Ask HN: Has anyone undergone stem cell treatment for auto-immune disease? • Hacker News Board

Re: Ask HN: Has anyone undergone stem cell treatment for auto-immune disease?

#121

Post by rorykoehler » Thu, Nov 08, 2018, 7:24 AM UTC

markkat wrote: post #117

rorykoehler wrote: post #107

Earlier quoted context omitted.

Do you have any links to studies re immuno-rejection? I've heard it mentioned but I've also heard the opposite from the likes of the stem cell clinic in Panama.

Sure. https://www.ncbi.nlm.nih.gov/pubmed/29273086 https://www.ncbi.nlm.nih.gov/pubmed/30149650 It definitely needs more study.

Thanks. I find it curious as Neil Riordan from the Stem Cell Clinic in Panama says the exact opposite (I think in this video but I haven't had time to find it https://www.youtube.com/watch?v=cLKOddCPs9I). I can't make up my mind if he's a huckster or not. Based on my investigation through my network (3 degrees of separation) he seems to be legit but of course that is difficult to confirm.

Re: Ask HN: Has anyone undergone stem cell treatment for auto-immune disease?

#122

Post by rorykoehler » Thu, Nov 08, 2018, 7:34 AM UTC

Karlozkiller wrote: post #14

I never heard of stem cell treatment for auto-immune diseases at all. Got two conditions myself, I would not go for such a 'radical' treatment at this point though as I do not feel I suffer enough to try it out. I will read up on it though. But for know I'll just ask a question. What are the actual risks of stem cell treatment?

Look up Graft-versus-host disease https://www.wikiwand.com/en/Graft-versus-host_disease

Re: Ask HN: Has anyone undergone stem cell treatment for auto-immune disease?

#123

Post by rorykoehler » Thu, Nov 08, 2018, 7:35 AM UTC

airfreak wrote: post #11

My wife had HSCT to treat MS a year and a half ago. So far some symptoms went away, others stayed, but most importantly she hasn't got worse. Fingers crossed it will stay that way.

That's great news. My bro had MS. It's much more serious than AS. As I am intimately familiar with MS by proxy I'm curious which aspects improved and which ones didn't?

Re: Ask HN: Has anyone undergone stem cell treatment for auto-immune disease?

#124

Post by rorykoehler » Thu, Nov 08, 2018, 7:41 AM UTC

zackmorris wrote: post #116

I had never heard of AS but for what it's worth I think that we are all facing a host of 21st century autoimmune diseases that may be caused (in part) by our diet and environmental factors. Although my situation in no way compares to yours, I think I may have a condition called leaky gut after a lifetime of eating legumes, nightshades and specifically proteins like gluten which are part of the lectin family (or somet…

I am convinced that we will discover many auto-immune diseases are the same disease manifesting in different ways due to environmental factors.

I have researched all the aspects you mention thoroughly already and I can't agree more with your closing paragraph. Spot on!