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What Happened to Lee

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Re: What Happened to Lee

#61
post #25

> The neurologists delivered their verdict: He appeared to have a textbook case of frontotemporal dementia—known by the shorthand FTD Oh man, was that a kick in the guts when I got to that bit. My Dad was diagnosed with that in the past year, (after obviously struggling for a while), and declined rapidly. He had a different variant, and indeed the one thing that DIDN'T change was his personality. In fact, that's what…

FYI, preexisting conditions stopped being a major issue with heath insurance after the Affordable Care Act (Obama Care) got passed: https://www.policygenius.com/health-insurance/pre-existing-c...

Insurers cannot deny health coverage, cannot charge higher costs, or subject people with pre-existing conditions to a waiting period

You may be better off getting life/long term care insurance before getting tested, but other than that there is little reason to avoid being tested.

Re: What Happened to Lee

#62

I have a chronic neurological condition that may eventually affect my ability to walk (though it is stable and the current prognosis is good and the drugs work for the pain) but when I was going through the process of finding out what it was and how bad it was the one question at the front of my mind was "will this affect me mentally?", I could live with the thought I may one day need a wheelchair but I don't think I…

Losing your mental faculties is a profound fear especially for smart people. After falling down stairs in the early stages of his ALS, Stephen Hawking went to his local Mensa center to take an IQ test to make sure he was still "all there" and smart enough to do physics.

Re: What Happened to Lee

#63
post #48

Earlier quoted context omitted.

> If God exists, they are cruel and uncaring. I don't think anyone has the perspective to make a definitive judgement like that. The situation could be like a young child judging his parents to be cruel and uncaring for making him go to school, which he dislikes. There could be unknowns that would change the judgement if understood.

It feels a little bit condescending to compare the amount of suffering caused by things like dementia to an unruly kid who doesn't want to go to school.

> It feels a little bit condescending to compare the amount of suffering caused by things like dementia to an unruly kid who doesn't want to go to school.

It wasn't a comparison, but an attempt to illustrate how things may look different based on your knowledge and understanding. Obviously such an illustration is going to be trivial compared to the real thing, since you have to substitute something simple that everyone knows for something no one does.

Re: What Happened to Lee

#64

Perhaps this is too philosophical, but for anyone who has dealt with someone with a long decline into dementia, it's very difficult for me to understand a belief in God after going through that (I certainly understand some people have the exact opposite reaction, so I'm in no way saying this belief is correct). It's just difficult for me to envision a crueler God if that is indeed the case. A person who has died long…

This is a question as old as religion, of course, with plenty of answers of all sorts: because He has a plan we cannot see, because He is punishing you/us/him, because He is testing you/us, because The Evil is really responsible, etc etc...

In the end, is it really that cruel, when compared to creating a universe that is effectively trying to kill us all every single day...? From animals and plants in the jungle, to solar flares and asteroids, everything in nature is to us what a garrison of armed Stormtroopers is to Han Solo: they might miss most of the time, but it’s not going to be for lack of cruelty or intent.

Re: What Happened to Lee

#65
Could it be that Lee's productivity frenzy eventually led to this disease?

I tend to practice the same style of getting things done during crunch time. I have the same behavior afterwards. Sometimes I can sleep a few days in a row after making a software release. And yes, taking a vacation with my girlfriend sometimes took the same shape: she was running circles in a new city while I was chilling at the hotel room trying to enjoy a few rare moments of rest.

Reading the whole story rang a few bells to me.

Re: What Happened to Lee

#66

Perhaps this is too philosophical, but for anyone who has dealt with someone with a long decline into dementia, it's very difficult for me to understand a belief in God after going through that (I certainly understand some people have the exact opposite reaction, so I'm in no way saying this belief is correct). It's just difficult for me to envision a crueler God if that is indeed the case. A person who has died long…

Shouldn’t have an expectation of god making everything well. Otherwise there’s be no war. If that is your requirement to believe in god, you will never

Re: What Happened to Lee

#67
post #61
post #25

> The neurologists delivered their verdict: He appeared to have a textbook case of frontotemporal dementia—known by the shorthand FTD Oh man, was that a kick in the guts when I got to that bit. My Dad was diagnosed with that in the past year, (after obviously struggling for a while), and declined rapidly. He had a different variant, and indeed the one thing that DIDN'T change was his personality. In fact, that's what…

FYI, preexisting conditions stopped being a major issue with heath insurance after the Affordable Care Act (Obama Care) got passed: https://www.policygenius.com/health-insurance/pre-existing-c... Insurers cannot deny health coverage, cannot charge higher costs, or subject people with pre-existing conditions to a waiting period You may be better off getting life/long term care insurance before getting tested, but othe…

I don't know if we can count on the ACA staying around forever.

