11–20 of 27 posts
It's not a false hope for autism; it's a false hope for parents of autistic kids. Autism is not a mysterious affliction that takes entire families in its hold and shouldn't be portrayed as such.
It's not a false hope for autism; it's a false hope for parents of autistic kids. Autism is not a mysterious affliction that takes entire families in its hold and shouldn't be portrayed as such.
There is a lot of misinformation related to stem cells, and a lot of uneducated and desperate people being taken advantage of by doctors - whether there's malice or not is another question. I have been struggling with and problem solving chronic pain for many years now. Stem cells have been the only thing to help heal the sources of injury, and so I have done plenty of research over the years, followed and understood…
That said, what evidence is there that any stem cell treatments actually have a beneficial effect? A lot of what you have written echos speculation or hopeful comments I've read about other non-proven treatment methods for stem cells or, if I may put if this way, other 'alternative' treatments.
With my own condition, I have a couple of specialist doctors with whom I discuss advances in treatment of my Crohn's and research efforts, but in terms of the action taken nothing has changed for some years as according to their best advice, and my separate reading, there is nothing better - yet - for me. I also tend to reject the "this diet worked for me", "this drug worked for me", "this (x) worked for me" anecdotes, as with Crohn's you are always one meal away from moving from remission to a flare-up.
It's not a false hope for autism; it's a false hope for parents of autistic kids. Autism is not a mysterious affliction that takes entire families in its hold and shouldn't be portrayed as such.
As an autistic adult, it's frustrating to me that high-functioning autistics and parents/caregivers of low-functioning autistics never seem to realize that the other kind exists. You wind up with people insisting that perfectly functional human beings need to be cured, which those same human beings insist that there's nothing wrong with a kid who can't speak or dress himself at age 10.
Earlier quoted context omitted.
I mean, it depends. Autism is a spectrum disorder. There are people with autism who are fully functional and successful members of society. And there are people with autism who are incapable of speaking or communicating. For people with very severe autism the world is a constant assault on their senses, making it nearly impossible for them to interact with others.
Yes, exactly. My friend is working as rehabilitation specialist for autistic kids, and from what she tells me life for those kids is nothing like typical HN meme 'autism is my superpower' implies.
There is a class of drugs called SARMs which are effectively used in bodybuilding but are not FDA approved. Consider too the numerous psychoactive drugs that have been subjectively reported as benign and beneficial, yet are banned. I have no doubt there are many medicines that have been discovered but never brought to market. Why not is the big question: that data isn't generally available. If I am ever struck by chr…
It's not a false hope for autism; it's a false hope for parents of autistic kids. Autism is not a mysterious affliction that takes entire families in its hold and shouldn't be portrayed as such.
Autism is at best as much fun as being born with arthritis.
It's not a false hope for autism; it's a false hope for parents of autistic kids. Autism is not a mysterious affliction that takes entire families in its hold and shouldn't be portrayed as such.
This is why I feel like merging Asperger's into Autism was a mistake. When some people say Autism, they mean being slightly non-neurotypical in a way that maybe adds some challenges to the person's life, but is more of a difference than a disability. When other people say Autism they mean severe behavioural and cognitive difficulties and round-the-clock specialist care. Each of these people is speaking from their own…
Merging Asperger's into Autism was the natural result of finally evaluating all of his research. This shows that he always worked with persons who are at all parts of the spectrum, including the worst cases people think about when they hear autism. Historical circumstances led to him being very popular for the "light" cases (i.e. the cases which didn't lead to immediate termination of life under the Third Reich), but the body of his research shows that he always was aware of the full nature of it. Unlike people who split it in autism, high-functioning autism, Asperger and whatever "separate" things they found.
It's not a false hope for autism; it's a false hope for parents of autistic kids. Autism is not a mysterious affliction that takes entire families in its hold and shouldn't be portrayed as such.
No, it doesn't necessarily "take entire families in its hold", but its effects on how you coexist with the world are nontrivial. Autism is at best as much fun as being born with arthritis.
...for some but not all autistic people.