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Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

theguardian.com

81–90 of 138 posts

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#81

I knew two people who both got cancer about the same time. One said no to chemo. The other said yes to chemo. The differences in quality of life until death were dramatic . Neither had a longer life than was expected had they not taken the chemo, but the one who did lost hair, physical dexterity, then life. Suffered greatly. The other one suffered much less, but still died. The doctors all said take the drugs. You do…

I know someone who smoked a pack her day her whole life, and died at 90 while remaining in good health for the age the decade before.

I know someone who never smoked in his life and got lung cancer at 52.

Does that mean anything? Should we now conclude that smoking prevents lung cancer?

Quality of life, health, remaining lifetime, sickness progressions are all very complex interactions. All you can do is what happens on average, and play the odds based on that.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#82
post #61

I'm surprised no one has talked about diet here. Not a single one. There are many cases of cancers being completed reversed by change of diet, many cancers survive off of glucose and so switching to a fat based diet has helped many people go into remission as well as dull and intensify the effects of chemotherapy. Cancer is a living biological cell after all and will prefer certain sources of energy over others. Star…

What you are saying goes against the science. The commonly accepted facts are that the prevalence or absence of glucose does not affect cancer cells' ability to grow.

https://www.mayoclinic.org/diseases-conditions/cancer/in-dep...

Not a scientist, so can't chime in meaningfully, but you are perpetuating what is considered a myth, and very nonchalantly ("undergraduate studies two decades back"), leading me to question if you are qualified to hold such a contrarian viewpoint.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#83
My gf had grade III brain cancer. She had chemo two times. As chemos go, the one for brain cancer is fairly bening. The only side effect was nausea on initial chemo dose. Easily countered by antiemetic given only before first few initial doses, later withdrawn. The only other side effect was low blood cell counts that didn't manifest any symptoms but caused chemo to be delayed by a week till it recovered. Steroids given for brain swelling had more effect as they increased her appetite and kept water in her body causing her face to swell a bit. Ask your doctor for medication that amplifies urine production if you are given steroids. That helped when she was given it for the second time. Also after steroids were stopped her skin needed few weeks to recover from being prone to acne.

Possibly the only drug that might have felt like it was killing her was the morphine, as it can depress respiratory system, but at this stage there were so many things that might have been killing her that it wasn't important.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#85
I'm also very curious about oncolytic toxicity.

personal sad story: uncle diagnosed with stage4 (mets) in late dec, got rounds of chemo 4 months after the diagnosis during which time the tumors didn't grow (based on the few bits we could read in his file). But after the 3rd round his health dropped to the floor, didn't last long after that. I believe the toll on his system was just too high. And I'm curious what are the mechanisms at play.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#87
post #30

I am a pancreatic cancer survivor. It is considered incurable in 2019 and I'm here because of a 1930s era surgery called a Whipple procedure. Around 9% survive five years or more -- a number that hasn't really changed. In a belt plus suspenders move I underwent 2 rounds (six infusions per round) of chemo plus 28 consecutive weekdays of radiation after surgery. All my doctors are amazed at my recovery, a few saying th…

Trying to help my wife through chemo now, and the staying hydrated and eating something is kicking our butts. Her oncologist believes that her nausea is due to directly to disease progression and it's relentless. We're now on a regimen of phenergen every 6 hours but that just prevents cyclic nausea from occurring AND it knocks her out to where she's sleeping at least 20 hrs a day. Then when she wakes up she can only…

Leukaemia survivor here... It might be a stupid question and everyone is different, but have you tried fresh fruit and ginger ale?

I went through six months where that was all I could eat/drink. Another patient in the ward suggested ginger ale and it was a surprise (had never drank it before... or since).

Nausea got so bad that even thinking about it (for example when a doctor asked) would trigger throwing up so I get what you mean about PTSD.

All my best wishes for you both.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#88
post #61

I'm surprised no one has talked about diet here. Not a single one. There are many cases of cancers being completed reversed by change of diet, many cancers survive off of glucose and so switching to a fat based diet has helped many people go into remission as well as dull and intensify the effects of chemotherapy. Cancer is a living biological cell after all and will prefer certain sources of energy over others. Star…

Giving up any addiction is good, especially sugar, alcohol, smoking, etc but telling someone to try this instead of chemo when they have cancer is criminal imho. I have seen people listen to that and then go back for chemo when it is too late. Maybe during chemo it can help or can’t hurt, but instead of... Ofcourse people decide what they do with their own lives, but do not state things as if this is proven or even shown outside a few vague cases.

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#89
post #18

Chemotherapy is scary. It seems so counterintuitive to choose to inflict this kind of damage to oneself, in the hopes that it will prevent an even worse outcome. Part of it is that there is this nagging feeling that it might not even be the right approach, given the legion of side effects of all kinds. Even oncologists get vague and evasive when this is questioned. In the end we can only rely on generalized statistic…

> It seems so counterintuitive to choose to inflict this kind of damage to oneself, in the hopes that it will prevent an even worse outcome. Especially since the "worse outcome" -- your own non-existence -- is the one thing in the Universe you are guaranteed to never experience (though your loved ones can experience your non-existence, and that can be a good reason to try to avoid it).

>is the one thing in the Universe you are guaranteed to never experience

Isn't this whole reason why dying is so scary? It would be less scary to die if there was some kind of afterlife (this is popular view given existence of various religions).

Re: Life as a cancer patient: ‘it feels like dying from the drugs meant to save me’

#90
post #30

I am a pancreatic cancer survivor. It is considered incurable in 2019 and I'm here because of a 1930s era surgery called a Whipple procedure. Around 9% survive five years or more -- a number that hasn't really changed. In a belt plus suspenders move I underwent 2 rounds (six infusions per round) of chemo plus 28 consecutive weekdays of radiation after surgery. All my doctors are amazed at my recovery, a few saying th…

Trying to help my wife through chemo now, and the staying hydrated and eating something is kicking our butts. Her oncologist believes that her nausea is due to directly to disease progression and it's relentless. We're now on a regimen of phenergen every 6 hours but that just prevents cyclic nausea from occurring AND it knocks her out to where she's sleeping at least 20 hrs a day. Then when she wakes up she can only…

Dehydration itself can make a person nauseous.

You don't have to take anything orally to treat dehydration. A bath or shower can help with hydration at times when she can't stand to take anything orally.

Dehydration isn't always as simple as a lack of fluids. It can also be impacted by a lack of electrolytes and inadequate fat.

So it may help to add salt to the bath. Table salt can be problematic for someone in frail health because of the additives. Sea salt, kosher salt or canning and pickling salt won't have those additives. You can probably find the latter two readily at a local grocery store. Good sea salt can be ordered online.

If fluids and electrolytes are insufficient and you think she may need more fat, this can also be remedied without giving her anything by mouth.

Coconut oil is high in medium chain triglycerides. These can be used directly by the body without being broken down via digestion, so the body can absorb it if it is applied topically (to the skin).

Coconut oil has a long history of being medically recommended by the medical establishment for people with serious gut issues, such as folks being treated for stomach cancer.

Don't overdo it though because it can promote nausea and diarrhea, especially when taken in large quantities. You want to do small amounts regularly so the body can handle it, not start with a tablespoon of oil at a time. That will not go happy places.

Coconut oil is a little on the sweet side, so some people don't like cooking with it because of how it impacts flavor. As an alternative, butter is a decent source of medium chain triglycerides.

Clarifying butter to make ghee can remove elements that some people don't tolerate well. This can be helpful to people in frail health as an alternative to oils they aren't tolerating well while sick.

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