Re: What Happened to Lee

#68
I'm so sorry for your loss. This hit especially close to home because my grandmother has been suffering from degenerative mental disease for the last few years. I don't live in the same country as her anymore and every time I return, it's horrifying to witness just how fast a person loses their sense of "self".

I think degenerative mental disease like the one here is especially traumatizing since to most of the world, you're physically/visually still the same person. Also, the characteristics that formed your personality often morph into these harrowing alternations - in the case of my grandma - she was always immensely active and always on her feet. She now cannot sit for more than 30 seconds at a time and attempts to run away from home (with no particular destination in mind). She was (it feels strange to write past tense here) a great cook but now she enters the kitchen and has no idea what she's cooking or what step she is on. It is extremely difficult to keep her mind at ease at all. Her mind is so unable to focus or string thoughts together that she has resolved to loud abject shouting of gibberish (much like a toddler) since she has no idea how to convey what or how she got somewhere. But then for the briefest of moments she has complete lucid clarity and will ask me about my job and life, and offer to cook me my favorite dish.

Much like Lee's wife, I don't really know when my grandma's last "real" day was and what my next trip is going to bring sadly. It's a sad and slow torment.

Re: What Happened to Lee

#69

Perhaps this is too philosophical, but for anyone who has dealt with someone with a long decline into dementia, it's very difficult for me to understand a belief in God after going through that (I certainly understand some people have the exact opposite reaction, so I'm in no way saying this belief is correct). It's just difficult for me to envision a crueler God if that is indeed the case. A person who has died long…

Every person is a door to your happiness, and you have the choice to serve their happiness or to treat them callously or even cruelly.

There is no religion without the person actively trying to be a better person to every single person around them. It doesn't matter what spiritual practices they do or don't do, we are each measured by our hearts with respect to how we treat every person we encounter.

Religion's only goal is to get us to work together cooperatively across all divisions of humanity (from form of religion, to gender identification or sexual preference, to ethnicity or culture) to create caring, accepting societies. Right now, our world's state is the result of our societies being based on competition. That is why there are so many destitute homeless people. The system itself doesn't give a shit about them because the system itself only cares about money.

And this is all the result of human making choices based upon their selfish desires, humans in their packs taking as much as they can for themselves while callously ignoring out-group members. That is not human, and is literally inhumane. For that same society to produce Jeff Bezos demonstrates its brokenness that is also its design.

The problem is that the vast majority of so-called religious folks are only doing so to be a member of the alpha group, instead of being interested in how they can be a better member of a better, all-inclusive society. We have mammalian bodies and those structures inform our potentials. To be human is to rise above that animal heredity and embrace the virtues of humanity: caring, active, effortful compassion being essential.

This is why a prominent Rabbi spoke at Muhammed Ali's funeral. They were both Men of God who spread love and unity amongst and between their different cultures. Anywhere you find universal love and respect for all others, you find God's Religion, whichever form it takes in its society.

And legion are those that selfishly deceive in the name of religion or even try to create their own religions. The child rapist Catholic Priest does not denigrate the Message of Love present in Jesus' form of God's Religion; he only proves his perfidy and that of the organization that hides his sins and felonies from his prey's society.

Re: What Happened to Lee

#70
post #12

And people don't understand why I fell into a two week existential crisis after I saw 'The Notebook' > many of the neurologists who study it believe it is underdiagnosed This is a tragedy. Of course it's underdiagnosed. Everyone around you would just think you're an asshole. In the article, it sounds like so many people fought right and were patient and loving. How many cases do we never hear about, get fought abusiv…

> And people don't understand why I fell into a two week existential crisis after I saw 'The Notebook'

Thank you. I watched that movie with my wife 15 years ago, now, and it remains the scariest, saddest movie I've ever seen.

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