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We ‘may’ have discovered a potential remedy for tinnitus

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Re: We ‘may’ have discovered a potential remedy for tinnitus

#41

Post by dvdhnt »

h2odragon wrote: post #5

Interesting. How very kind of them to mention this to the public for further experimentation. Has this individual now opened themselves to liability for IP theft, stealing potential billions of treatment money from the company that gets it approved by the FDA?

Right, a possible dramatic improvement of quality of life for those with tinnitus, but your first thought is IP theft?

I surely hope those kinds of thoughts, and the arcane system that nurtured them, does a swift and painful death as we retake basic human rights and healthcare from the clutches of capitalism’s greasy claws.

Edit: I’m criticizing how a society can create such a connection in the first place.

Re: We ‘may’ have discovered a potential remedy for tinnitus

#42

Post by mettamage »

hvidgaard wrote: post #29
mettamage wrote: post #20

I wrote this relatively recently in another comment. I think it applies here: I have tinnitus. I got it from going out too much. I wasn't the biggest party-hardy individual, but there were moments where I went out quite a bit. During that time I lived in Amsterdam and loved parties for: music, social experimentation and doing whatever. I wasn't too much into the drugs/alcohol thing. I think during my 'going out phase…

Is it like described here ( https://thoughtbrick.com/wim-hof-method/wim-hof-method-power... )? I've had tinnitus for 25 years, and sometimes I wish I could be free of it, if only for a while.

Edit: if you are going to do this by yourself, please do let us know in this thread how it went for you! I hate to be an anecdotal n = 1 'experiment'.

Note: this technique has some risks. Especially when you practice by yourself. The biggest one is that scientifically speaking, experts are a bit unfamiliar with it. I can only offer anecdotal experience. There are some articles written about it [1], but I wonder if they go into the risks of the technique (I don't think so, I was one of the people in the experiment).

Yea, it's exactly as described there. The tinnitus will be temporarily gone in step 3 (when you hold your breath). Or at least, that is the case with me. It'll come back after you took your breath in step 4. So it's a temporary relieve, unfortunately.

In any case, there are a couple of checks you can do to see whether step 3 is working as intended.

1) You are capable of holding your breath for more than 1 minute and 30 seconds. Note: if you go over 2 minutes, you might want to have someone by your side who can shake you a bit. I sometimes faint around 2 minutes and 10 seconds, I wake up without assistance as well though, but better close of small risks. Shaking works quite well (there was one case where I saw it almost fail, the person was unconscious for 3 minutes and then got to consciousness after 3 minutes of being shaked, normally it takes about 10 to 20 seconds, except for this one case).

This is a hard requirement.

2) You feel a tingling sensation in your hands, feet or body. This is not only my experience, it's almost everyone's experience who did this. So this is a semi-hard requirement.

3) After doing this for 2 rounds, it is my experience that my body naturally understands how this type of breathing works. I naturally get into a flow of things. In a sense, I can only describe it is "my body is breathing like my life is depending on it". It's a very rare sensation, and definitely not similar to swimming under water and almost running out of air.

This is not a hard requirement at all.

[1] https://www.pnas.org/content/111/20/7379

Re: We ‘may’ have discovered a potential remedy for tinnitus

#43

Post by napsterbr »

meowface wrote: post #35
napsterbr wrote: post #31

I suffer (quite literally) from Misophonia [0], and I can only hope someday we find a cure for it. It's a curse. As a developer, I'm afraid the only thing I can do about it is to raise awareness. [0] - https://en.wikipedia.org/wiki/Misophonia

What sort of sounds are you sensitive to?

People eating/chewing, mainly. Basically any sound that comes from the mouth, even when not eating. Tooth picking, brushing teeth, etc.

Unless I'm on a noisy environment (like a crowded restaurant), I simply can't eat with others. I just ended a 2-year relationship because of it -- and I have no idea how I'm supposed to live with someone else while having this disease.

Ironically, I'm indifferent to sounds that most people have aversion to, like metal screeching or fingernails on a chalkboard.

