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DNA of every baby born in California is stored. Who has access to it?

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Re: DNA of every baby born in California is stored. Who has access to it?

#83
post #53

I had a kid a year ago, and another one three years ago. Both had this test. Their mom probably wouldn't remember if you asked her. She's not really a good person to ask. You should be asking the partner who was there for the birth, since we're the one that actually sees it happen (they were still stitching up my wife when the test was done). For the second kid (because I was just in a daze for the first kid), being…

> I was told that I could not opt out and that the sample becomes the property of the State and there is nothing I could do about it. That is so disgusting. For all the talk about individuality and liberalism, it's amazing how liberal societies are so authoritarian and controlling. If you don't own your DNA, then what do you own? But I guess big brother knows what's best for us.

DNA is a pretty hard thing to keep private. I wouldn’t think of it as one of the last things you lose right before liberty.

Re: DNA of every baby born in California is stored. Who has access to it?

#84

Earlier quoted context omitted.

> I was told that I could not opt out and that the sample becomes the property of the State and there is nothing I could do about it. That is so disgusting. For all the talk about individuality and liberalism, it's amazing how liberal societies are so authoritarian and controlling. If you don't own your DNA, then what do you own? But I guess big brother knows what's best for us.

[flagged]

> In the Netherlands, gym membership require drug tests

Ehh, that's bull. It doesn't.

(source: Dutch, with gym membership)

Re: DNA of every baby born in California is stored. Who has access to it?

#85

This is how we found out that my daughter has cystic fibrosis and have been able to treat her from a few weeks after birth. The result is that she'll probably live a normal length life rather than dying in adolescence. So I'm fairly positive on this program...

I hope that her chemo and radiation regimes were light. I worry very much that mine have shortened my life expectancies.

They would have been non-existent since neither chemo nor radiation have any bearing on CF.

https://www.mayoclinic.org/diseases-conditions/cystic-fibros...

Re: DNA of every baby born in California is stored. Who has access to it?

#86
post #84

Earlier quoted context omitted.

[flagged]

> In the Netherlands, gym membership require drug tests Ehh, that's bull. It doesn't. (source: Dutch, with gym membership)

Does it maybe require accepting that random or targeted drug tests can be carried out and you have no right to refuse? Source this is the case in several countries.

Re: DNA of every baby born in California is stored. Who has access to it?

#87
I can comment on this firsthand. I was born in a hospital here in California, so my DNA was collected. A couple years ago I heard about this program, which I believe to be a gross violation of privacy and overstepping of authority. I read somewhere that you can have your/your child's sample destroyed by filling out a form and sending it to a state health agency (don't remember the specific one now). You have to provide name, date of birth, and the name of the hospital. I did so, and perhaps a month or two later I received a letter saying that my sample had been destroyed. Clearly these samples are not de-identified if they are able to be located with the info provided.

I think this program is utterly disgusting. It's a terrible violation of privacy. The DNA of every baby (born in an actual medical institution) is collected, tested for whatever, and then stored indefinitely. There is no opt-in or opt-out as far as I'm aware, just that you can later have the sample destroyed if you happen to hear about this program and go to the effort of finding out how to do it. This is some disgusting Orwellian BS.

Re: DNA of every baby born in California is stored. Who has access to it?

#90
post #84

Earlier quoted context omitted.

> In the Netherlands, gym membership require drug tests Ehh, that's bull. It doesn't. (source: Dutch, with gym membership)

Does it maybe require accepting that random or targeted drug tests can be carried out and you have no right to refuse? Source this is the case in several countries.

Why do/should they care if people in the gym are on drugs or not?

I understand you can be fired from the job because of them (due to negative affect they might have on your work), and when participating in competitive sports, but rejecting someone to the gym for the sole reason of them being on drugs seems in-line to refusing them serving in a supermarket for the same reason.

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