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Lyme Disease Cases Are Exploding

elemental.medium.com

211–220 of 238 posts

Re: Lyme Disease Cases Are Exploding

#211
One of my neighbours when I was growing up in Australia had apparently chronic Lyme disease, however every doctor she went to told her that there was indisputably "no Lyme disease in Australia" [0]. This went on for years. Eventually she had to go on a trip to IIRC the UK to get prescribed the relevant medication, which she smuggled back to Australia.

[0] - https://www.health.gov.au/internet/main/publishing.nsf/Conte...

Re: Lyme Disease Cases Are Exploding

#212

Earlier quoted context omitted.

There is no reason for this comment to be downvoted. It is both informative and insightful.

It's completely unsolicited advice. The comment it is replying to is adding first-hand testimony to the discussion, not asking for suggestions for how to manage their own condition. Mere mention of one's own medical situation should not generally be deemed to be open season on the entire internet tossing out medical suggestions, no matter how seemingly insightful. Most people with serious, long-standing conditions kn…

As a counter-argument - my quality of life was greatly increased by an unsolicited advice here.

Re: Lyme Disease Cases Are Exploding

#213
post #212

Earlier quoted context omitted.

It's completely unsolicited advice. The comment it is replying to is adding first-hand testimony to the discussion, not asking for suggestions for how to manage their own condition. Mere mention of one's own medical situation should not generally be deemed to be open season on the entire internet tossing out medical suggestions, no matter how seemingly insightful. Most people with serious, long-standing conditions kn…

As a counter-argument - my quality of life was greatly increased by an unsolicited advice here.

Can you point me to the exchange in question?

Re: Lyme Disease Cases Are Exploding

#214
post #96

Earlier quoted context omitted.

Most people still see deer as cute, but its starting to change. When I see deer I just see disease carrying vermin. Deer populations have exploded. I wish they were systematically culled. Time talked about this a while back, I havent seen anything since. https://time.com/709/americas-pest-problem-its-time-to-cull-... https://vet.uga.edu/population_health_files/scwds-150wtdeer5...

I know what you mean. However we might not be awash in deer if we hadn't first 'culled' all the predators. Wolves for example.¹ 1: http://www.uky.edu/OtherOrgs/AppalFor/Readings/leopold.pdf

Deer have adapted to agricultural and suburban areas. Their predators have not. Wolves, large wild cats, etc. do not do well around human populations, and coyotes are not deer predators, really.

We need to cull them ourselves.

Re: Lyme Disease Cases Are Exploding

#215
post #112

Earlier quoted context omitted.

So you just rub olive oil on it?

My understanding is removal by gripping the mouth parts is the only safe way to remove a tick. Coating them in oil blocks their oxygen exchange, so they release, but sometimes they vomit back into the bit when they do.

That seems correct. In this particular case it was very recent so it hardly had anything to vomit.

Re: Lyme Disease Cases Are Exploding

#216

Earlier quoted context omitted.

Just a note, Chronic lyme disease isn't really a thing. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4477530/ This isn't to say you haven't been dealing with a lot of garbage, just that you might need to seek different medical care if your doctors are telling you that you have chronic lyme disease.

It’s called “Post-Treatment Lyme Disease Syndrome“. https://www.healthline.com/health/lyme-disease-chronic-persi...

No, "chronic Lyme" and PTLDS are not the same. The CDC recognizes only one of them as a condition.

https://www.niaid.nih.gov/diseases-conditions/chronic-lyme-d...

Re: Lyme Disease Cases Are Exploding

#217

Earlier quoted context omitted.

There is no reason for this comment to be downvoted. It is both informative and insightful.

It's completely unsolicited advice. The comment it is replying to is adding first-hand testimony to the discussion, not asking for suggestions for how to manage their own condition. Mere mention of one's own medical situation should not generally be deemed to be open season on the entire internet tossing out medical suggestions, no matter how seemingly insightful. Most people with serious, long-standing conditions kn…

For what it's worth, i really admire your advocacy and will take this comment to heart. Even if my intent was benign it is much easier for me to toss off such a comment than for a long-term sufferer to receive it.

Re: Lyme Disease Cases Are Exploding

#218

Earlier quoted context omitted.

It's completely unsolicited advice. The comment it is replying to is adding first-hand testimony to the discussion, not asking for suggestions for how to manage their own condition. Mere mention of one's own medical situation should not generally be deemed to be open season on the entire internet tossing out medical suggestions, no matter how seemingly insightful. Most people with serious, long-standing conditions kn…

For what it's worth, i really admire your advocacy and will take this comment to heart. Even if my intent was benign it is much easier for me to toss off such a comment than for a long-term sufferer to receive it.

Cool. :)

FWIW, it's not really intended to be some edict with zero exceptions. How it's done matters.

I don't have any pithy advice for how to do it well. I'm still trying to sort that out myself.

I like being helpful and I hate seeing people suffer and I'm chronically ill myself, so I tend to feel like that ought to count for something in terms of being viewed as a good faith effort (other people don't always agree). Nonetheless, I recently got cussed at and blocked by someone on Twitter who was having an especially rough time. (Granted, the topic in that case was suicide, but I didn't know that when I first said something.)

When you're in a lot of pain all the time, it's really easy for things to just rub you the wrong way and get on your very last nerve when you just want to participate in the conversation like a normal person and be treated like a contributor.

I've started asking people if they want suggestions from a random internet stranger and respecting it if they say "no thanks." Or offering suggestions in a low key fashion if they are actively soliciting feedback. (This list is not comprehensive.)

Have a great day.

Re: Lyme Disease Cases Are Exploding

#219

Earlier quoted context omitted.

So was your spouse reinfecting you?

I believe so. Of course, I can't prove it and I find the question flabbergasting given that I already stated that insisting on condoms was fairly promptly followed by my condition stabilizing and improving. For the record: I eventually divorced him. I've been celibate for medical reasons for over 14 years, in part because men I dated could not follow the simple instruction to bring a damn condom for health reasons an…

> that I already stated that insisting on condoms was fairly promptly followed by my condition stabilizing and improving

Medicine is far more complicated than what you naively assume with this remark.

Re: Lyme Disease Cases Are Exploding

#220
post #196
post #71

Unfortunately there’s no way to know that one currently has Lyme disease unless the symptoms are close in time to a tick bite. Treatment is with antibiotics, usually doctors will use a combination of two types of antibiotics (eg doxycycline and cefdinir) for which there is some research suggesting better results. In rare cases IV antibiotics may be required, especially if evidence of cardiac or neurological involveme…

Any advice on POTS treatment avenues? There seems to be poor GP knowledge around the condition, apart from giving fluids via a port to reduce symptoms.

I’m mostly familiar with POTS in patients with other chronic symptoms such as fatigue. I’ve been on high dose IVIG and it’s been helping my POTS a lot.

Take a look at a video on YouTube by a Harvard doctor Anna Louise Oaklander called Small Fibers Big Problem about the association they are making with something they label aaSFPN. Also take a look at some results for adrenergic and muscinaric auto antibodies, which are showing up in patients with POTS and other dysautonomias.

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