Re: We ‘may’ have discovered a potential remedy for tinnitus

#44

Post by mettamage »

jplayer01 wrote: post #38
mettamage wrote: post #20

I wrote this relatively recently in another comment. I think it applies here: I have tinnitus. I got it from going out too much. I wasn't the biggest party-hardy individual, but there were moments where I went out quite a bit. During that time I lived in Amsterdam and loved parties for: music, social experimentation and doing whatever. I wasn't too much into the drugs/alcohol thing. I think during my 'going out phase…

> I have tinnitus. It was 6 months of agony, then I started to ignore it. It wasn't a conscious decision, the ignoring happened automatically. I only have the high pitched ringing in my ears when it's quiet. It literally feels like a curse though, I can't hear silence. My tinnitus generally doesn't bother me on a psychological level, so I feel fairly lucky in that regard. I just wish I didn't have it all the time and…

Unfortunately, this silence only lasts for 20 seconds per "breathing round" max, in my experience.

Re: We ‘may’ have discovered a potential remedy for tinnitus

#45

Post by Chris_Chambers »

mettamage wrote: post #20

I wrote this relatively recently in another comment. I think it applies here: I have tinnitus. I got it from going out too much. I wasn't the biggest party-hardy individual, but there were moments where I went out quite a bit. During that time I lived in Amsterdam and loved parties for: music, social experimentation and doing whatever. I wasn't too much into the drugs/alcohol thing. I think during my 'going out phase…

[dead]

Re: We ‘may’ have discovered a potential remedy for tinnitus

#46

Post by mhandley »

growlist wrote: post #25

Tinnitus is weird. When I first had it I heard it all the time, it ruined my enjoyment of music, and I felt I was cursed for life. These days I can go for weeks without even realising it's there. I'd literally forgotten about it until I read this.

I've had tinnitus for 40 years, accompanied by deafness in one ear, due to inner ear damage caused by getting Mumps when I was 13. If I focus on it, it's really loud - I can easily hear it over a loud pub environment, and it's there all the time. But the brain is amazingly adaptive - if I don't focus on it, it doesn't annoy me, and I forget it is there.

Re: We ‘may’ have discovered a potential remedy for tinnitus

#47

Post by akersten »

floatingatoll wrote: post #32
QuesnayJr wrote: post #27

Earlier quoted context omitted.

Are they? Doesn't that have first amendment protection?

The US specialized in medical quackery for a hundred years, so there are direct restrictions on speech around claiming medical benefits. The free speech laws permit that, as IIRC societal welfare trumps your right to claim that (for example) mercury and cocaine soda will cure all ills. EDIT: Commenters are right, you have to try to profit to be prosecuted. If you give away poison and call it a cure, as long as you ha…

Just disclaim it with "this device/supplement/lifestyle has not been shown and is not intended to treat any medical ailment" like all the homeopathic crap out there does and you should be good to go.

Re: We ‘may’ have discovered a potential remedy for tinnitus

#49

Post by tosser0001 »

I get the sense that tinnitus is so different for so many people there will never be a single solution. I think it can only be stopped at its source in the hearing centers of the brain itself, but good luck getting that accomplished.

I can only describe mine as the sound of a dump truck full of chandeliers going by the house. There are low-pitched rumbles, high-pitched wails and everything else in between if I really concentrate on it. I'm not sure exactly why I'm not despondent about it, but for whatever reason, I simply choose to ignore it and it doesn't impact my life in any way. I'd pay big money to make it go away, but I don't hold out any real hope.

Re: We ‘may’ have discovered a potential remedy for tinnitus

#50

Post by simiones »

rocqua wrote: post #15
mdorazio wrote: post #13

Earlier quoted context omitted.

It doesn't [1]. It switched to First to File several years ago. [1] https://www.nolo.com/legal-encyclopedia/what-does-the-first-...

From that link: "A person shall be entitled to a patent unless—the claimed invention was patented, described in a printed publication, or in public use, on sale, or otherwise available to the public before the effective filing date of the claimed invention" It seems to me that the "described in a printed publication, or in public use part" here would suffice to protect the inventor no?

Not sure what you mean, but those clauses describe what can remove your entitlement to a patent.

So, if the claimed invention was "described in a printed publication, or in public use" before the filing date, the inventor is no longer entitled to the patent.

Of course, complaining of the lost potential money from IP for a life-improving device is preposterous, but it is true that this article may prevent the company for ever filing a patent application for this idea (unless they have already filed it).

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