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Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

theguardian.com

101–110 of 138 posts

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#101
post #30

Earlier quoted context omitted.

Trying to help my wife through chemo now, and the staying hydrated and eating something is kicking our butts. Her oncologist believes that her nausea is due to directly to disease progression and it's relentless. We're now on a regimen of phenergen every 6 hours but that just prevents cyclic nausea from occurring AND it knocks her out to where she's sleeping at least 20 hrs a day. Then when she wakes up she can only…

Dehydration itself can make a person nauseous. You don't have to take anything orally to treat dehydration. A bath or shower can help with hydration at times when she can't stand to take anything orally. Dehydration isn't always as simple as a lack of fluids. It can also be impacted by a lack of electrolytes and inadequate fat. So it may help to add salt to the bath. Table salt can be problematic for someone in frail…

Hey the coconut oil suggestion is awesome, thank you so much! I'll definitely look at getting some quality oil and adding it to our regimen. I tinkered with MCT oils and whatnot in the past for my own health and have definitely 'greased the chute' by accident lol.

Totally agree on the side effects of dehydration. I could see the cycle happening over the course of a week or two and we'd end up in the ER (8 times in the last four months now). We've finally got her set up with a port and have home health services coming by mondays and fridays with hydration (and labs). Then she gets a bit more during weekly chemo on Weds. We're only a week into it and it is already showing benefit.

Thanks again for the suggestions!

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#102
post #97
post #66

Earlier quoted context omitted.

This is great thank you! Do you recall how you managed dosage with the capsules? Also with vaporizing does she use a dry herb vape or concentrate/oil/pen? I’m nervous about giving her a coughing fit.

Dosing is a mess. Here is my advice: Start from good bud. Highest strength / weight ratio. You can get different sized capsules from GNC or similar stores. A given raw plant will be similar by weight, but does vary some. When you bake it, go until it is crunchy dry. Can be an hour, but watch temp. At 250, THC boils off into the air. I used an oven thermometer. Preheat, until you see 235, then put your stuff in there.…

Wow this is incredibly helpful, thank you for all the detail...your description alone makes me excited to give this a try.

I've got some pretty good bud from the local dispensary all sealed up and found a source for capsules in town. Will probably give this a go today. Thanks so much!!!!

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#103
post #66
post #58

Earlier quoted context omitted.

My wife suffers nausea. It is pretty extreme. There are different forms of marijuana. We tried a few. It took a few attempts to get one that worked. If she is able, try the different forms. Edible, topical, etc... One that worked early on was simple. Heat it for a half hour at 235 degrees F. This converts the THC to its active form. That raw plant material, ground fine and put into empty capsules worked and was easy…

This is great thank you! Do you recall how you managed dosage with the capsules? Also with vaporizing does she use a dry herb vape or concentrate/oil/pen? I’m nervous about giving her a coughing fit.

We are concerned about the pens. People are cutting it with toxic crap.

A smoke vaporizer works great. Fill the bag and take sips.

Hard to not cough. If coughs are not OK, try edibles or tinctures.

I left you my home edible tips.

Tinctures are hard to make well. Buy those if you can where you live.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#104
post #102
post #97

Earlier quoted context omitted.

Dosing is a mess. Here is my advice: Start from good bud. Highest strength / weight ratio. You can get different sized capsules from GNC or similar stores. A given raw plant will be similar by weight, but does vary some. When you bake it, go until it is crunchy dry. Can be an hour, but watch temp. At 250, THC boils off into the air. I used an oven thermometer. Preheat, until you see 235, then put your stuff in there.…

Wow this is incredibly helpful, thank you for all the detail...your description alone makes me excited to give this a try. I've got some pretty good bud from the local dispensary all sealed up and found a source for capsules in town. Will probably give this a go today. Thanks so much!!!!

Great. I was!

And we had a lot of fun. I think that is key.

I read a ton of crap to get what I put here. Enjoy!

The worst that can happen is one or both of you are super relaxed for the day.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#105
post #99
post #96

Earlier quoted context omitted.

