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Leukemia Has Won

alex.blog

151–160 of 196 posts

Re: Leukemia Has Won

#151
post #15

As a human it makes me so sad to read this post. I hope the rest of his life is meaningful, comfortable and pain-free. As a doctor it makes me so mad. We talk about winning and losing against cancer like its some game or some foe personified. Just because there aren't any more chemo therapy options doesn't mean there aren't treatment options. Just because he'll be home and not in the hospital doesn't mean his doctors…

Oh boy. Here's more "feel good" language change suggestions.

No. Just not. This kind of thing is extremely hypocritical and insulting to all those who are actually fighting cancer. Both the patients, the doctors and research teams.

>Cure seems like a goal that isn't realistic anymore.

Where did you get that from? Both cure and 5 year survival rates are higher than ever and are slowly encroaching advanced stages of cancer.

>And we need to make sure he doesn't think he lost anything. Its not fair and its incorrect.

Except it is. He lost his life. This is a fact. Language won't change it. Pretending that he didn't lose anything is more insulting to him and his family than not. Respecting his choice is different from pretending that he didn't lose everything.

I've seen people give up and accept their low chances of survival. It's very rare. More often than not I see people who want to live and exhaust every option available until the last minute of their lives. This is literally a fight and these people would punch you in the face if your righteousness suggested otherwise in front of them. And it blows my mind that a doctor( are you an actual doctor? In the States the term doctor isn't regulated so a chiro can call themselves doctor) doesn't see that the field is rapidly improving with better and more options all the time. Now more than ever before it's worth fighting to your last minute in case new therapies arrive that have great results for you.

Re: Leukemia Has Won

#153
post #97

Earlier quoted context omitted.

What were your symptoms? How were you originally diagnosed?

This. What is the "correct" course of action to have it diagnosed early / maximize odds of survival?

The earlier the better. Depending on the cancer type early diagnosis of e.g. skin cancer has almost 100% survival( cure) rates. Early diagnosis of lung cancer gives the option of removing the whole section of the lung. Decreases the maximum oxygen supply rate but not enough to affect daily life.

Generally speaking if it's early we can cut it more easily, radiate the specific area instead of many different ones that cause more side effects and we can target it more effectively with drugs before it metastasizes and spirals into too many different types.

Some new immunotherapy and blocker options offer significantly increased survival rates for advanced stages of cancer as well. Nivolumab is an example that offers a 20-30% 5 year survival rate on advanced non small cell lung cancer. This isn't cure but it isn't a slow burn either. The cancer masses seem to just not grow- but not shrink either and the patients just keep chugging along. The interesting part is that the reason why the rate is 20-30% is because that's the percentage of people who respond to it. A combination of nivolumab and another drug that I forget it's name that failed as a solo option seems to increase it's rate to 40%. Keep in mind this is advanced lung cancer, the type that a couple decades ago had a couple months survival rates.

Re: Leukemia Has Won

#154
post #18

Jeeeesus. I'm incapable of understanding the mindset the man is in - total awareness of impending death. It must take tremendous courage - I think I would have been reduced to a quaking pile of jelly faced with the fact of mortality. What a person, what a reality.

> I'm incapable of understanding the mindset the man is in - total awareness of impending death. Seriously? Every human being on Earth over a toddler's age is totally aware of impending death. To date nobody has ever lived forever. The only question, for every human being, cancer or no, is how many years you get before you eventually die. Modern man just makes my head shake in disbelief sometimes...

> To date nobody has ever lived forever.

Wrong.

https://en.wikipedia.org/wiki/Mahavatar_Babaji

Re: Leukemia Has Won

#155
post #113
post #15

As a human it makes me so sad to read this post. I hope the rest of his life is meaningful, comfortable and pain-free. As a doctor it makes me so mad. We talk about winning and losing against cancer like its some game or some foe personified. Just because there aren't any more chemo therapy options doesn't mean there aren't treatment options. Just because he'll be home and not in the hospital doesn't mean his doctors…

As a medical oncologist[1], your paragraph and that paternalistic and annoying article you cited makes me mad. The outrage with 'our language around cancer' is a recent phenomenon, and I think it is actually not that important and even harmful. What you are proposing is to homogenise how patients cope with cancer, assuming that one way of dealing with it is qualitatively better than another. This 'one way' is a kind…

I suspect that the requirement of stoicism stoic in the face of cancer is more about third parties feeling bad otherwise. Stoic people makes us feel good, because it allows us to pretend to ourselves that the disease is less painful and unpleasant then we would like it to be. It allows us to not feel pain through empathy etc.

When someone is stoic because he or she wants to, that is fine. Requiring that sick people hide their pain and fear is cruel in its own way, imo.

Re: Leukemia Has Won

#157

Well the body will eventually "loose the battle" for us all. But Consciousness... since quantum information isn't lost, consciousness might be another story and not get lost with the body.

>But Consciousness... since quantum information isn't lost

Is this one of those instances where the word 'quantum' is used to hand-wave away weird ideas?

Re: Leukemia Has Won

#160
post #15

As a human it makes me so sad to read this post. I hope the rest of his life is meaningful, comfortable and pain-free. As a doctor it makes me so mad. We talk about winning and losing against cancer like its some game or some foe personified. Just because there aren't any more chemo therapy options doesn't mean there aren't treatment options. Just because he'll be home and not in the hospital doesn't mean his doctors…

Bloody hell. It's his announcement. If he feels it is a battle he has lost, well I can fully understand why, I'm not going to criticise his choice of word. Only the title and first sentence contain an expression you heavy handedly dislike. I don't see him ruling out palliative care, or any of the other criticisms you level. The rest of the short post is a poignant summary and thanks. It's disappointing, but rather ty…

We're to the point that we have to be more PC about the way we're describing cancer...
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