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The Last Children of Down Syndrome

theatlantic.com

11–20 of 142 posts

Re: The Last Children of Down Syndrome

#11
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

Darwin isn't going anywhere, but the rate of change sure has picked up.

Re: The Last Children of Down Syndrome

#12
Having a child is terrifying enough. Some folks might be up for the challenge of supporting a child with special needs for their entire life (or a good chunk of it), but I'm not afraid to say that it was a huge relief to know that my son had no known genetic abnormalities before he was born.

There's nothing to be ashamed of here.

Re: The Last Children of Down Syndrome

#13
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

> will result in mankind accumulating more and more genetic defects Why? Unless the Down Syndrome patients themselves have children, then there wouldn't be an evolutionary impact.

Are you planning to make laws that will make it illegal for people with genetic defects to procreate? Seriously?

Re: The Last Children of Down Syndrome

#14
> Yet a gulf seems to separate the publicly expressed attitudes and private decisions.

I would be more surprised if this were not true. It's not very PC to say, but quite simply being different is not inherently a moral good. Downs Syndrome in particular is more controversial, because people who have this disorder typically are happy in their lives. I've spent a not insignificant part of my life working with teenagers and adults with Downs Syndrome as a volunteer, and all of the people I've worked with have been cheerful and generally seem to have a high enjoyment factor in their lives. On the flip side, all of them required life-long assistance and care, never able to function completely independently, and lacking in almost all other meaningful quality of life factors.

It is entirely possible, without any dissonance whatsoever, to respect the autonomy and wonder of human life and the rights of people with disabilities, while also understanding that having children with debilitating permanent disabilities can be a heartbreaking exercise that drains you emotionally, mentally, and physically. Nobody reasonable wishes for their child to suffer from such a disability, so the moral implications of the shift towards prenatal screening and following abortion are more about the abortion than the rest of the conversation. Denmark, in particular, has a very open social view towards abortion, so the fact that abortion rates are so high when negative screening occurs is unsurprising. I'm sure the result would differ in other countries in proportion roughly to their social views on abortion.

Re: The Last Children of Down Syndrome

#15
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

Eh, realistically human evolution has been driven by almost all sexual selection for most as long as we've been around.

Re: The Last Children of Down Syndrome

#16

Special attention must be given to evaluating the morality of prenatal diagnostic techniques which enable the early detection of possible anomalies in the unborn child. In view of the complexity of these techniques, an accurate and systematic moral judgment is necessary. When they do not involve disproportionate risks for the child and the mother, and are meant to make possible early therapy or even to favour a seren…

I hope I'm not following the argument, because it sounds like he thinks we should have other people around 'suffering with serious disabilities' so we can be reminded how precious life is. If so, that's cruel to the point of perversity.

It's saying that if we terminate base on a disability we are preventing that person from a chance a life based on the assumption that it would be better not to exist rather than have the disability in question. Those born with these disabilities might disagree and they might see such an action as a judgement against their own existence. This further adds to their suffering.

Re: The Last Children of Down Syndrome

#17
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

There always after-birth abortion, although that's probably a lot less ethical.

Re: The Last Children of Down Syndrome

#18
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

> will result in mankind accumulating more and more genetic defects Why? Unless the Down Syndrome patients themselves have children, then there wouldn't be an evolutionary impact.

Why wouldn’t the Down Syndrome patients themselves have children?

Re: The Last Children of Down Syndrome

#19
post #14

> Yet a gulf seems to separate the publicly expressed attitudes and private decisions. I would be more surprised if this were not true. It's not very PC to say, but quite simply being different is not inherently a moral good. Downs Syndrome in particular is more controversial, because people who have this disorder typically are happy in their lives. I've spent a not insignificant part of my life working with teenager…

> meaningful quality of life factors.

What are these?

Re: The Last Children of Down Syndrome

#20
post #11
post #8

Prenatal testing is one of the few solutions to this "post-darwinian" world (not in the usual sense of the word) with its modern medicine that will result in mankind accumulating more and more genetic defects. Though slightly more ethical from my point of view would be gene-editing to remove those defects, instead of just terminating the fetus. Edit: Also I'm not talking about down syndrome specifically. There's a lo…

Darwin isn't going anywhere, but the rate of change sure has picked up.

Those damn seatbelts never should’ve been invented.
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