all good, I was just trolling ya’ll. No hard feelings :) What I can offer you is a private email in the event you ever think you might need someone that gets it (could be years down the line or never). I won’t be shocked and I’ll listen, if you are not above that.

I’m absolutely willing to get banned over this if it comes to that: eat my actual shit. The way you’ve treated me and everyone with an ounce of sincerity in this discussion has been terrible. Why would I ever want to confide in you or trust that you have any intention of helping me? Maybe go recover from having your giant self important head up your ass.

Re: FDA approves new ADHD drug for children

#316

Earlier quoted context omitted.

Breathing exercises work. I do them every single day, and I no longer have to take anxiety medication. I am almost always aware of my /breathing patterns/. You may want to search for "breathing" on Hacker News. Here are actual extremely informative comments to go through, sorted by most recent (this is important because of COVID-19 as people have been thinking about breathing more): https://hn.algolia.com/?dateRange=…

Thanks for elaborating, I'm vaguely familiar with what's known as "breathwork" but had no idea there were specific electronic devices/development like this. Do you find the electronic device a necessity to achieve results? It sounds like it's worth it to you, but >$1k is a bit steep of an initial ask.

I would just start off with the Airofit Pro. That is what I started off with. I saw the benefits from the Airofit Pro and did a lot more research on Respiratory Muscle Training before going to the IDIAG P100. Of course, I use both the Airofit Pro and the IDIAG P100, every single day, although for a different set of purposes. But, you should absolutely start off with the Airofit Pro, before even considering the IDIAG P100.

IDIAG (the company that makes the IDIAG P100) just raised the price on their device, likely in the past couple of weeks. I got it for around 650 EUR. I cannot believe that they just about doubled the price. I found that out about a couple of days ago, and it really disappointed me, even though it truly is a remarkable device. There is an older model of this device, that is on sale and specifically does isocapnic hyperpnea (see: https://www.spirotiger.net/en/products/spirotiger-go). You can also find used ones online.

Besides being unfit and needing to lose weight, I also have health conditions that worsen my exercise tolerance. I use the IDIAG P100 to increase my exercise tolerance, and it helps me, tremendously. There are studies to prove the significant increase in endurance, if you search for "isocapnic hyperpnea", "isocapnic hyperpnoea", "normocapnic hyperpnea", or "normocapnic hyperpnoea", on like Google Scholar, for example. You can also try searching for "SpiroTiger" or "Spiro Tiger" (an older model to the successor IDIAG P100) on like Google Scholar to verify.

A byproduct of using the device is that it really calms me down for the rest of the day, when I use it in the morning. I sometimes also do Respiratory Muscle Endurance Training (RMET) about 2 hours before I go to sleep and I sleep a lot more restfully and my sleep quality has improved, because I am calmer. It also helps me wind down at night.

I agree with you that it is extremely steep for an initial ask. The device came out in 2020, also. I would wait for more reviews. This technology is used more in Switzerland and Germany, so you may want to keep this in mind when searching for reviews. You may need to use Google Translate when scoping out info online. But, I would absolutely wait.

The Airofit Pro definitely makes you more aware of your breathing, basically all the time. I started off with that before going to the IDIAG P100. When I benefited from the Airofit Pro, I decided to do more research into Respiratory Muscle Training and I learned about RMET (and isocapnic hyperpnea), and I figured out that it would be a good idea to augment my training with that, as I had already been getting great results with the Airofit Pro. But, isocapnic hyperpnea has helped me the most, overall.

Re: FDA approves new ADHD drug for children

#317

Earlier quoted context omitted.

Okay this is ridiculous. We’re having a debate about future facts about my life. But they’re relatively verifiable future facts. Let’s make this one of the rare cases of “someone is wrong on the internet” where “who’s wrong?” is an answerable (and answered) question. You’re so confident you know what will happen if I continue to use prescription medication that I depend on. Are you confident enough to invest some mon…

It’s all good, I was just trolling ya’ll. No hard feelings :) What I can offer you is a private email in the event you ever think you might need someone that gets it (could be years down the line or never). I won’t be shocked and I’ll listen, if you are not above that.

