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It all made sense when we found out we were autistic

bbc.co.uk

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Re: It all made sense when we found out we were autistic

#2
Aspergers was not a thing when I was growing up in the 70s so I was never formally diagnosed, but I'm pretty sure I'm on the spectrum, and the result was a pretty painful childhood. I managed to drag myself out of it and give myself an education in social skills, and nowadays you'd never guess that I'm Aspie (my wife still doesn't believe me, but I think she's an undiagnosed Aspie herself). Even to this day there are a lot of things that "normal" people do that are utterly foreign to me, like going to clubs or watching sports on TV. My idea of a good time is reading up on quantum mechanics or the ordinal hierarchy. I think mild Aspergers is a lot more common than most people think even today because it is possible to hide it completely, and there's a lot of societal pressure to do just that.

[UPDATE] A lot of reply comments are of the form: what you have described here is not Aspergers, it's just normal growing up. Well, yeah, it's not so easy to give a complete description of my situation in an HN comment, and I'm not sure I'd be willing to do it even if I could. I'm not particularly proud of the person I used to be. But I will tell you this: in retrospect, when I was a kid, I was completely oblivious to the fact that my peers were agents in their own right, with thoughts and preferences and hopes and dreams that might be different from my own. That, I am now given to understand, is the hallmark of autism spectrum disorders. But I don't think it matters whether or not I "actually" had/have Aspergers. What matters is that because I was clueless, I behaved obnoxiously (not realizing that I was doing so) and as a result of that I had very few friends. It was intensely painful, and it took many years of concerted effort to change my situation, but I ultimately managed to do it. That is really what I want to convey: whether or not it was abnormal, it hurt, but I was able to make it better. And if I could do it, so can you, regardless of what label we choose to attach to our conditions.

Re: It all made sense when we found out we were autistic

#3
My wife and I believe our daughter has a (thankfully) mild form of autism. It took us a while, but when the realization came, it was a relief, as we stopped being angry at her and at ourselves: 1) hopefully we did not do anything wrong to cause this, and 2) it is not our daughter's fault that she behaves this way.

We did not get a specific diagnostic, and I'm not sure it's worth seeking one. As far as I know, the diagnostic is not scientific, so I wouldn't consider it a strong validation of what we're experiencing. However, a diagnostic might make it easier to explain to our family and friends what is going on, and talk about it.

Any thoughts?

Re: It all made sense when we found out we were autistic

#4
post #3

My wife and I believe our daughter has a (thankfully) mild form of autism. It took us a while, but when the realization came, it was a relief, as we stopped being angry at her and at ourselves: 1) hopefully we did not do anything wrong to cause this, and 2) it is not our daughter's fault that she behaves this way. We did not get a specific diagnostic, and I'm not sure it's worth seeking one. As far as I know, the dia…

I mean, IANAD but I would definitely get a professional diagnosis before acting on the assumption my child has a specific medical condition...?

Re: It all made sense when we found out we were autistic

#5
post #4
post #3

My wife and I believe our daughter has a (thankfully) mild form of autism. It took us a while, but when the realization came, it was a relief, as we stopped being angry at her and at ourselves: 1) hopefully we did not do anything wrong to cause this, and 2) it is not our daughter's fault that she behaves this way. We did not get a specific diagnostic, and I'm not sure it's worth seeking one. As far as I know, the dia…

I mean, IANAD but I would definitely get a professional diagnosis before acting on the assumption my child has a specific medical condition...?

It sounds like the parent is talking about validation, not specific psychiatric action. I think it should be OK as long as they don't present their child as professionally diagnosed as such.

Re: It all made sense when we found out we were autistic

#6
post #5
post #4

Earlier quoted context omitted.

I mean, IANAD but I would definitely get a professional diagnosis before acting on the assumption my child has a specific medical condition...?

It sounds like the parent is talking about validation, not specific psychiatric action. I think it should be OK as long as they don't present their child as professionally diagnosed as such.

Thanks. We're only acting on it insofar as we read about it and try to find practical ways to deal with it. We're not going to medicate her! And when we discuss the topic, we always start with: "We believe that..."

Re: It all made sense when we found out we were autistic

#7
Although im male i also had a late diagnosis (33) which brought about several "oh now that makes sense" moments. im not really surprised i wasnt diagnosed, i grew up in a tiny middle of nowhere village in the 80s, autism was pretty much unheard of i was just the "problem kid" of the village.

ive also always had various quirks that id always previously just put down to me being "weird" the most pronounced of these is that i am a vegetarian, however not by choice, i just cant see meat as edible, i can and have killed/cleaned/cooked things before so that doesnt bother me, i wish i could change it but i simply cant.

its not all bad though, yes i lack empathy and im socially awkward to say the least but i also have an excellent memory and a solid affinity for electronics and IT, i didnt need to be taught, ive always just sort of known.

so while a diagnosis didnt change anything about my life it did answer some questions about why i am who i am

Re: It all made sense when we found out we were autistic

#8
post #2

Aspergers was not a thing when I was growing up in the 70s so I was never formally diagnosed, but I'm pretty sure I'm on the spectrum, and the result was a pretty painful childhood. I managed to drag myself out of it and give myself an education in social skills, and nowadays you'd never guess that I'm Aspie (my wife still doesn't believe me, but I think she's an undiagnosed Aspie herself). Even to this day there are…

> My idea of a good time is reading up on quantum mechanics or the ordinal hierarchy.

Haha, same here!! Does it mean I might be an "Aspie" too???

Re: It all made sense when we found out we were autistic

#9
post #3

My wife and I believe our daughter has a (thankfully) mild form of autism. It took us a while, but when the realization came, it was a relief, as we stopped being angry at her and at ourselves: 1) hopefully we did not do anything wrong to cause this, and 2) it is not our daughter's fault that she behaves this way. We did not get a specific diagnostic, and I'm not sure it's worth seeking one. As far as I know, the dia…

I am the stepfather of a 14YO girl with rather severe autism (non-verbal, significant self-stimulation or "stimming/stims", multiple comorbidities like OCD behaviors), and about a month ago our adopted 3YO daughter was also diagnosed based on interviews with us and a couple/few hours with a doctor.

The diagnosis of the 3YO will provide access to several services where I live (NY state), and she's already been enrolled in an early education class with others on the spectrum. Before turning 3 she was receiving about 2 hours of in-home speech and therapy per week.

Get her to a doctor for diagnosis, as early services can be very helpful in long-term outcomes. We also had early services for the 14YO that unfortunately were not entirely effective due to the seriousness of her condition, but we're optimistic that the 3YO could be in general education classes by elementary school.

Re: It all made sense when we found out we were autistic

#10
Autism, like cancer, is not a single thing. Toward the start of the spectrum, including Asperger's, it seems to be essentially "clinically-significant weirdness, not otherwise specified" (on the later end of the spectrum, it's "major or profound mental retardation, not otherwise specified").

A more productive discussion might be why we feel the need to pathologize so much about ourselves. Why do we need a person to look us over and say "Ah, none of what you are is your fault" to feel OK?

Worse, why do some parents need to hear that about their children? I've known kids who've been paraded to several "mental health professionals" until one would finally give the parents what they ultimately wanted, a diagnosis-as-scapegoat. In the 90s that scapegoat was ADHD. Today it's Asperger's.

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