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Breach exposed more than one million DNA profiles on a major genealogy database

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Re: Breach exposed more than one million DNA profiles on a major genealogy database

#61

This is why I’ve been putting off getting my genome sequenced. One breach and it’s out there forever. I’ve heard good things about nebula[0] as a way to get an anonymous genome but have yet to be motivated enough to take the plunge [0] https://nebula.org/whole-genome-sequencing/

What is the impact of having your DNA known? As far as I can tell the worst case scenarios are finding out you have to pay child support or getting placed at the scene of a crime.

If those risks don't apply to you, who cares?

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#62
post #34
post #30

Earlier quoted context omitted.

My hunch is that if this information is used against you, you'd never know. First scenario that comes to mind: The insurance company that gives you an extremely high quote because you come back as "high risk" from a 3rd party company that they use to vet applications, and that 3rd party company uses your genetic predisposition for a condition.

This requires the insurance company to be doing something illegal and for it to really cause damage all their competitors have to be doing it as well. If this ever becomes widespread, it would be quickly obvious when a large number of ostensibly healthy people are given quotes that match their genetic profile but not their medical history. I'm just not sure that is a reasonable fear.

I am also extremely dubious of this risk. At least in the US, a conspiracy of this sort would require hundreds of potentially-disgruntled employees to resist getting rich from whistleblower rewards.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#63

This is why I’ve been putting off getting my genome sequenced. One breach and it’s out there forever. I’ve heard good things about nebula[0] as a way to get an anonymous genome but have yet to be motivated enough to take the plunge [0] https://nebula.org/whole-genome-sequencing/

What is the impact of having your DNA known? As far as I can tell the worst case scenarios are finding out you have to pay child support or getting placed at the scene of a crime. If those risks don't apply to you, who cares?

If you’ve got nothing to hide... then make it all public. Let’s start with your finances.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#64

This is why I’ve been putting off getting my genome sequenced. One breach and it’s out there forever. I’ve heard good things about nebula[0] as a way to get an anonymous genome but have yet to be motivated enough to take the plunge [0] https://nebula.org/whole-genome-sequencing/

What is the impact of having your DNA known? As far as I can tell the worst case scenarios are finding out you have to pay child support or getting placed at the scene of a crime. If those risks don't apply to you, who cares?

This is a variant of “the honest have nothing to hide” argument, which is just wrong.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#65
post #27

Can someone explain the potential short to medium term fears of one's DNA leaking? My initial assumption is that it would be less of a problem compared to nearly any other personal data leaking. Like it certainly sounds creepy, but credit card or other financial data being stolen presents a huge headache and creates a lot of work. I understand that in specific instances, for example when paternity is in question or i…

[deleted]

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#66
post #53
post #51

I’ve always wondered if this were a worthy business proposition, cause I would definitely buy a product like this: Basically all of the features of 23AndMe/Ancestry/etc, but done offline. You’re given an app to download online, provided all of the hardware needed to spit in a tube, and get the same results. No data stored on a cloud server, and no centralized database of everyone’s DNA. That’s probably where the real…

I think you're missing the part where you have to send the tube to a lab to do the actual sequencing. At that point they have your data, and even if there were to be a provider that says they don't keep it, that's about as credible as all the VPNs which "don't keep logs" where we later discover, whoops, they lied...

Well, you could sue for breach of contract and have penalties in the contract. After all, you rely on other people to do their jobs in other critical aspects of your life

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#67

This is why I’ve been putting off getting my genome sequenced. One breach and it’s out there forever. I’ve heard good things about nebula[0] as a way to get an anonymous genome but have yet to be motivated enough to take the plunge [0] https://nebula.org/whole-genome-sequencing/

What is the impact of having your DNA known? As far as I can tell the worst case scenarios are finding out you have to pay child support or getting placed at the scene of a crime. If those risks don't apply to you, who cares?

What are the benefits of you knowing? Seems like the only reason is mild curiosity.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#68
post #34
post #30

Earlier quoted context omitted.

My hunch is that if this information is used against you, you'd never know. First scenario that comes to mind: The insurance company that gives you an extremely high quote because you come back as "high risk" from a 3rd party company that they use to vet applications, and that 3rd party company uses your genetic predisposition for a condition.

This requires the insurance company to be doing something illegal and for it to really cause damage all their competitors have to be doing it as well. If this ever becomes widespread, it would be quickly obvious when a large number of ostensibly healthy people are given quotes that match their genetic profile but not their medical history. I'm just not sure that is a reasonable fear.

Mix the DNA info into a machine learning insura-bot and you'll never be able to extract the evidence.

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#69

As someone who works in cybersecurity, it's always hard for me to interpret PR language like "orchestrated through a sophisticated attack". This could be aimed towards non-savvy readers meaning basically anything or it could be accurate and describe a nation-state (although I don't get the feeling of a sophisticated nation-state actor here). The DoJ used similar wording when prosecuting Aaron Schwartz for using Pytho…

By the way, it's Swartz

Re: Breach exposed more than one million DNA profiles on a major genealogy database

#70

This is why I’ve been putting off getting my genome sequenced. One breach and it’s out there forever. I’ve heard good things about nebula[0] as a way to get an anonymous genome but have yet to be motivated enough to take the plunge [0] https://nebula.org/whole-genome-sequencing/

According to their own FAQ, Nebula uses a lab in HK. In current times, that may be of concern.
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