Sure, but there is always a need for more beds. It doesn’t end. At some point, the money runs out. That’s what countries like the UK do with QUALY measurements. You have X billions of Euros to spend, so you spend it on the most effective measures and say “no” to everything else.

> Sure, but there is always a need for more beds. That doesn't make any sense. Basically you're saying the more beds there are the more sick people appear to occupy them.

If the ideal is to have people stay in the hospital if there is a benefit to it, then yes, we could double hospital beds and fill them no problem.

That’s why people get kicked out quickly, even if they feel they would benefit from staying.

Of course there is a limit, but we’re far from it.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#106
post #101

Earlier quoted context omitted.

Dehydration itself can make a person nauseous. You don't have to take anything orally to treat dehydration. A bath or shower can help with hydration at times when she can't stand to take anything orally. Dehydration isn't always as simple as a lack of fluids. It can also be impacted by a lack of electrolytes and inadequate fat. So it may help to add salt to the bath. Table salt can be problematic for someone in frail…

Hey the coconut oil suggestion is awesome, thank you so much! I'll definitely look at getting some quality oil and adding it to our regimen. I tinkered with MCT oils and whatnot in the past for my own health and have definitely 'greased the chute' by accident lol. Totally agree on the side effects of dehydration. I could see the cycle happening over the course of a week or two and we'd end up in the ER (8 times in th…

Keep an eye on the port. If they aren't kept adequately clean and end up infected, it's ugly from what I gather.

Best.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#107

A line from a passage I remember reading as a medical student, has stuck with me after a decade and a half. It described anticancer therapies as having the effect of "... poisoning patients to the edge of their existence..." It is not my belief that the side effect profile of anti tumor drugs has improved much. So, yeah. Treatments for cancer can suck just as badly as the disease itself.

That’s not just the effect, it’s the mechanism of action for chemo — right? It takes advantage of cancers rerouting blood and being overly aggressive in gathering resources to make those the first of your cells to die as you’re poisoned to death, on the theory that there’s some slightly sublethal dosage that kills only some of your cells (and hopefully, the cancerous ones).

Different classes of anti-tumor drugs employ different mechanisms; some more than one.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#108
post #30

Earlier quoted context omitted.

Trying to help my wife through chemo now, and the staying hydrated and eating something is kicking our butts. Her oncologist believes that her nausea is due to directly to disease progression and it's relentless. We're now on a regimen of phenergen every 6 hours but that just prevents cyclic nausea from occurring AND it knocks her out to where she's sleeping at least 20 hrs a day. Then when she wakes up she can only…

Dehydration itself can make a person nauseous. You don't have to take anything orally to treat dehydration. A bath or shower can help with hydration at times when she can't stand to take anything orally. Dehydration isn't always as simple as a lack of fluids. It can also be impacted by a lack of electrolytes and inadequate fat. So it may help to add salt to the bath. Table salt can be problematic for someone in frail…

> You don't have to take anything orally to treat dehydration. A bath or shower can help with hydration at times when she can't stand to take anything orally. Dehydration isn't always as simple as a lack of fluids. It can also be impacted by a lack of electrolytes and inadequate fat....

Big No

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#109
post #98
post #71

Earlier quoted context omitted.

Congratulations! My father unfortunately passed away from the same cancer. 6 months after the diagnosis, having already done 6/8 chemo infusions. His liver was giving up by then. He also went from nearly 90kg to around 42kg in the end. It is really a terrible cancer. He didn't have any symptoms until the year before his death. By then it was stage 4 already. I'm abstaining from alcohol since then.

Does alcohol intake increase pancreatic cancer risk?

My understanding is that all types of alcohol, except for red wine (in moderation), mildly increase cancer risk.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#110
Dying from cancer doesn't have to happen anymore. Use hemp oil with at least a 95% THC concentration daily. Search for Rick Simpson oil online for details. You can make the oil at home if you are able to obtain the right hemp leafs. And stay away from chemo!!!
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