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Kept alive with tubes for nearly 17 years

latimes.com

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Re: Kept alive with tubes for nearly 17 years

#51
post #46
post #41

Earlier quoted context omitted.

Technically we don't know whether general anesthesia actually prevents you from feeling pain, or whether it just prevents you from forming memories. As far as I know at least.

I would imagine that we must know that by now. We should be able to just see on a brain scan whether the pain centers are lighting up in response to pain.

Or just treating people with the drugs and doing normal pain/sensation tests with them

Re: Kept alive with tubes for nearly 17 years

#52

Earlier quoted context omitted.

I don't think that life in and of itself is valuable even under terrible conditions. Especially if there is no positive outlook, that things will be better, no reason to hang on. I think only one thing really matters: QUALITY of life. Life is not intrinsically sacred. QUALITY of life is to me.

My belief is that since there's nothing except for life, life of any quality is infinitely better than no life. However this belief of mine is currentlly being viscerally challenged.

> life of any quality is infinitely better than no life

From someone who's been on the other side of the story (albeit nowhere close in severity) I can tell you that this is a philosophical debate that you might have with yourself for years and not really reach a solid and stable conclusion. Because it will change depending on your state. Like promising never to drink again during the worst drunkenness or hangover.

On one hand that low quality of life may be the worst thing you ever experienced and there's the distinct risk of going even lower. On the other hand we have no idea what lies on the other side - nothing or something that may be better or worse. And of course there's always the sliver of hope that all goes well and giving up on life too soon is a waste.

Re: Kept alive with tubes for nearly 17 years

#53
post #3

As a 58 year old, I think semi-constantly about my need for an advanced health directive. I also now suspect (reading this) that whilst no 15 or 16 year old is actually capable of processing the issues (amygdala) even young people need an AHD. I'm all in favour of the tubes. My partner is not. If you don't know, then your fate in the system is left to others. The AHD won't give you your wishes but it at least tries t…

I think you mean "advance health directive", not "advanced..."

Re: Kept alive with tubes for nearly 17 years

#54

Earlier quoted context omitted.

I don't think that life in and of itself is valuable even under terrible conditions. Especially if there is no positive outlook, that things will be better, no reason to hang on. I think only one thing really matters: QUALITY of life. Life is not intrinsically sacred. QUALITY of life is to me.

My belief is that since there's nothing except for life, life of any quality is infinitely better than no life. However this belief of mine is currentlly being viscerally challenged.

Is there a living will? What is their wishes, either written or verbally spoken?

In cases where we have to make hard decisions like this, I find some solace that they have made their decisions ahead of time so that we only complete their requests.

I don't envy you at all in this. The same thing happened to my dad, except the life-saving measures failed, and the doctors said there was nothing else they could do. They gave my mom an 'out', since it was not her choice.

Re: Kept alive with tubes for nearly 17 years

#55
post #31
post #28

Insane! Stories like this one make me question if it should be a requirement for every person to have on file his/her AMD for situations related to this outcome. People shouldn’t fear death or existence may be an extreme prison of torture. Why people continue to allow this is beyond me. Heck only till recently in all of humankind has this kind of torture become a thing. Geese..

>Why people continue to allow this is beyond me. If, in the end, the patient recovers, what a happy ending that would be! And we might learn how to better assist others in this condition. The alternative is giving up forever on such cases. This is also partly why I lean "against" on euthanasia.

Your happy ending is subjective as mine in the end. I know if this happened to me, I would be dead because I have my AMD on file and everything can move on. Btw, what you wrote shouldn’t be against assistance in death but personally for your own situation.

Re: Kept alive with tubes for nearly 17 years

#56

My SO is currently in hospice after 6 brain surgeries for brain cancer (4 over last year with her state gradually deteriorating). For the last year she was severly disabled and had to be help with sitting down, standing up, lying down and adjusting pillows and blankets as she had very limited use of her hands and general body coordination. She had to be kept safe while walking. It wasn't as good life as she had befor…

I wish you much strength. The kinds of decisions you are facing (have faced) are the hardest you can imagine and can only be understood if you have been in the situation yourself. I believe that nobody has the right to judge them. Last October, I lost my then 61 year old wife to Early-Onset Alzheimers disease. I saw her slowly fade-away and losing all her abilities, returning to a baby-like state. People often asked me, if she still recognized me. I often explained that that was a meaningless question. For me, it was far more important, whether I still recognized her. And I did. Luckily for her and us, her death came rather swift. She died within one and half week after developing a high fever (possibly due to dehydration) spending the last five days under palliative sedation.

Re: Kept alive with tubes for nearly 17 years

#57

My SO is currently in hospice after 6 brain surgeries for brain cancer (4 over last year with her state gradually deteriorating). For the last year she was severly disabled and had to be help with sitting down, standing up, lying down and adjusting pillows and blankets as she had very limited use of her hands and general body coordination. She had to be kept safe while walking. It wasn't as good life as she had befor…

Dude, my sympathies. Really sorry to hear what you both are going through

Re: Kept alive with tubes for nearly 17 years

#58
post #24

Earlier quoted context omitted.

So? Does that mean babies don't feel pain? Because that is what the medical profession concluded. Here is a good overview: http://nocirc.org/symposia/second/chamberlain.html

You are in an accident and have to be operated on, but using anesthesia would drop probability of survival from 90% to 10%. They can give you instead a drug that will prevent you from remembering pain that has no influence on probability of success operation. What would you chose? I'm not saying that this is the exact case with infants. Just trying to illustrate there might be valid reasons to inflict temporary pain…

I would choose the anesthesia, obviously.

Re: Kept alive with tubes for nearly 17 years

#59
post #24

Earlier quoted context omitted.

So? Does that mean babies don't feel pain? Because that is what the medical profession concluded. Here is a good overview: http://nocirc.org/symposia/second/chamberlain.html

You are in an accident and have to be operated on, but using anesthesia would drop probability of survival from 90% to 10%. They can give you instead a drug that will prevent you from remembering pain that has no influence on probability of success operation. What would you chose? I'm not saying that this is the exact case with infants. Just trying to illustrate there might be valid reasons to inflict temporary pain…

I would clearly choose to have doctors believe that I could feel no pain... That way there is no trade off.

Re: Kept alive with tubes for nearly 17 years

#60

My SO is currently in hospice after 6 brain surgeries for brain cancer (4 over last year with her state gradually deteriorating). For the last year she was severly disabled and had to be help with sitting down, standing up, lying down and adjusting pillows and blankets as she had very limited use of her hands and general body coordination. She had to be kept safe while walking. It wasn't as good life as she had befor…

All the love to you my friend. I have stage 4 colon cancer + it made its way into my liver. I've been alive for a year now and I have no idea how much longer I have.

I know what you are both going through. I know what myson & wife is going through, seeing me on my bad days during treatment. Knowing that one day I will leave them sooner than we had originally planned.

No matter how bad things are or appear to be I'm a firm believer that there's more after this life and unfortunately we have trek through the good and bad of this one to get to the end. Besides, where did we come from before we were born?

I only live for today, because this is all I have.

Be strong if you can. It's tough and hard. What we are experiencing is apart of life

Peace

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