Also after some thought, I flagged your response. I recognize that it will add scrutiny to my own. But I welcome this community’s moderation and I think the way you’ve acted is more important than my emotional reaction.

Re: FDA approves new ADHD drug for children

#318
post #222

Earlier quoted context omitted.

ADHD medication is perfectly safe and not addictive (at prescribed doses). If you don't want to take it, just don't do it. Since the US makes it so hard to get (you have to renew your prescription every month) it's actually very likely you'll stop it.

For some values of “perfectly safe”. From TFA: Qelbree "may increase suicidal thoughts and actions in some children with ADHD, especially within the first few months of treatment or when the dose is changed," https://www.psychiatryadvisor.com/home/topics/adhd/stronger-...

Tylenol is widely considered a safe drug even though overdose of 4x the normal dose is near certain death. You do have to watch out for these things.

In this case, medication tends to report silly things as side effects because they report every single thing the patients are experiencing. There's no frequency of reports here, but it could be just a few reports with no causation established.

Re: FDA approves new ADHD drug for children

#319
post #294

Earlier quoted context omitted.

> If you overlap Elon Musks behavior (or a number of quite famous musicians) with ADHD diagnosis charts, you’re going to have a fun time. That's cocaine. You're thinking of cocaine.

Interestingly enough, many people can easily mistake untreated ADHD (or not adequately controlled) with cocaine and stimulant use, especially hyperactive type. Cocaine and stimulant use in people without ADHD obviously causes that issue (cocaine use), along with some other problems (euphoria, lack of empathy, megalomania, sleep problems). It’s quite striking when you see it happen with someone you know (all while won…

> Interestingly enough, many people can easily mistake untreated ADHD (or not adequately controlled) with cocaine and stimulant use, especially hyperactive type. Cocaine and stimulant use in people without ADHD obviously causes that issue (cocaine use), along with some other problems (euphoria, lack of empathy, megalomania, sleep problems).

This is true but I should point out that "normal people" taking stimulants won't necessarily get hyper. You might get more calm and focused too. Claiming that Adderall works differently on ADHD people is a sort of marketing technique to stop it from getting banned entirely (like it is in Asia), because otherwise even more people would be trying to use it as a study drug.

Somehow modafinil has a reputation as a wonder drug that works on everyone, even though the way it works is not very different.

Re: FDA approves new ADHD drug for children

#320
post #263

Seems that lots of people only think ADHD people have a hard time paying attention. If it was that simple I would be so happy. Here are just a few of the things I struggle with. - Will power. People with ADHD struggle sooooo much with will power. It’s a constant struggle with everything in life and really wears you down. - Constantly putting on a fake front pretending you don’t have ADHD. - Rejection sensitivity - Fe…

Question - I've managed (bottom-up, servant-leadership, small smart teams) a few very very smart people who may or not have had ADHD, or been partially on a spectrum or ... I truly appreciated the awesome work and have been open and honest and dealt with all sorts of emotional issues and variable progress on simple tasks and diving down rat-holes etc and seen some amazing overall results and had some great co-workers…

I've found myself, really wanting to reengineer code and have been fired from projects as I mostly freelance...

It's sort of a two way street... Knowing the expectations, convincing us that the bear minimum is all that's needed.

Just fix the bugs. Keep your head down. Don't rewrite 2k lines of code that's ugly and not broken...

Then I think positive two way communication is good... As the op said we suffer from fear of rejection bad also as a given imposter syndrome so if I get good feedback, I know I'm doing what you want, that you're happy... Etc.

I think part of wanting to reengineer may be wanting to convince the boss in the scenario or ourselves that we aren't just faking it and adding 20 hours to a budgeted 5 hours ends up having the reverse effect.

Tldr: good conversation, praise where due to reinforce good work and constructive criticism when something needs to change.

I was a lot worse in this respect as a junior dev... So that may also be a factor, the more ppl I work with the better I am.

I have ADHD and could be slightly ASD or just overlapping on symptoms which is common. Wasn't diagnosed till 3 years ago, medicine and exercise changed my life.

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