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We’re a Lot Better at Fighting Cancer Than We Realized

cshl.nautil.us

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Re: We’re a Lot Better at Fighting Cancer Than We Realized

#11

Post by jcims »

trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

I couldn’t agree more, I’ve been down a road similar to yours and understand the frustration and rage. The headline is complete bullshit, it should read something more like ‘it turns out we have way more tools to fight cancer then we ever bothered to look for, does anyone have the courage to put them into practice?‘

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#12

Post by drocer88 »

trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

U.S. cancer treatment is the best in the world. The greatest research, innovation and results[1] happen in America. These are products of American Society. American Society is actually pretty good at fighting this disease.

We devote huge resources to preventing, diagnosing and treating and have made great progress. The CAR T-Cell innovations are very promising and American research is making it work.

Families often face tragedy but U.S. Medicine is leading the world in this fight.

[1] https://worldpopulationreview.com/country-rankings/cancer-su... .

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#13

Post by izacus »

drocer88 wrote: post #12
trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

U.S. cancer treatment is the best in the world. The greatest research, innovation and results[1] happen in America. These are products of American Society. American Society is actually pretty good at fighting this disease. We devote huge resources to preventing, diagnosing and treating and have made great progress. The CAR T-Cell innovations are very promising and American research is making it work. Families often f…

From a pure conversational/social/emotional perspective, you maybe shouldn't lecture someone who's actually going through the first hand experience with the disease.

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#14

Post by agumonkey »

trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

When my uncle got cancer I thought, even with the near zero chances, at least we'd get to see a clean battle. But lots of things were disorganized and weak. I also kinda caught a high ranked guy hiding the truth partially (claims no difference between hospitals at first, then boasts about his facility .. mentioning all the benefits of being here in passing, I ask again for transfer he started stuttering saying no difference again)

I kinda share your sentiment, there's an industrial aspect in cancer care (which I can understand to an extent) but it hurts when you're living it first hand.

ps: I almost miss the early days of cancer where stage 4 cancers were dealt with more motivation and less formalities. Alas.. (based on Vince de Vita book)

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#15

Post by drocer88 »

izacus wrote: post #13
drocer88 wrote: post #12

Earlier quoted context omitted.

U.S. cancer treatment is the best in the world. The greatest research, innovation and results[1] happen in America. These are products of American Society. American Society is actually pretty good at fighting this disease. We devote huge resources to preventing, diagnosing and treating and have made great progress. The CAR T-Cell innovations are very promising and American research is making it work. Families often f…

From a pure conversational/social/emotional perspective, you maybe shouldn't lecture someone who's actually going through the first hand experience with the disease.

Most families deal with cancer at some time. Few are unaffected. Maybe we need focus on the hard part of fixing things. We can acknowledge emotions, get moderation of opinions and celebrate empathy but we need measurable results.

U.S. Society is delivering on these.

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#16

Post by copperx »

trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

I'm curious about what kind of cancer masquerades as iron deficiency, an infection, and a benign tumor?

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#17

Post by donatzsky »

drocer88 wrote: post #12
trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

U.S. cancer treatment is the best in the world. The greatest research, innovation and results[1] happen in America. These are products of American Society. American Society is actually pretty good at fighting this disease. We devote huge resources to preventing, diagnosing and treating and have made great progress. The CAR T-Cell innovations are very promising and American research is making it work. Families often f…

That doesn't mean that the system isn't dysfunctional. Merely that it's less dysfunctional than elsewhere.

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#18

Post by chiefalchemist »

trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

I'm sorry for your pain. Unfortunately, as it's said: "The future is already here, but it's unevenly distributed."

Healthcare isn't designed or trained to be cutting edge. Leave the beaten path and you'll end up in court.

As for the societal level, if you're talking about the USA, we're shit in general. Look at opioids and obesity. Those two alone consume significant resources. Limited resources. Resources that can be used by people in your shoes.

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#19

Post by tornato7 »

trynewideas wrote: post #5

From a science and pharmaceutical perspective, maybe. As the partner of someone in the US dealing with stage 4 cancer in their 40s, who has two hospitals fighting with each other over whether to keep using a chemo drug that's sent them into anaphylactic shock twice in two rounds of chemo because it's _more convenient_ for the infusion clinic to administer, and all of that currently held up by pre-approval from a rela…

If I learned one thing from fighting a (not cancer) disease, it's that you have to be the one responsible for your own recovery. Don't just sit there and say "please save me doc!" You better start reading about the latest research 6 hours a day, make massive comparison charts about treatment options, find the best doctors you can and get opinions from all of them, network with people going through what you are for support and advice, reach out to friends and family for help.

The best thing I did for my treatment was to expand my options beyond modern medicine to naturopathic medicine and East Indian medicine. Let me tell you, I was eating clay, shoving weed up my ass, shooting myself with infrared lasers, literally so many off-the-wall treatments it was like a full time job. And I do not care if 90% of them were useless, because by the end of the next year I was in full remission.

Re: We’re a Lot Better at Fighting Cancer Than We Realized

#20

Post by tornato7 »

jcims wrote: post #10

I was forced to dive headlong into understanding cancer therapy 2 1/2 years ago. It was obvious at the time that this was the correct direction to head, developing an entire therapeutic ecosystem to give the body every possible advantage and assail the disease with every possible disadvantage in order to get the desired outcome. However, what I saw was a rather bizarre and disturbing fetish in the pharmaceutical and…

I've been impressed by the "therapudic ecosystem" developed for coronavirus in the absence of a 'monotherapy'. The MATH+ treatment is an effective combination of available drugs and vitamins. I hope any future COVID drug is used alongside these options, instead of a "here's an expensive drug, now go home!" Approach that some treatments take.
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